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My son, Gabe has spasms. I’m not
sure if that is the same. We have dealt with an issue much like this. It is ongoing
so we have to stay on top of it. If I were you I’d make sure he is seeing
a rehab doc that can address rehab/pain. I would get a real good behaviorist
and PT working on this. If it’s physical pain, he needs to find some
relief. If it’s emotional, he needs to find an out let. If it is “behavior”
as the aides say, then they and the environment that he is in has created it.
It is easy to create a negative behavior then blame it on the person who is
suffering. I would suggest you find out what it is, how to treat it, then train
the aides. So it doesn’t happen again after you find out I would include
it as part of training. We have a packet we give all new comers and there are
multiple sheets on this issue. I wish you the best of luck. It is really hard
to see your child suffer and have little hope and then have people blame
him/her. I used to go break things where people couldn’t hear. My therapist
and husband felt that was good therapy for me. Is that appropriate? When the
aides told me Gabe was spoiled at first I bought it. Then after talking to Gabe
and observing I say “so what he deserves it!” Lets just help him
find other things he can do when he can’t talk to us about pain or
feelings. Let me know and I can send the handouts. We are fortunate that a good
friend is a behaviorist and an advocate for rights. Gabe can talk to us.
However, there are times when he has medical problems that keep him from
talking. Best of luck, Lana Gabe’s mom C4-5 10 years post From:
[EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Can someone explain to me what happens when my son
goes into TONE or Extension. It's something he can't help says his Dr since he
is mute and a quad since his Brainstem stroke. Dr says he has 3 choices, laugh,
cry or go into extension when he gets frustrated.She says that too many
electrical impulses go to his brain at the same time and it causes it. However
some of his caregivers says he is spoiled and throwing a temper tantrum. There
was a site where I could get info about this sort of thing but I forgot the
name of it. Help please. |
