I won't say much about this because I think it is up to individuals to decide to take part in surveys. If I feel a company or corporation is asking, yes, I want compensation. A lot of us are experts but I haven't met many shrinks with much real data to backup their judgment. We are a very small minority with a high incidence of mental and emotional problems. I'm going to do this survey because I feel I should. I completely respect Lori's opinion. many of the surveys directed at us are either pointless or fodder for a debate about our right to live. Many times I find myself depressed doing surveys. I hope this survey isn't going to be used by the debate society.
john ----- Original Message ---- From: Lori Michaelson <[EMAIL PROTECTED]> To: [EMAIL PROTECTED]; [email protected] Sent: Monday, August 4, 2008 8:11:16 PM Subject: Re: [QUAD-L] your help with survey research on chronic illnesses and disabil... Over the last 28 years as a quad I have seen/been sent more surveys and questionnaires both by individuals and by organizations. And for a while, played the game. Even with the most obtuse questions that would never benefit anyone. In most cases, I feel like we are just another "target group" to use for someone to get kudos for this or grados for that. I have filled out surveys and questionnaires from the most upstanding disability organizations but they are the same old blah, generic questions over and over and over and over again. Ad nauseum. When all is said and done -- I have never seen it benefit the spinal cord injured population. Lori On Mon, Aug 4, 2008 at 2:33 PM, <[EMAIL PROTECTED]> wrote: With All Due Respect To You And Your Project....... Is someone posting on PSU's board that there are a bunch of Quads that are ripe for any Master's Study Program? Another national college study paid $20 dollars to each candidate who completed the 10-15 minute online research study. We had another person that was looking for useable human organs and decided to try this list because of all the Quads.......... A $25 dollar raffle is like a dangling carrot that might be over ripe to the winner. I don't know.... maybe its just me. Good Luck Doctor Candidate! W In a message dated 8/4/2008 4:25:09 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Hi everyone, Greetings! I am a student in counseling and rehabilitation currently conducting research on chronic illnesses and disabilities and I need your help! There is very little current research on the psychosocial aspects of chronic illnesses and disabilities. My survey has been approved by the Office for Research Protections and Institutional Review Board (IRB# 27939) at my university- Feel free to contact them to find out if my research is legit (814)-865-1775 or e-mail [EMAIL PROTECTED] My survey is completely voluntary and anonymous. It does ask for an e-mail address at the end only if you choose to enter into a raffle to win a $25 gift certificate from Amazon.com To comply with the Office for Research Protections I need to give you the spiel below. Within the letter below there is a web link directly you straight to my survey. Thank you so much in advance for your help and participation! Best wishes Jenny Dear Prospective Participant, You are cordially invited to participate in a research study examining attitudes and feelings regarding yourself and disability-related experiences. This research study is being conducted by me as part of my dissertation at The Pennsylvania State University. Your participation in this research study will help counseling professionals and researchers understand various experiences of people with disabilities. You may also benefit from learning more about yourself and your experiences in the process of responding to survey questions in this research study. Please consider participating if you: 1) are 18 years or older AND 2) have acquired a condition that is considered to be a chronic illness or disability. If you meet the two criteria listed above, you are eligible to participate in this research study. They survey you will be asked to complete contains 6 questionnaires which will take approximately 20-25 minutes. Your participation is voluntary and you may discontinue it at any time. No identifying information is requested. The information collected and the results of this research study will be used for research purposes only. For every survey that is completed, I will donate $1.00 to the Make-A-Wish Foundation. In addition, you may enter a raffle drawing to win a $25 gift certificate from Amazon.com. If you wish to participate in this research study, please click on the following link: http://www.psychdata.com/s.asp?SID=124268 which will automatically take you to the website containing the survey. At the end of the survey, you will be asked to enter your e-mail address if you choose to enter the raffle. Your e-mail address will not be linked to your responses on the questionnaires. Thank you for considering to participate in this research study! Sincerely, Jenny C.Chang, M.S. Doctoral Candidate Department of Counselor Education, Counseling Psychology, and Rehabilitation Services The Pennsylvania State Univesity
