I served Hospice on a contractual basis for a few years and received very
few referrals. I did inservice the Hospice staff on OT's role with Hospice,
focusing on support, adaptive devices and compensatory techniques. However,
the Hospice staff seemed primarily interested in the issue of
restrictiveness vs. positioning and safety in wheel chairs, seats and beds.
I still did not receive very many referrals after the inservice. The county
that I worked with only saw clients who were in the very end stages of their
illness.

On a personal note, my mother had a terminal illness four years ago. She was
very much in denial about her brain tumor and felt she would find cure. Mom
also would not accept Hospice because she was going to find a cure for this.

As an OT, it became my role to approach her about the need for a wheelchair
and shower chair and feeding equipment. It was extremely difficult because
the need for these equipment was a concrete indication of the progression of
her tumor; however she wanted to stay as independent as possible for as long
as possible. So, I was allowed to borrow equipment from my job and keep her
going as much as possible. She was not interested  in her usual occupations
other than basic self care at this point.

This whole experience tuned me into the interpersonal family struggles that
occur when a loved one is in denial about their condition and such things
like the dignity of being able to feed ones self versus being fed by someone
else and so forth....Joanne


-----Original Message-----
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]]On Behalf Of
[EMAIL PROTECTED]
Sent: Wednesday, December 05, 2001 9:38 AM
To: [EMAIL PROTECTED]
Subject: Re: Hospice and OT



I have almost no experience in hospice, but have two OT friends that
do...from what I know they do, in addition to how I practice OT, I would
say that the role of the OT in this setting should be to enable occupation.

  I know that sounds ridiculously simple, but if the clients are truly
recieving OT, they should be getting the benefit of a therapist who can
help them determine which occupations are pertinent to the quality of their
daily life in this last stage  (i.e., using the COPM), with a  care plan
that reflects how those occupations can be achieved.

This isn't to say that positioning, splinting, etc are not a part of the
plan; if  they enable the client to engage in occupations, then they are a
necessary intervention.  I think in the area of hospice we also have to
remember that a persons occupational sphere is shrinking, and that a
meaningful occupation may be as simple as being able  to sit up each day
for 30 minutes when the children come home from school, etc.

Also, and this is the beauty of the COPM, the family's needs can be
considered too.   And of course environmental assessment and
recommendations, in addition to family/caregiver education are a given.

I would love to hear what others are thinking...

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