Re: [QUAD-L] syrinx pain

[DAANOO]

Hi Amy, So sorry if you have syrinx and anyone else on the list suffering from this, they thought I had won a number of years ago, and I was monitored with the number of MRIs, until a neurologist determined it to be scarring instead of a syrinx.  I went to a syrinx seminar, that was in Kansas City, and it was really interesting.  They also have support groups for persons in the area. I remember meeting a few guys at Craig Hospital, that had been superquads before their syrinx. There is a newsletter that comes out about the association, they tried to raise money for research.   In a message dated 4/25/2006 5:11:06 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: It really does suck to have a syrinx. Its the biggest no win situation Ive ever been in besides spinal injury itself. I ask myself why suffer everyday if I can get it drained or shunted? Then the docs tell you about the major risks and people that have had syrinx operations tell you the horror stories they have had. So I guess all a guy can do is take the pain until its unbearable, then roll the dice on the surgery.. How does one discover they have a syrinx before seeing a doctor or mri? I suffer from pain everyday and have been on sooo many drugs to no avail. Diane