Hi PT, I am also sorry to hear that you are still undiagnosed. I will be praying that your doctors will be able to diagnose you soon, so you can be treated. A 15% error possibility is pretty high for a genetic test, your results should not be considered conclusive. Were you in a study at Yale? I was told in 2003 when I first started testing for M.E.N. that only the NIH does the genetic testing and that it costs thousands out-of-pocket. My neuroendo told me that he had only ordered the test 12 times and of those 12 times, only 3 had the gene, though all had the symptoms and diseases associated with M.E.N. I think M.E.N. is a very difficult disease to diagnose, it is very gradual. I was told that if I had any known family history of it, he would diagnose me with it. Since I don't have any known family history, I continue to test for it. I am sorry to hear about the side-affects of the sandostatin, I hope they go away, soon. How is your IGF-1 level? Allen, I was the one who gave the caution and it was meant for everyone. I have dealt with exactly what I cautioned about for several years. I have been there and I don't want anyone else to go through what I have gone through. I know "God, love, and truth are enduring and will stand the test of time," but not everyone appreciates truth, unfortunately. I just wanted everyone to know that you must be cautious in what you write about your opinions/experiences. Take care. Meri |
