Growing up bipolar: 'Nobody was on my side'
 By *Elizabeth Landau*, CNN
August 30, 2010 -- Updated 1225 GMT (2025 HKT)
 [image: "Rather than try to calm down ... I would just show it through
emotion: I would just cry or yell," says Jennifer Konjoian.]
 "Rather than try to calm down ... I would just show it through emotion: I
would just cry or yell," says Jennifer Konjoian.
 *STORY HIGHLIGHTS*

   - More children in the United States are receiving diagnoses of bipolar
   disorder
   - Because some symptoms resemble other conditions, it is frequently
   misdiagnosed
   - Giving a child medication for the wrong psychiatric illness can have
   dangerous consequences

*(CNN)* -- Jennifer Konjoian was 10 years old when she put a plastic bag
over her head. She remembers doing it impulsively, for no other reason than
to get attention.

For her mother, it was the last straw in a series of tantrums that led her
to believe something was seriously wrong with Jennifer. After that incident,
she took Jennifer to a psychiatric hospital.

But that was far from the end of the journey for this mother and daughter to
understand what was making Jennifer feel so frequently frustrated and
overwhelmed by daily life situations at home. It took a second
hospitalization at a different institution before she received medication
that worked -- lithium -- for a diagnosis that seemed to fit: bipolar
disorder.

*More bipolar kids, and younger*

Mental health professionals say that more and more children are receiving
diagnoses of and treatment for bipolar
disorder<http://www.nimh.nih.gov/health/publications/bipolar-disorder-in-children-and-teens-easy-to-read/index.shtml>,
and at younger ages. This is a serious brain disorder in which a person goes
through extreme mood episodes of mania and depression, going from intense
excitement and lack of focus to sadness and even suicidal behavior.

A 2007 study in the Archives of General Psychiatry found that the number of
office visits resulting in a diagnosis of bipolar disorder for those under
19 was 1,003 per 100,000 people in 2002-03 in the United States. This was a
dramatic uptick from 25 per 100,000 people in 1994-95.
 Bipolar Disorder 101

"The prevalence of bipolar disorder in children in genuinely growing, but I
think it's also because we are also becoming more aware that children who
have very wild and very problematic mood swings may have bipolar disorder,"
said Dr. Rakesh Jain, a psychiatrist in Lake Jackson, Texas.

But another reality that's not popular among parents is that sometimes,
components of the child's environment contribute to these behavioral
disturbances, said Dr. Charles Raison, psychiatrist at Emory University.

There are, of course, children who genuinely have bipolar disorder, but he
cautions that ideally, as a first line of defense, family support and
therapy would be given to the child and problematic environments -- be it
home or school -- would be improved, and then medication would be given as
needed.

"The problem is that's a bit of a pie-in-the-sky situation because most
people don't have the money, don't have the access," he said. "On the other
hand, there's certainly are going to be some kids that are so disruptive, so
messed up and so bad, they probably need medication right away."

Some kids, like many adults with mood disorders, do best with both
psychotherapy and medication, said Raison, who has written about bipolar
disorder<http://edition.cnn.com/2010/HEALTH/05/25/raison.bipolar.argument/index.html>
on
CNN.com.

*Toward a better diagnosis*

Although it is normal for children to throw minor fits when they don't get
what they want, they are not moody by nature, and long-lasting tantrums may
be indicative of bipolar disorder, Jain said.

Because some symptoms of bipolar disorder resemble other conditions and
there is not a lot of physician education about bipolar disorder in
children, it is frequently misdiagnosed, Jain said.

Jain admitted that earlier in his career, he frequently told young patients
they had attention-deficit (hyperactivity) disorder or conduct disorder,
when it became clear later that they were bipolar; he makes fewer of these
mistakes now.

Giving a child medication for the wrong psychiatric illness can have
dangerous consequences, experts say. Muffy Walker, president of the
International
Bipolar Foundation <http://www.internationalbipolarfoundation.org/>, knows
this firsthand: Her son had been taking antidepressants but had a full-blown
manic episode at age 7. He talked about killing himself all the time;
medication for bipolar disorder has helped him get back on track.

There is large variation in individual response to psychiatric drugs, so
there is always trial and error involved, notes Raison.

It is rare for a child to show "classic" symptoms of adult bipolar disorder:
rapidly changing mood swings and episodes of both depression and mania,
Raison said. More often, children display nonspecific behavioral and
emotional instability; they may or may not grow up to have full-blown
bipolar disorder in adulthood, he said.

That partly why some psychiatrists have proposed a new diagnosis for such
kids for the forthcoming edition of the Diagnostic and Statistical Manual of
Mental Disorders, the bible of psychiatry. It's called Temper Dysregulation
Disorder with 
Dysphoria<http://dsm5.org/ProposedRevisions/Pages/proposedrevision.aspx?rid=397>,
and it would include young children who have recurrent temper outbursts to
common stressors.

Since it's not an official diagnosis currently, it's not as mainstream a
term as "bipolar."

Konjoian had never heard of it but is now curious. Bipolar disorder, and
medications for it, appeared to fit her daughter best out of the available
options, but she's open to the idea that there's something more specific to
describe Jennifer.

*The case of Jennifer*

Jennifer, the middle child, was always the most sensitive of Konjoian's
three children, her mother said. She never had any episodes at school; they
usually happened when she felt overwhelmed by her family: for instance, when
her siblings picked on her.

"I felt like nobody was on my side. That's kind of how I always felt," said
Jennifer, now 17, of Andover, Massachusetts. "Rather than try to calm down
and tell them how I feel, I would just show it through emotion: I would just
cry or yell."

Konjoian suspected that Jennifer needed medical attention at age 8, when she
would cry for extended periods of time and get into moods very quickly. A
pediatrician found nothing wrong with her.

"I can't think straight, I guess, when I'm agitated. I just start yelling,
or I start crying. You just can't think straight," Jennifer said.

At a therapist's suggestion, Jennifer's parents agreed to put her on
antidepressants since she seemed to be getting worse. The therapist
mentioned that it could be bipolar disorder, but at the time Konjoian didn't
believe it. Still, when things worsened, Konjoian agreed to antidepressants.

Jennifer was off medication for third grade, but in fourth grade things got
worse. She received more medication and therapy, but the combination didn't
seem to be helping.

"A couple of times, she would open the bathroom window on our second floor
and stick her leg out and threaten to jump, and you knew that it was
something that she didn't even know herself, because when I'd question her
about it later, she didn't even remember it," Konjoian said.

After her second hospitalization and lithium prescription at age 11,
Jennifer improved markedly, both in her mother's estimation and in the way
that she feels about situations that used to give her difficulty.

"In certain things that would get me upset, rather than just going off in a
temper tantrum, I'd be able to think about it more. I feel like it slowed me
down a little bit and think more so I could stop it from escalating," she
said. "Also, I matured."

*Is it possible to stop medication?*

For the past year, Jennifer has been off of all medications but still sees a
therapist, and the family has a relationship with a psychiatrist in case of
relapse.

In general, people with bipolar disorder must stay on medication for life
because relapses are common, said Raison, who has not treated Jennifer. But
some are fine for periods of time without them, he said.

Jain agreed that some patients who do well can go for stretches without
medication, but he has never been able to completely remove a bipolar
patient from drugs and say, "you're cured." Bipolar disorder should be
viewed as a chronic illness like hypertension or diabetes, which require
lifelong management, he said.

It is wise for anyone who does go off medicine to continue to see a mental
health professional and closely watch for symptoms of recurrence, Raison
said.

Jennifer and her mother are both active in speaking out about mental
illness. Jennifer, a senior in high school, volunteers withFamilies for
Depression Awareness <http://www.familyaware.org/>. Patricia Konjoian is the
co-author of "Shut Up About Your Perfect Kid: A Survival Guide for Ordinary
Parents of Special Children." <http://shutupabout.com/>

http://edition.cnn.com/2010/HEALTH/08/30/bipolar.kids/index.html#fbid=hleJ3uuud3P&wom=true

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