Dear Norileen- I have worked at a facility for severe/profound Adult Developmental Disabilities and the long- term results of spastic CP are devastating. I do not work with children, but most of the literature I have read has indicated limited only effectiveness of the treatments you describe for spasticity. Most of our folks with spastic quadriplegia have developed severe contractures over the years.
Future goals for this child, if s/he is severely delayed, may be as follows: 1- Has Intrathecal Baclofen been discussed? (this kid may be too young for such a treatment). The research on this treatment is promising. 2- Ambulation/mobility and wheelchair positioning 3- Augmentative Communication 4- Casting or splinting to prevent elbow, wrist or other contractures 5- Daily ROM/Stretching/alternative positioning 6- Environmental access 7- Feeding/ Dysphagia concerns I have no idea what your time or financial limitations may be for serving this child, but I hope this helped...Joanne -----Original Message----- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Behalf Of Norileen Joco Rosales Sent: Monday, February 24, 2003 6:05 PM To: [EMAIL PROTECTED] Subject: Cerebral Palsy Prognosis I am a therapist from the Philippines and currently working with a 3 yr old CP spastic Quadriplegia. I am worrying about his development because I have been treating him for 1 1/2 years already and still find very little improvement regarding his motor develoment. I used NDT for the first 6 months incorporated with facilitatory techniques for his hypotonic lower extremities and very spastic upper extremities. From the sixth month up to present I am using therapeutic electrical stimulation to relax his muscles and develop strength. During every treatment I incorporate play to facilitate his communication and still uses NDT once in a while. I have also used icing/ cold stimulaiton as well as use techniques of sensory integration. I am very open to every treatment technique so that I would achieve my goal for him. He has frequent seizures, breathing problem (barrel chested) hip subluxation, has an NGT for almost 2 years, has very limited voluntary movements, his ATNR and primit! ive reflexes persists, and still does not developed equilibrium reactions and righting reactions while placed in sitting position and demonstrated very little improvement with all the techniques and modalities I used and now I noticed he has structural scoliosis. I'd like to know if i CAN STILL EXPECT SOME IMPROVEMENTS IN THE NEXT COUPLE OF MONTHS.What do you think will be his prognosis? What do you think would be the most effective treatment for him? Please give me some practical suggestions regarding the best therapeutic technique I can do. As a therapist I aim to provide my patients the best treatment possible to make their little lives wothwhile and I always try to find the best solution for every problem. PLEASE HELP ME!!!! Norileen J. Rosales, OTRP Private Practice -- On Sun, 23 Feb 2003 08:24:44 Elizabeth H. Thiers wrote: >Where are you located Rick? I know several sources in our area and since >many are federally funded you may find a correlate in your area. For young >children who are blind with physical impairments there is CITE and the local >Lion's club center. For others there is the Florida Division of the blind. >Orientation and Mobility is a specialty area of vision teachers and requires >advanced training. However, at least the resources in our area are great >about sharing their wealth of information. I know when I started working >with some deaf/ blind clients they gave me oodles of information. >Also, you may already know this already but, get a good idea of difference >between blind and visually impaired. You want to know what type of sight >the person may or may not have. > >Elizabeth H. Thiers, OTR/L >Florida Elks Children's Therapy Services >[EMAIL PROTECTED] > > > -----Original Message----- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Behalf Of >[EMAIL PROTECTED] > Sent: Saturday, February 22, 2003 1:10 PM > To: [EMAIL PROTECTED] > Subject: ADLs and blindness > > > Rickot- > The independent people I know with blindness have everything in their >house very organized. They always keep things in the same spot. If they >know braille, they use a labeler to label everything with braille writing. >A professor I had really used his ears for everything! He could walk >through a city and know when to cross the street by just listening to the >sounds of the cars. I have never worked with training the blind myself, >this is just what I have seen with the blind people I know. There are blind >rehab centers around which are residential programs for training the blind. >That is all the help I can offer. > Need a new email address that people can remember Check out the new EudoraMail at http://www.eudoramail.com *********��*********** Unsubscribe? Send a message to [EMAIL PROTECTED] In the message's *body*, put the following text: unsubscribe OTlist ** List messages are archived at: http://www.mail-archive.com/[EMAIL PROTECTED] *********��*********** *********��*********** Unsubscribe? Send a message to [EMAIL PROTECTED] In the message's *body*, put the following text: unsubscribe OTlist ** List messages are archived at: http://www.mail-archive.com/[EMAIL PROTECTED] *********��***********
