I have a question for the list members. How important do you suppose it is for any one of us to have an accurate diagnosis?
In my case I do not have a diagnosis, other than I have had injury to my t-1 and t-2 spinal cord. The problem I seem to be running into here in Illinois is having to prove that I am disabled to keep my medical insurance in place. I originally started out with a diagnosis of slowly progressive ALS, and a few years later it was found that I had a crushed spinal cord caused by a tumor that left me a quad. They removed the tumor and a year later I could walk again, but just a little bit. Now they tell me I am no longer a quad. When asked what I am I'm told they don't know, even though I fight to get through the day. I never did gain the use of my hands again. I told my wife that if I have a definitive diagnosis, I would stand a better chance of keeping my medical insurance. By some strange chance, has anyone else on the list here ever experienced this type of situation. Bill at Big River
