Re: Tilt Table Test

[Pituitary Chat]

New Message on Pituitary Chat Tilt Table Test Reply   Recommend Message 5 in Discussion From: LoSNaz I think you are right about the cortisol levels- I've talked with my endo about going on long term prednisone- but she is reluctant- however- she isn't the one that feels like a 90 year old in a 40 yr old body all the time- You're right- sleep does nothing to alleviate the exhaustion/weakness- infact, when I wake in the morning- I feel really bad & unrested- I'll snap out of it for periods during the day- but mostly it is constant- Stress seems to bring on these 'spells' too I noticed   I know one thing- I just can't go the rewst of my life feeling like this- it's ruined my life basically & doctors just don't understand that and are reluctant to use the steroids- I have the hardest time convincing htem that I need it because they check my cortisol levels & it never shows anythign wrong. I ask them if I don't need it, then why do I not have these spells on the prednisone? Their answer is that it's a steroid & of course I'll feel better? What kind of answer is that? IF I feel better- then it would seem I need it, no?   I need a patient advocate I thinlk- I just can't seem to get it through to them that I feel aweful- the problem is, that we don't 'look sick' on the outside. That's the frustrating part. Docs see us and think we're just complaining of beign a 'bit run down' - I can't make em understand it's constant- like having a constant flu- no let up- weak muscles that hurt from mundane thigns like towelling my hair off- that aint normal-   Anyways- sorry for rant- Sorry you'r going through so much- View other groups in this category. Also on MSN: Start Chatting | Listen to Music | House & Home | Try Online Dating | Daily Horoscopes To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat.