Stacy,
You always amaze me how you keep fighting back. i know how
desperate you are feeling. I keep reading and looking for anything that could
be of any help. I'm getting to that poiunt with the pain. I'm trying mega
vitamin c. Sounds stupid but as you can tell, I'll try anything. I'm up to 5
grams a day and my only worry is a urine leak. My pee could eat through steel
let alone skin. I use aloe all around that area just in case. I don't know if
it would help but It feels so good when my ade rubs it in. *wink*. Wish I
could feel it.
You can get your chair modified so U can almost lay on your
side and go. Looks strange, But who cares. I use to smoke pot for the pain. I
had to stop because my heart is screwing up. Besides, It made me sleep too
much. I like using my mind and it keeps me from thinking too much about pain
and spasms and folks can't tell if I'm thinking or having a mild siezure.
lol
When you talk to the doctors remember, be nice but be firm.
They are practicing medicine and no matter how little they think of your life,
they took an oath. You aren't their for experiments. You expect them to use
all their talents and if they need more info, ASK!
PLEASE KEEP US INFORMED STACY.
PEACE & LOVE
john
In a message dated 6/24/2006 10:03:09 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
I honestly would get up if it didn't hurt so
damn bad. All I can do is just cry sometimes because pain medicine
doesn’t work for it. The only ting that worked was when I had daludid
sp? through IV. I have it by pill now and it doesn't even touch the
pain. I don't know if it can be surgically fixed and there are only
two plastic surgeons that do this type of surgery in the area. Hopkins
is a few hours away but I don't know if I can sit on it long enough to get
there truthfully. I'm going to give this a lil bit of time and see if
there are any signs of healing. I also have a list of questions
growing for the doctor so we'll have to see what happens.
Stacy