----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: Indygirl_panhypopit Message 5 in Discussion Jamiesmom, I can only imagine the frustration and agony of watching your daughters health decline despite you doing all the right things, seeing the docs, testing, etc. And there's NOTHING worse than being in such a sick and vunerable position, only to have a health care worker tell you, you need to exercise more, go on a diet.....and then to have the people you love the most and who should be in your corner not only not supporting you, but tearing you down!! She is blessed to have you as a mother and you're right about knowing there's something really wrong and she should not give up. You're right about the MRI, you should always have a pituitary surgeon review it and not just take the radiologists opinion......they miss many things and the pituitary is so small that only an experienced surgeon should be making the final call. There is a pit surgeon I highly recommend and he will review her MRI at no charge. His name is Dr Ian McCutheon and he's at MD Anderson in Houstin, Texas. She obviously has a complicated pituitary problem. She has to be GH deficient as she did not grow to over 5' which is the guideline they go by. It sounds like she's got several things going on as she appears to have many symptoms of cushings. I highly recommend Dr Ted Friedman in Los Angeles. I know that's quit a distance, but he's really an outstanding diagnostician for complicated endo problems. I think that is really the most difficult part.....getting the RIGHT diagnosis. It seems to be easier to get the treatment once someone has ordered the right tests and can prove biochemically what is going on. Please feel free to PM if you have any questions as I'm one of his patients and can tell you how the intial "work-up" is like, etc. :) Gina ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
