I agree totally with Tod below. And, even though I am not male, my symptoms began with lower abdominal PAIN whereby I could hardly think. SYRINGOMYELIA sux big time.
Lori On Mon, Aug 24, 2009 at 10:44 AM, Tod E. Santee <sant...@cox.net> wrote: > Ron & David (mrpockets_2000): > ... I *do* know very few neurosurgeons will will work on a high-cord syrinx > solely because of pain. If loss of function begins and continues, that's a > bit different. There are just far too many risks for doing cervical cord > surgery just because of pain. They'd prefer narcotics and high pain > tolerance. > > Lower thoracic and lumbar syrinxs are more likely to be treated surgically > if pain is the issue... but still mostly as a last resort. Beware the doc > who suggests surgery before anything else is tried!! > > David... as for the pain in the groin area.. OUCH! I know! I get it > pretty bad, too, even though I've had the syrinx / cord-untethering surgery. > I've explained it more like riding a seatless bike, sitting on just the > seat post, while hitting several speed bumps. Does that sound like a > familiar feeling? > > Man -- If ANYONE ever comes up with a cure, drug or treatment for that... > sign me up! > > > Best to All! > --Tod > > > ---- RONALD L PRACHT <r.pra...@sbcglobal.net> wrote: > > with a syrinx at c1 c2 neuros wont operate unless things get really bad, > like function loss. the key is never operate above your level of injury. the > syrinx can cause pain in abdomen and back , because yours is higher the neck > area is probally affected. depnding on where you are in the states i would > see out a specialist to give you an opinion. > > > > ron c7 > > > > --- On Sun, 8/23/09, David <mrpockets_2...@yahoo.com> wrote: > > > > > > From: David <mrpockets_2...@yahoo.com> > > Subject: [QUAD-L] Syrinx > > To: quad-list@eskimo.com > > Date: Sunday, August 23, 2009, 9:42 PM > > > > > > > > > > > > I've had a syrinx located at C1/C2 and because the doctors say that there > > is a pretty good chance of me ending up on a vent, I have elected to > avoid > > surgery at this time. > > > > For those of you males who might have a syrinx, do you experience a lot > if > > neuro-pathic pain between your shoulder blades and especially in the > groin area. I feel lie there is someone pushing on my groin. Every time I > go to push my manual wheelchair iI feel like my bladder is going to lose > control because of the pressure on it. And there are times that my body > feels lie it burning from the inside out. > > > > > > David B. > > > > > > -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
