Hi Merrill,

It sounds like you had the perfect set-up 3 times in a row! And your asking us 
how you should do it?!? I should be so lucky. Why did you leave what sounds 
like such perfect set-ups? 

Dan


>On 2/20/07, Merrill Burghardt <<mailto:[EMAIL PROTECTED]> [EMAIL PROTECTED]> 
>wrote:
>
>HOW DO YOU DO IT?
>
> 
>
>If you do not care to read this in complete, can you share how as a fellow 
>quadriplegic you live?
>
> 
>
>To learn what is possible for myself, I watch and speak to as many 
>quadriplegics how they live, particularly on a low budget paying to get in and 
>out of bed at that.  After rehab when I was first injured, the hospital nor I 
>knew what to do with me.  My family lived 2,000 miles away in Milwaukee.  
>Moving from California was not at present an option, nor did I want at that 
>time be the prodigal son I was, to move in this way.  Fortunate for me, the 
>SCI psychologist refused to allow me be discharged to a nursing home.  I am 
>forever thankful to this woman to have given me a standard and the guts to be 
>creative in how I live.  I know nursing facilities are necessary to perhaps 
>most people at one time or another, so any person at home in such a facility I 
>mean no disrespect.  Contrary, what you have to do, or found, ya have to do it.
>
> 
>
>My solution was to run an ad in the domestic colomn in a newspaper in an area 
>I desired to live.  The ad read something like, " 38 year old quadriplegic 
>looking to live with caregiver.  Offering (at that time $1,300.)"  A woman 
>with two old enough to work daughters, CNAs themselves were my best choice.  
>As a new C/5 injury I pretty much broke myself in with my new found injury 
>survival ways here.  This was working out pretty well.
>
> 
>
>A cousin I had never met started calling me insisting for me to move in with 
>her in a house she recently bought.  After two months of persuasiveness, I 
>felt if she wanted me bad enough she could have me.  So not involving her in 
>my care outside of meals, could you, would yours, and the sort, I pretty well 
>cut my teeth on hiring, working with, training, and firing attendants.
>
> 
>
>After ten years it was time to move on.  Again I ran my ad for someone to 
>adopt me so to speak.  Luck again, I moved in with a woman who recently gave 
>birth, and not wanting to return to work was looking for someone just like me. 
> Now after seven years I need to move on again.  Long story short, how are 
>other's living?  Please share your stories with me direct, or to the list.  I 
>am so interested how others have met the challenge, particularly those on 
>their own without money.  I guess I am looking for encouragement and 
>creativity. Thank you.
>
> 
>
>Merrill
>
><mailto:[EMAIL PROTECTED]>[EMAIL PROTECTED] 

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