----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: tumor-boy Message 2 in Discussion I have a prolactin-secreating pituitary tumor, but have not had surgery. When I was diagnosed, the tumor was quite large - - 2.5 to 3 inches, and my prolactin was quite high - - nearly 16,000. I have taken Permax/Dostinex for almost 13 years. Now, according to the doctors (Kal Post, Mt. Sinai, NYC) and the MRIs, there is "nothing there anymore." Beautiful news. But my prolactin is still 300 - 350 (normal range is less than 50 - I am a male), and I still take heavy Dostinex, and I have been told my prolactin level will likely never be "normal" and that I am a Dostinex junkie for life. Given the alternatives, I am completely fine with that, but I, like your husband, need to keep an eye on the issues that may present themselves from an elevated prolactin level: decrease in bone density; depressed testosterone levels (and everything that comes with that); and general hormonal imbalance issues. From: darlinge [mailto:[EMAIL PROTECTED] Sent: Wednesday, February 28, 2007 10:36 AM To: Pituitary Chat Subject: Question New Message on Pituitary Chat Question Reply Reply to Sender Recommend Message 1 in Discussion From: darlinge My husband was diagnosed with prolactinoma about 1 year ago. He went through a nasel surgery and a cranitomy. He has been on dostinex since the discovery of the tumor. He takes it everyday with no side affects. He has also went though 8 weeks of radiation since the surgeries help but were not able to help with his prolactin levels. He still has very high levels. I was wondering if anyone has been through all this and still struggling to keep the prolactin levels down. I have to tried to research this but can't find nothing. The doctors don't say much. All I know is radiation is not an option any longer and surgery for him is very risky, especially since he had a stroke during the last one among many other complications. Does anyone have any thoughts or advise? Please let me know, thanks. View other groups in this category. CONFIDENTIALITY NOTICE: This e-mail transmission, and any documents, files or previous e-mail messages attached to it may contain confidential information that is legally privileged. If you are not the intended recipient, or a person responsible for delivering it to the intended recipient, you are hereby notified that any disclosure, copying, distribution or use of any of the information contained in or attached to this transmission is STRICTLY PROHIBITED. If you have received this transmission in error, please immediately notify the sender. Please destroy the original transmission and its attachments without reading or saving in any manner. Thank you, Loeb & Loeb LLP. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
