|
Gabe’s average diastolic is in the
70s. So when he moves into 90-100, it’s a jump. He had to establish norms
of highs and lows before he could set up a protocol. Before PRN meds were
ordered by a doc. He only takes something if it won’t come down after
about 15-30 minutes- Depending on how high and how fast it goes up. If Gabe’s
goes up then comes down immediately he doesn’t take anything. Lana Gabe’s mom From: Eric Olson [mailto:[EMAIL PROTECTED] My diastolic is above 110 just about every time I go
from chair to bed. It usually comes down without doing anything. I
never take anything. Maybe I should look into taking something.
Trouble is, when I'm in the chair, my pressure is really low. From: Lana Baugh [mailto:[EMAIL PROTECTED]]
Brien, Gabe carries procardia. It is a gel
capsule. You snip or bite off the tip and squeeze it under your tongue and
swallow the remaining pill. If the high BP doesn’t resolve in 15 minutes,
repeat. One more repeat if it doesn’t resolve in 15 minutes. If it doesn’t
resolve at that point call the rehab doc and 911. The protocol was worked up
with a doc. AD is dangerous because if it doesn’t resolve quickly the BP
can climb fast. We have a 45 minute window for the aides. They need to cath,
check bowels, check for any other irritation- they usually find the problem in
the first 10 minutes. If not they start the procardia. We start action when the
diastolic is 90. if it reaches 110 despite all the treatment listed above
that’s when 911 is called and the rehab doc. Our original plan idea came
from the PVA SCI book. If your doc will not prescribe you should
ask for a plan. If he can’t give you one with medication, get a new doc.
I know I’m pushy. I hope I do not offend. It just pisses me off when I
hear things like what you said. You deserve better. Lana Gabe’s mom 10 yrs post C 4-5 From: Brien Stocker [mailto:[EMAIL PROTECTED]]
Lana Baugh wrote: Fortunately, most of Gabe’s
specialists take it seriously. It’s the reg MDs and the nurses that
don’t seem to have a clue. He carries an emergency sheet around in his
back pack. I have attached a 4 page document on AD that his aides or docs can
access in an emergency. I copied it out of the PVA book on SCI. The problem is when you really need them
to understand or know about it - the most important times – they know
zip. Gabe suffers, risks serious damage- possibly death and we look into a
blank face. Now we try to go through the Rehab doc as
much as possible. He says the other docs do not have a clue. They want us to
call them when AD occurs regardless of the cause and they call the other doc. When Gabe is in the hospital and everyone
pales when we try and discuss that the foley kink and high BP are related I want
to pull my hair out. One nurse helped out a couple of years ago. She pulled up
the info on AD, printed it out and put it on the front of Gabe’s chart.
Everyone had to see it. Still I can’t always control what’s on the
front of a chart. I think everyone should
list their occupation as attorney. Maybe
you’re just currently unemployed. My husband is an attorney and several
docs somehow got the idea I was. I never said I was. I haven’t said I am.
Who knows what could lurk in the mind of a women who is an attorney J and mighty pissed. Best wishes on dealing with AD. Lana Gabe’s mom 10 yrs post C 4-5 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]] Error! Cannot read or
display file.Error! Cannot read or display file. AD is a life-threatening problem. It can raise
your blood pressure to where you can have severe strokes and heart damage. Jim There is a short term fast acting pill too reduce
blood pressure. I asked my primary doc to give me some and he said
NO. Does anybody carry that med with them when they are prone to
AD. When I have AD, I am afraid I am going to have a stroke and
would like to lower my BP. Any Ideas, folks? |
- Re: FW: [QUAD-L] About A.D. = Autonomic Dysflexia Eric Olson
- RE: FW: [QUAD-L] About A.D. = Autonomic Dysflexia Lana Baugh
