Hello Judy:

Thanks for sharing your daughter's story.

One  thing  for  sure,  recovering  from  an  injury  or illness is an
individual journey.

Your story proves it!

Ron

----- Original Message -----
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Sent: Friday, October 27, 2006
To:   OTlist@OTnow.com <OTlist@OTnow.com>
Subj: [OTlist] Re. two perspectives on recovery

mbn> I may have a perspective that not many have given recent
mbn> events with my daughter.  I think, in the last 3+ weeks, my ideas
mbn> have evolved beyond that of just "return to function".  It has
mbn> truly been a learning experience for me.  There are other
mbn> perspectives that patients and families bring to the arena that I
mbn> will be much more mindful of in the future.  
mbn> I have a 10 year old (yes, that was ten) that was recently
mbn> diagnosed with RSD in her left leg (or CRPS type 1 in the new
mbn> vernacular).  On September 24th she was doing tae kwon do,
mbn> running, playing and looking forward to being in a wedding on
mbn> Nov. 4.  By September 28th, she was non-ambulatory using crutches
mbn> exclusively and in unremitting, excruciating pain.  She has had a
mbn> lumbar sympathetic block under anesthesia and is undergoing
mbn> therapy with two mindsets--let the pain get better and MOSTLY, I
mbn> hope I can walk down the aisle at Sarah's wedding without
mbn> crutches.  We are nearing that date and not sure she is going to
mbn> reach that goal.  I think the mindset is somewhere between the
mbn> two ideas presented—they are not exclusive of each other, rather
mbn> each implies the other.  Yes, our primary focus is reducing the
mbn> pain, but it is SO she can WALK.   I believe the goals for
mbn> recovery are closer to your perspective, Ron, but her primary
mbn> concern above all is to walk down that aisle.  You are right in
mbn> that she sees recovery as the gateway to return to function. It
mbn> has been very interesting being on the other side.  We are
mbn> working with a physical therapist that, while he asked what her
mbn> goals were, he doesnÂ’t focus on them in a truly discernible
mbn> manner.  I believe an OT would look more closely at the
mbn> functional goals and explicitly apply them in the clinic whereas,
mbn> her therapy has been much more implicit.  

mbn> Anyway, those are my thoughts.

mbn> Judy Hamby




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