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New Message on Pituitary Chat
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From: ChiaChoctaw
Message 2 in Discussion
I think you should look at the rate of success w/
surgery. They really tried to scare us when my husband had his tumor and
unable at the time to find any info on pit. tumors, we did what they said.
When residual tumor was left behind and secreted just as much prolactin as the
original tumor, we were "then" told, that you can almost never get it all and
that radiation after surgery and meds were our next steps. If even a few
cells are left behind, you can have growth of the tumor and side effects, not
to
mention that they told us afterward that even w/ the camera, it is virtually
impossible to tell the tumor from the pit. gland itself and that they don't
want
to harm the pit gland or there will be replacement meds forever! So, my
suggestion is to ask a/b what chances of no tumor left behind and if they tell
you that you probably will have tumor left and be on meds anyway...I would find
out why they want to do surgery and risk the trauma etc. Maybe it is in a
dangerous area? Maybe has a cystic component??? Ask lots of
questions and remember that surgeons don't get paid unless people have
surgery.
----- Original Message -----
From:
ksherman433
To: Pituitary Chat
Sent: Thursday, July 10, 2008 6:10
PM
Subject: Surgery vs Medicine
New Message on Pituitary
Chat
Surgery
vs Medicine
Reply
Reply to Sender Recommend
Message 1 in
Discussion
From: ksherman433
I don't know what to do--my PCP thinks I should have my
prolactinoma removed, but my endo says "you don't want people
messing in your brain" and wants me to stick with the medicine.
I've only been on it for a few weeks and it feels like an
eternity--I feel like a crazy person sometimes. I get confused,
forgetful, dizzy as all get out. I suspect people I work with
(most don't know about the tumor) think I can't do my job. On
one hand if the cabergoline I'm on works well and gets rid of
the tumor, then I suppose I can handle being miserable for a
few
months or so. On the other hand, the idea of getting surgery
and
having the whole thing gone and done with sounds pretty
attractive about now. I understand there are risks, but they
seem pretty rare. I just don't know what to do at this
point.
For those of you who have had surgery, what finally helped
you make the decision? I've got a 6mm tumor, so it's not huge
but it's not exactly nothing either....my husband hasn't been
too helpful in helping me make a decision, and I would like to
hear about it from someone who KNOWS WHAT I'M TALKING ABOUT,
someone who knows what I'm
feeling.
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