Hi Hasti, There is some maintained knowledge base for "rare disesases" in this area in Sweden. Our National Board of Health and Welfare has an expert group who maintains a database of around 250 rare diseases, of which some involves skeletal dysplasia. The board have also developed a generic model of information structure where you could put all the procedures being critical to these conditions. If connected to the precise context in the EHR system, proposed actions from the user (healthcare professional) could be warned of because of the evident or potential threat to the patient.
Are there particular conditions you are interested in? Best regards, Rikard L?vstr?m 2010/11/12 Hasti Ziaimatin <h.ziaimatin at uq.edu.au> > Hi Pariya, > > > > Thank you for your reply. The project is aiming at creating a knowledge > base for Skeletal Dysplasia which will also be used for decision support. > > > > Cheers, > > Hasti > > > > *From:* openehr-clinical-bounces at openehr.org [mailto: > openehr-clinical-bounces at openehr.org] *On Behalf Of *Pariya Kashfi > *Sent:* Thursday, 11 November 2010 7:42 PM > > *To:* For openEHR clinical discussions > *Subject:* Re: Research Topic > > > > Hi HAsti, > > Are you talking about a knowledge-based decision support? or the focus is > only on creating a repository of disease cases? > > > > -Pariya > > On Nov 11, 2010, at 12:40 AM, Hasti Ziaimatin wrote: > > > > Hi All, > > > > I?m a PhD student at the University of Queensland in Brisbane, Australia. > I?m currently performing research, in collaboration with other members of > the team, on creating an ontology for depicting a health information system > model for a heterogeneous group of genetic disorders affecting skeletal > development. > > > > I have recently come across openEHR archetypes. I have an interest in this > area and would like to kindly ask for your help in finding a research topic > which I may be able to relate to creating a knowledgebase to assist > clinicians in capturing gene and protein information as well as help with > the diagnosis of rare and unknown cases of these genetic Skeletal disorders. > Semantic Web technologies will be used for creating this knowledge base. > > > > Thanks in advance. > > Hasti Ziaimatin > > > > <ATT00001..txt> > > > > Regards > > Pariya > > > > MSc; PhD Candidate > > Department of Computing Science and Engineering > > Chalmers University of Technology > > http://www.chalmers.se/cse/EN/people/kashfi-hajar > > > > > > > > > > > > > > _______________________________________________ > openEHR-clinical mailing list > openEHR-clinical at openehr.org > http://lists.chime.ucl.ac.uk/mailman/listinfo/openehr-clinical > -- ----------------------------------------------------------------- Rikard L?vstr?m Address: Sj?lyckev?gen 29, S-511 63 Skene Phone: +46 320 14242 Cell/mobile: +46 70 4951534 Homepage: www.lovstrom.nu -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://lists.openehr.org/mailman/private/openehr-clinical_lists.openehr.org/attachments/20101112/9d82f9e6/attachment.html>
