Dear fellow citizens,

The International Institute for Population Sciences (IIPS) tasked by
India’s Health Ministry, to conduct the National Family Health Survey
(NFHS), an important pan-Indian survey that influences health policy
making, has quietly dropped the questions on disability
<https://timesofindia.indiatimes.com/india/govt-drops-disability-related-questions-from-national-family-health-survey/articleshow/100526666.cms>
(and anaemia
<https://timesofindia.indiatimes.com/india/nfhs-6-not-to-measure-anaemia-as-experts-point-out-method-is-faulty/articleshow/100538418.cms>
and who knows what else!)  from the upcoming NFHS-6 scheduled to commence
on 3 July 2023.


Despite frequent meetings with DEPwD, DGHS, NHSRC from February 2023, by
the disability sector's representatives, with the aim of improving on
NFHS-5's questions on disability; both disability and anemia components
have been dropped on flimsy grounds. We have been presented with a fait
accompli without the courtesy of an intimation.


Additionally, not only has there been no civil society representation in
the Technical Advisory Committee, the 4 questionnaires (household, woman,
man, biomarker) are not yet in the public domain, though training is on in
full swing.


Do insist that essential information sought in the past is continued with
NFHS-6. *Send the attached representation by email and remind our
representatives, that it's a question of inclusion* that key
characteristics are not dropped.


*While the questions on disability, introduced in NFHS-5 on the request of
the Social Justice Ministry, require extensive discussion and expansion to
reflect a range of disabilities, they must at the very least, at this late
stage, be restored. *



Regards,


Team DRA.

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Attachment: 20230529 Representation NFHS6 disability data Inclusion ltr.docx
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