----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: MinnieChat Message 8 in Discussion I know how you feel. I am on medication for Cushings. In my case, I decided to stick with the medication until it plays out, or until one of the new drugs gets out of phase 2 clinical trials. Of course, my endo and I haven't talked since I saw the surgeon last July (who saw residual tumor) but... I am hopeful, that some new medications will be available within the next 3-5 years. I too have seen some impressive studies on radiosurgery techniques. I've seen some new data that actually shows some types of radiosurgery providing a better outcome than a second surgery. Multiple surgeries can cause surgical induced hypopitutarism, and cavernous sinus surgery is risky to boot. A friend of mine had radiation to residual tumor in her cavernous sinus (for Cushings). The technique included transposition. She is not hypopituitary at all, her acth levels and cortisol levels normalized, and she had a second child this last year. Needless to say, I am impressed. As all things... the outcome of the radiosurgery is completely dependent on the expertise of the center. I don't think there is ever a 'normal' like it used to be. I think you can achieve different levels of disease control and do your best to adapt an attitude that you are managing a chronic illness, and not let it manage you. I encourage you to write out the positives and negatives of each approach and discuss them with your doctor, and other people in your life you are close with. You know the risks with acromegaly, and you must balance the risks with a concise disease management approach. This approach has to be tailored to your particular situation. As with all things, we hope for the best. Minnie ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
