I was up to oxybutin 3 times a day and no good. I was intermit cathing when I
was first paralyzed but because my bladder wasn't holding any fluid and the
drugs weren't working, I went to an indwelling. The sling can be artificial or
they use your own tissue and put a sling under your bladder somehow. I did
read on it but not good at explaining it. What I didn't find was information
on how it does with people paralyzed. All the info I found was on stress
incontinence so why I am turning to you all.
I have a choice of a sling or them closing off my urethra and not quite sure
which way to go. I'm just really paranoid about leaking and also paranoid
about them closing off my urethra although i would rather that than be wet.
Stacy
________________________________
From: LJT <ljtbe...@yahoo.com>
To: Quad-list@eskimo.com; Stacy Harim <imwheelin1...@yahoo.com>
Sent: Mon, February 1, 2010 9:26:53 PM
Subject: Re: [QUAD-L] suprapubic and sling
Stacy,
I want to be sure I understand your situation correctly. Do you currently use
an indwelling catheter and want to switch to a super pubic catheter? And what
is this sling that you speak of? I have a super pubic catheter, and while I'm
pretty new to the game (to being a quad) I'd like to help shed some light if I
can. I've been very happy with mine.
Also when they talk about your urethra are they talking about closing it off
completely to eliminate its leaking entirely? Personally, and this is my own
deal, I think I'd be a little scared to have them close it off entirely. I take
detrol LA to control bladder spasms and therefore leaking. Please contact me
if you have any questions. But again like I say I'm pretty new to this, so I
don't know how much help I can be.
Lucinda
C-4,5 complete
July 31, '05
Mpls., MN
--- On Mon, 2/1/10, Stacy Harim <imwheelin1...@yahoo.com> wrote:
>From: Stacy Harim <imwheelin1...@yahoo.com>
>Subject: Re: [QUAD-L] suprapubic and sling
>To: wheelch...@aol.com, Quad-list@eskimo.com
>Date: Monday, February 1, 2010, 4:07 PM
>
>
>We increased the size but
> can't only do that so many times. I just would like to be informed with info
> from people that live with it day to day than just from a doctor. I trust
> him but would like to know if anyone with a sling and a flaccid bladder have
> any troubles with leaking or whatever may be a problem. I feel it's
> important to be informed.
>
>Stacy
>
>
>
>
________________________________
From: "wheelch...@aol.com" <wheelch...@aol.com>
>To: imwheelin1...@yahoo.com;
> Quad-list@eskimo.com
>Sent: Mon, February 1, 2010 7:28:28 AM
>Subject: Re: [QUAD-L] suprapubic and sling
>
>Increasing the size of the cath might be the answer. Of course, there
>could be a half dozen other tangible reasons too. You and your doctor have
>access to your medical records, we don't. Offering suggestions without
>this valuable information is too risky at best.
>It can be even more critical when you don't trust your medical
>doctor.
>Best Wishes
>
>In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time,
>imwheelin1...@yahoo.com writes:
>Hey all,
>>
>>I've been away for a while but need some advice.
>> Not that I don't trust my doctor's advice but also would like to get the
>> facts
>> from people that live with it day to day.
>>
>>I've been having issues with
>> leaking around my cath and instead of continuing to go up sizes, I've
>> decided
>> to go with the supra pubic until I drop some weight in my belly and get the
>> stoma redone so I can cath through my abdomen.
>>
>>Anyhow here is
>> the deal. My bladder doesn't hold urine at all and the doctor suggested
>> a sling but I am really worried it won't work and then I'm back in surgery
>> to
>> get my urethra tied off. What if any advice do you all have that have a
>> supra pubic and how did you handle what to do about your urethra so it
>> wouldn't leak urine?
>>
>>Thanks in advance,
>>Stacy
>>
>>
>
