---------- Forwarded message ----------
From: Menona Thomas <[email protected]>
Date: 12 May 2011 00:38
Subject: Re: [MhaReformIndia:412] Fwd: Caregiver's meeting at IBHAS


*Got this email from one of my friend though of sharing to all coz it’s a
noble cuase;*

* *

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* *

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With Green regards,

Menona

A Green Yatri




On Wed, May 11, 2011 at 10:14 PM, Nirmala Srinivasan <[email protected]>wrote:

> Dear Ratna and  mhare group members
> I take immense pride and pleasure in forwarding the mail from Rita Seth,
> member of ROSHNI Action for MI, Delhi. ROSHNI is an Advocacy Group of carers
> and users which started  as a one man force- Capt. Robby- way back in 2006
> at Delhi under the care and mentorship  of ACMI. Many NGOs playing a leading
> role in these Ministries for the Cause  of MI may not be aware of the
> spadework done by Robby and later by the ROSHNI members resulting in several
> tangible and intangible benefits to PwMI.
>
> It was nurtured all along as an All India  Voice at the Centre , an
> affiliate to ACMI , Bangalore in its advocacy initiative especially those
> pertaining to the recent legislative amendments at the MoHFW and MoSJE. From
> very humble one  man army, ROSHNI is poised to take off as a major care
> givers and user group at Delhi under the support extended by Dr.Nimesh Desai
> of IHBAS and other members of his team.
>
> Ever since the NOIDA sisters tragic exposure, ROSHNI has been engaged in
> reaching out to PwMI  who are languishing in their own homes for want of
> support to faciltate their treatment and care. THE HINDU Delhi edition did a
> good coverage. Last week, they were busily engaged in saving a sibling with
> MI whose parents are no more; this week perhaps , they are trying to reunite
> an orphaned MI boy with his elder brother. Details are yet to come.
>
> Rajeshwari Iyer is presently the footwork soldier; herself a care giver,
> she  is our Program Officer in Delhi besides being the President of ROSHNI
> TRUST, a responsibility she shares with Jatinder khurma, Bhowmik, Anupma
> Gupta, Balu, Shukla, Agarwal, Krishnna, Vijayan , Madhu  and of couse , Rita
> Seth.
>
> Their immediate focus is on holding zonal meetings for families and users
> with the help of IHBAS. How can we not mention their *Dream Project to run
> a DAY CARE Centre* , once again in collaboration with IHBAS.
>
> We at ACMI are priveleged to see ROSHNI  take off its wings and fly far
> into a bright future . We have seen ROSHNI from its humble beginnings. For
> me, it is a journey down the memory lane !
>
> cheers
> nirmala
>
>
> ---------- Forwarded message ----------
> From: rita seth <[email protected]>
> Date: Wed, May 11, 2011 at 6:48 PM
> Subject: Fwd: Caregiver's meeting at IBHAS
> To: Nirmala Srinivasan <[email protected]>
>
>
> Dear Nirmalaji,
>
> The meeting for caregivers ( of persons affected by mental illness ) at
> IBHAS,  jointly organised by Roshni and IBHAS was very successful.  About
> 200 caregivers turned up for the meeting.
>
> As the people were walking in, the old Roshni members started a one on one
> discussion with individuals, listening to their concerns and trying to
> address them.
>
> The session started with Dr. Nimesh Desai, Director IBHAS saying that he
> and his team of professionals would essentially play the role of being
> listeners and speak only in the last session.
>
> The first session was by Roshni members and the topics we addressed were as
> follows:
>
> 1)  Introduction to Roshni and its objectives - Mr. Jatinder Khurma spoke
> on how Roshni was started about 5 years back and has been working under the
> guidance and support of Dr. Nirmala Shrinivasan of ACMI, Bangalore.  He
> spoke on how it has been an advocacy group and has helped its members in
> sharing information and experience and find solutions for themselves and the
> people they are caring for.  He spoke on how such groups encourage people to
> overcome stigma and come out in the open with the problems they face and
> also spread awareness and understanding amongst the caregivers and society.
>
> 2)  Activities of Roshni: Rajeshwariji spoke on how Roshni has helped its
> members come together and be a support for each other.  She spoke about
> Roshni  helping its members become aware of their rights, organize
> disability certificates, arrange funding by forming trusts etc. for the
> future use of their affected relatives, becoming aware of their rights and
> responsibilities etc.  She also mentioned that Roshni has organised several
> workshops for its members to become aware of how to care for their affected
> relatives and themselves, how to manage crisis situations and encourage
> people to overcome stigma.  She mentioned that they were also trying to find
> solutions for people who have been living with mental illness, all by
> themselves without family support, to  get necessary treatment. Roshni had
> also encouraged people to go to rehabilitation centres after treatment in an
> attemt to recover from the illness and reestablish themselves in society.
>
> 3)  Awareness and stigma:  I spoke of awareness as comprising of not just
> knowing the symptoms of the illness but also understanding and acceptance by
> the affected person, the family, the society and the professionals.  I also
> spoke about identifying the real needs of the affected person and jointly
> addressing them to pave the path to recovery.
>
> 4) Rehabilitation:  Mr. Baumik spoke on the need for rehabilitation and the
> benefits he has seen of going through this process in his experience with
> his son.  He emphasized on the responsibility of the govt. in making
> day-care centres and rehabilitation centres for this purpose so that the
> worry of every caregiver about the care of his affected relative especially
> once the caregiver is no more is taken care of.
> :
> 5) Purpose of the caregiver movement:  Capt. Shukla spoke on the plight of
> the families who experience this illness.  He spoke of the benefits of a
> joint effort in a self-help group that can ease the burden on caregivers by
> realizing that they are not alone in this struggle and by being part of such
> a self- help group they can find satisfactory solutions to a lot of problems
> by sharing with others.
>
> 6) Some Roshni members spoke of the solutions they had found because  of
> their association with Roshni
>
> After the session by Roshni, the new caregivers spoke one after the other
> sharing their concerns, their individual situations and also expressing the
> willingness to contribute for joint benefit.  Several of them came forward
> for membership.  Some of them even shared some success stories which was
> very encouraging for the rest of us.
>
> This was followed by a short session by some other self-help groups like
> Alcoholics Anonymous and HIV positive, who spoke on the benefits of joining
> such groups.
>
> The concluding session was by Dr. Nimish Desai and the other members of his
> team who addressed the concerns of the caregivers in their area of treatment
> and encouraged people to join Roshni and /or  form more self-help groups in
> their own areas.
>
> Roshni concluded by thanking the IBHAS  team and the people attending.
>  Amazingly most of the 200 people stayed for more than 4 hours and left with
> a ray of hope, expressing their gratitude and willingness to join,
> participate and benefit from such activities.  We drew their attention to
> the fact that self-help groups can help increase the number of people
> wanting to bring about change and our voice will be heard only if we work
> together for social and governmental supports.  Also we drew their attention
> to the fact that each one of us could participate and help others using our
> own strengths, people with business houses could offer jobs, people with
> funds could help with contributions, people with legal understanding can
> help in that area, people with understanding of finances can help the peer
> group to organise their funds etc.
>
> Rajeshwariji distributed copies of "we are not alone" and they were much
> appreciated.
>
> On the whole it was a very encouraging experience.  We hope to have many
> more such meetings in future and involve more and more people.
>
> regards,
>
> rita seth
> (Roshni member)
>
> --
> nirmala srinivasan(ashoka fellow)
> director, ACMI
> bangalore -india
> +91 9886031659
>
>

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