I don't remember his name, maybe he posted before I heard about the quadlist. Does anybody know what caused his death, such as respiratory or any particular quadriplegic problem. Who remembers him? Lori, mentioned that he was four years older than her , that would not be very old. I'm sure some people, read but don't post that often. I have always been interested in the longevity of persons with our disability.. I think the bottom line is the care we receive and how conscious our caregivers are of problems that are developing that we are not able to see and feel. So many people that apply for self-directed care, have no experience with quadriplegics. The pay rate is not usually equal, what they can get it many other places. I know that many things cannot be avoided, just because of the nature of our disability. There have been times that I was septic and not really able to realize what was going on. I was chewing my pills instead of the swallowing. My mother came by and demanded that 911 be called. I was in a coma for 13 days. I always hate going to the hospital, as they often don't know how to do, things that I need or have the staff needed. It is usually an ordeal, just going through ER and waiting so long. I don't remember a lot about that hospital that I usually go to . The last day I was moved out of ICU to a regular room. The aide came in to feed me, he gave me an excuse of something he had to do and never came back. He seemed somewhat flaky, and I was wondering, if you would be able to do by care. I remember they had problems finding another person to finish the day. It was a really weird experience. It wasn't the regular hospital, but a new hospital that wasn't very full. It seemed so strange to have so many rooms empty.
I remember a quadriplegic coming to visit me what I was in the hospital, and they were talking about trying to get me a ventilator and I was dead set against this. He was a peer counselor from the Whole Person, an independent living Center. Not many years later, he died because his ventilator popped off. He was alone for long amounts of time at night, because of the limited care , he could get from the state of Missouri. He refused to live in a nursing home. The system doesn't often provide what we need. That's why I think the quadlist is so important as we can ask questions to persons that may have already experienced what we are going through and can give great ideas for us to try. I'm certainly glad my attendant found it, when she was looking around the Internet under quadriplegics. I was new to the Internet and was not familiar with surfing the web . **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489
