Hi Amy, Welcome to our community! I am sorry to hear that you have gone through so much. Are you on complete replacement hormones, now? For those of you who may not know, a craniopharyngioma is a rare tumor on the hypothalmus or pituitary stalk. It usually also invades the brain. Usually, craniotomies are required to remove the mass. A craniopharyngioma is a different tumor than a pituitary adenoma, but with pan-hypopituitarism, it can cause the same, or very similar symptoms. Cranios are usually much more symptomatic. I have friends with a lil girl who had a craniopharyngioma, she has had 5 craniotomies in the past three years. She was very young when she was diagnosed. She lost much of her vision. Her tumor and cysts were 1/3 the size of her brain. She has endured so much. She also lost her pit gland and much of her hypothalmus, she is pan-hypo-pit and has vision and hearing loss. She is doing well, considering. She is only 5 years old, now. So young to have gone through so much! We are blessed that she is doing well and living and enjoying the lil things a lil girl enjoys. She had many more symptoms...a craniopharyngioma acts more like a brain tumor-it can cause seizures, severe headaches, problems with speech, hearing, vision, and movement...she had all those symptoms and more. It is good to meet you, Amy. There are many patients on here that can relate to being pan-hypopit, but not many have had craniotomies for craniopharyngiomas. There is a list that you may be interested in for craniopharyngioma patients and caregivers, I belong to it to learn more information to help my friends and their lil girl. Craniopharyngioma Support Group: It's a great group, they are very informative and supportive. I know that you have already gone through it all...but you may find other patients that you can relate to. Just write David and let him know who you are and why you would like to join and you'll receive the list's emails immediately. You're in my prayers. Please ask any questions that you may have. Take care. Meri | 