Hi Jenny,
 
I'm better butter, not bitter.  Just ask those who know me.  I do  share 
loads of information with professionals at those cheese and wine (whine)  get 
together's and enjoy the exchange of knowledge and fellowship.
Have you noticed our banter has created quite a stir among those who may or  
may not choose to involve
themselves in your study or research program.  And that is good.   That is 
what it was meant to do.
 
Cheese and Whine Anyone ???     (lol)
Best Wishes
 
 
In a message dated 8/5/2008 12:54:58 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

Oh the  people who might be bitter or angry are not unwise or lack  knowledge!
Having those feelings also don't necessarily translate into a  lack of
adjustment. When they choose to channel those feelings into  something else is
when great changes take place whether personally or on a  societal level. I 
had
worked in the field of rehab for many years prior to  coming to this program,
and as part of training in this program I have also  worked with many with
disabilities. I was paid very little but I don't  think that the consumers I 
saw
who had very little resources were not worth  seeing. But again, I get your
point and I've never thought that your  knowledge is worth nothing. But just
because I am unable to pay doesn't  mean that my research is any less 
important
than the ones out there that  pay. As you may know, there is no way anyone can
know how research studies  are used to benefit anyone unless you know the
results and they are  published or discussed in media. Unfortunately the 
results
of most  psychosocial research, unlike medical research, are not published for
the  public to consume.

Best,
Jenny

On Tue, Aug  5, 2008  01:23 PM [EMAIL PROTECTED] wrote:
>
>Don't confuse, being wise  and having knowledge, as bitterness, anger or  
>resentment against  those trying to help us.  As I mentioned earlier to  
you.   
>After you graduate and enter the professional job market you  will  value, 
the 
>paying customer vs those who want something for  nothing.  Most  of those on
this 
>list are well adjusted  and have accepted themselves for who  they are.... 
or I 
>hope they  are.  Combined, our knowledge is worth more  than oil from Saudi  
>Land, yet you don't see them giving it away as it just might   help someone.
>lol.
> 
>Best Wishes and don't work for  cheap..... you earned it.
>W
> 
> 
>In a message dated  8/5/2008 12:16:58 P.M. Central Daylight Time,  
>[EMAIL PROTECTED]  writes:
>
>Hi  W,
>
>I too, do see you point. I  have appreciated these exchanges with you  and 
the
>points raised  by Lori. It is still disheartening to feel your  bitterness,  
and
>perhaps anger and resentment as well toward the people who   are supposed to 
>help
>you. I get the disappointment at  establishments.  Getting through this 
program
>itself requires me  to jump through many  unnecessary hoops. There is a lot 
of  
>bs
>going on everywhere though I don't  think research is  one of them. I think 
it 
>is
>possible to pick and choose   the research you want to participate. Some of 
>them
>are  certainly  time-consuming while others only take a few minutes. Just so 
 
>you
>know I  don't get a grade for doing this study. I'm at  the end of my 
program,
>and  without doing this I cannot graduate.  Contrary to other students who  
may
>have access to more financial  resources, I need to rely on the kindness  of
>others who are  willing to help. You can say that I still have something  to 
 
>gain
>from this and that would be true. However, my field is not  a  money-making
>business when I do graduate. There are definitely  those who  choose to work 
>with
>rich clients or consumers  who can afford to pay, but  there are also many 
who
>choose to work  with consumers on a sliding scale  fee. I see a  therapist
>regularly who charges me a sliding scale fee and saw  me  for free during the
>time when I couldn't afford to pay anything but  food  and rent. I don't 
think
>the service she provides is any less  than someone  else who would have 
charged
>me more than $50 a  session. I guess my point is  that please think about 
who  
>you
>are helping to send out there in the field  when you  make your decisions 
about
>which surveys or research to   participate. I certainly hope that the people 
>who
>do fill out  my survey are  being honest about their responses or the whole  
>point
>of research is lost  and benefits no one.  
>
>No worries. I will remember everyone here and  have  always remembered those 
>with
>whom I come in contact in my  journey. I  hope also that you will come across
>helping  professionals in your path who  are more concerned with helping 
than  
>how
>much money they are getting out of  meeting you. Take  care and best wishes,
>Jenny
>
>On Tue, Aug  5,   2008 05:02 AM [EMAIL PROTECTED] wrote:
>>
>>Hi  Jenny
>>  
>>I see your point and hope that you will  agree that some many of the  
members 
> 
>>here are  
>>drenched in surveys and researchers,  trying to take up our  valuable time, 
 
>>for their benefit, er, oops   grade.
>>You may not remember, but several of the members here have  been  thru the  
>>Master's and  Doctorate
>>programs.
>>Just  last week I called a  doctor and wanted to take with them and was 
told  
>  
>>that I needed an appointment and it would costs $55 dollars.   I  advised 
the 
> 
>>office that my visit would take that  long and  perhaps save humanity as we 
 
>know
>
>>it...   Again, I was  told to  make an appointment and $55  dollars.
>>  
>>Nothing  personal, but if you want tangible credibility, you  pay for  it.  
>If  
>>you are looking for a  grade, take what you get.... and make the   most of 
it.
>>  
>>Good Luck in School
>>And remember all of us  in  your journey
>> 
>>Best Wishes
>>W
>>  
>>In a  message dated 8/4/2008 11:22:54 P.M. Central Daylight  Time,   
>>[EMAIL PROTECTED]  writes:
>>
>>I  appreciate your  concerns. If I  could pay everyone who participates, I  
  
>>would.
>>This study is not funded by psu or anyone but  myself.  The research  that 
you
>>participated previously  were most likely  funded by people who can  afford 
>to  
>>pay
>>out of their own  pockets or by large  organizations. I hope  that you 
don't   
>>think
>>that I don't think your knowledge is worth  being  paid.  I certainly don't 
>>think
>>of this  as a game to be  played. There are  definitely limitations to  
>research,
>>and  sometimes the benefits don't  reveal  themselves until much later  when
>>research has  accumulated. One research  study only finds out  certain 
things  
>>and
>>not everything, which is why you  may   experience the fact that some 
>questions
>>are repeated or  seem  familiar.  A study can be different from another one 
  
>>based
>>on only one variable, and  this could mean  that  these two studies have a 
>lot  
>>of
>>questions in common.  But  only by making  certain variables constant can
>>researchers find out   what  factor is most important. Besides the lack  of
>>financial  funding, the other  reason for not paying  every participant is 
>that  
>>it
>>contributes  a factor to  the research that has nothing  to do with the  
>research
>>itself. It could  potentially include  only  the participants who want to 
be 
>>paid
>>and  not  others who  participate for other reasons. But like I said, if  I 
>could
>>pay I   would.  
>>
>>Also, you may not think your participation will  benefit  a  certain 
>population,
>>by your knowledge  adds to the existing  knowledge base.  I also believe  
that
>>people's experiences are  individual, which is  actually  what I'm trying 
to 
>>find
>>out   through my research. This knowledge could help  shape the method   
>>counselors
>>and therapists work with clients or  consumers.   I'm not going to be a 
future
>>researcher, but  a rehab counselor and  I  believe in the benefits of  this
>>project. I respect your  opinions and your  cynicism  and you are free to 
not
>>participate,  but please do not  dissuade  others who may be interested  in
>>participating  or believe that there are  benefits to research.  Thank  you!
>>
>>Jenny    
>>
>>On  Mon,   Aug  4, 2008 08:15 PM [EMAIL PROTECTED]   wrote:
>>>
>>>Amen  Lori!
>>>Most  Master and  Doctor's candidates don't realize that most on  the  
list   
>>have 
>>>been thru the very same  programs those who   question are just embarking  
 
>>>on....  If they wish to  play  with our  knowledge, let them pay and pay   
 
>>dearly.
>>
>>>Nothing  personal, but a  person has to  survive on their  knowledge.
>>>   
>>>Best  Wishes
>>>W
>>>  
>>> 
>>>In a message  dated  8/4/2008  7:11:30 P.M. Central Daylight Time,     
>>>[EMAIL PROTECTED]  writes:
>>>
>>>  
>>>Over the  last  28 years as a quad I have seen/been sent more  surveys   
and  
>>>questionnaires both by individuals and by   organizations.  And for  a   
>while,
>>played  
>>>the game.  Even  with the most obtuse  questions that  would  never 
benefit  
>>>anyone.
>>> 
>>>In   most  cases, I feel like we are just another "target group" to use  
for  
>  
>>>someone to get kudos for this or grados  for  that.  I have filled  out   
>>surveys
>>and  
>>>questionnaires from  the most upstanding  disability  organizations  but  
>they 
>>>are the same old blah, generic    questions over and over and over  and 
over
>>again.   
>>>  Ad  nauseum.
>>> 
>>>When  all is said  and done -- I have never seen it  benefit the spinal  
cord 
>  
>>>injured population.
>>>   
>>>Lori    
>>>
>>>
>>>On Mon, Aug 4, 2008 at 2:33  PM,   <[EMAIL PROTECTED]  
>>>(mailto:[EMAIL PROTECTED]) >    wrote:
>>>
>>>
>>>With All Due Respect To  You And  Your  Project.......
>>>Is someone posting on  PSU's board that  there are a bunch  of Quads   that
>>>are ripe for any  Master's Study  Program?
>>>  
>>>Another national college   study paid $20 dollars to each  candidate
>>>who completed  the  10-15 minute online research study.
>>>   
>>>We had  another person that was looking for useable  human  organs
>>>and  decided to try this list because  of all the  Quads..........
>>>  
>>>A $25  dollar raffle is like a dangling carrot  that might be  over  ripe  
to 
>>the 
>>>winner.
>>>  
>>>I  don't  know.... maybe its just  me.
>>> 
>>>Good Luck  Doctor   Candidate!
>>>W
>>> 
>>>  
>>>In a  message dated 8/4/2008  4:25:09 P.M. Central  Daylight Time,  
>>>[EMAIL PROTECTED]   (mailto:[EMAIL PROTECTED])    writes:
>>>
>>>Hi     everyone,
>>>
>>>Greetings! I am a student in  counseling  and   rehabilitation currently   
>>>conducting
>>>research on chronic   illnesses  and  disabilities and I need your help!  
>There  
>>is
>>>very  little  current  research on the  psychosocial aspects of chronic   
>>illnesses
>>>and   disabilities. My survey  has been approved by the  Office for    
>Research
>>>Protections and Institutional Review  Board  (IRB#  27939) at my  
>university-  
>>>Feel
>>>free to contact  them  to find  out if my research is  legit 
(814)-865-1775   
>or
>>>e-mail  [EMAIL PROTECTED]   (mailto:[EMAIL PROTECTED])   My 
survey 
>  
>>is  
>>>completely  voluntary and  anonymous.
>>>It does ask  for an  e-mail address at the  end  only if you choose to 
enter 
> 
>>>into   a
>>>raffle to win a $25 gift certificate   from  Amazon.com 
>>>To  comply with the Office for Research   Protections I  need to give you 
>the    
>>>spiel
>>>below. Within the letter below there is  a   web link  directly you 
straight 
>>to   
>>>my
>>>survey. Thank you so much in    advance for  your help and  participation!
>>>
>>>Best     wishes
>>>Jenny
>>>
>>>Dear  Prospective   Participant,
>>>You  are cordially  invited to participate in  a  research study   
examining
>>>attitudes and feelings  regarding  yourself  and  disability-related   
>>experiences.
>>>This research study  is  being  conducted  by me as part of my 
dissertation 
>at  
>>  
>>>The
>>>Pennsylvania State  University.  Your  participation in  this research 
study  
>>will
>>>help  counseling  professionals  and  researchers understand various  
>>experiences  
>>>of
>>>people  with   disabilities.  You may also benefit from learning more     
>about
>>>yourself and your experiences in the process  of  responding  to  survey  
>>>questions
>>>in this  research study.  Please  consider participating  if   you:
>>>1)    are 18 years or    older
>>>AND
>>>2)     have acquired  a  condition that  is considered to be a chronic 
>illness  
>>    
>>>or
>>>disability.
>>>
>>>If  you meet the  two criteria  listed  above, you are eligible to  
>participate  
>>in
>>>this research   study. They  survey you will be  asked to complete 
contains   
>6
>>>questionnaires which  will  take  approximately 20-25 minutes.  Your   
>>>participation
>>>is voluntary and you may   discontinue  it at any time. No identifying   
>>>information
>>>is  requested.  The  information  collected and the results of this 
research  
>   
>>>study
>>>will be used for  research purposes only.   
>>>
>>>For every  survey that is completed, I will donate  $1.00 to  the   
>Make-A-Wish
>>>Foundation. In addition, you  may  enter a raffle  drawing to  win a $25   
>gift
>>>certificate from   Amazon.com.
>>>
>>>If  you  wish to  participate in this research  study, please click  on   
the
>>>following link:    
>>>
>>>_http://www.psychdata.com/s.asp?SID4268_    
>>>(http://www.psychdata.com/s.asp?SID4268)     
>>>
>>>which  will automatically take you to  the  website  containing the 
survey. 
>At 
>>   
>>>the
>>>end of the survey, you will  be asked  to enter  your e-mail address  if 
you  
>>>choose
>>>to  enter  the raffle. Your  e-mail address will not be  linked to your    
>>responses
>>>on the questionnaires.   
>>>
>>>Thank you for  considering to participate  in this  research    study!
>>>Sincerely,
>>>Jenny C.Chang,   M.S.
>>>Doctoral   Candidate
>>>Department  of  Counselor Education, Counseling Psychology,  and    
>>Rehabilitation
>>>Services
>>>The  Pennsylvania  State     Univesity
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
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