I agree that the forms are pretty much standard, but make sure that if they're going to do a cystoscopy on you that they give you a prophylactic antibiotic in order to prevent a possible infection during the procedure. As your doctor has said, people with suprapubic catheters always have some sort of bacteria in their bladder.
I haven't had a cystoscopy in three years now, but I really think I probably need one now. I was experiencing some signs of stones: foul smelling urine, clogged catheter, sediment in the urine, and even an increase in UTIs. Last month I had to go in to see a doctor on a walk-in basis (I know that's a stupid name for SCI clinic) and after explaining what was going on to the doctor she ordered a sonogram of my bladder and kidneys to see if this was the cause of the problem. There was a minor stone in the left kidney, which has been there for at least five or six years now, and no stones showed up in the bladder. The reason I think I need a cystoscopy is because I am consistently having a burning sensation in my bladder, headaches, and high blood pressure when I have always had a problem with low blood pressure. The worst part for me is I wake up with high blood pressure 150/95 and then by the time I do my breathing treatment and get into my chair my BP drops to 80/40 something. It's really fatiguing and aggravating. I do have an appointment with my primary physician on Friday and I'm going to be taking all of my blood pressure readings in with me in discussing the problems. I wish I could say everything is my bladder, but I am having serious bowel problems on top of all these issues. The bowels could be causing the blood pressure spikes, but I don't know how are going to get to the bottom of this. I hope this makes some sort of sense, my head is hurting a bit today, so I'm not able to concentrate as well as I would like. On Mon, Feb 15, 2010 at 8:10 PM, Billy Lang <[email protected]> wrote: > Danny, > > Forget the form, it's standard stuff. If you are exhibiting signs of a UTI, > it could be caused by stones and a Cysto is the best diagnostics tool for > them. If the stones are large enough, they can be removed, smaller can be > blasted. But, you know that already.If you're not seeing signs of stones > (Cath blockage, grit in the tube, etc.), suspect this Dr of putting you > through the diagnostic procedure because he can. > > > > If the Dr. is seeing more than one "colonizations" he *should *proscibe > the right AB to knock them out. Doesn't he put you on a course of ABs before > the procedure (5 days), only after you get a culture done? > > I went 9 years w/o a UTI then got them like crazy after a Cysto. It didn't > get better until I returned to what worked for me. My advice, if it ain't > broke don't fix it. > > My suprapubic has been in for 20 years, and uti's are not that common. The > procedure has always been: > Feel sick >>>>>>take an AntiBiotic that treats multiple coloninizations > while culturing for 3 days>>>hope it's the right AB>>>>if so continue for 7 > more days>>>>>if not take the AB indicated by the culture for 7-10 days. > > BTW - I know within 48 hours if I'm taking the right AB. My symptoms don't > get better. > > Feel better > > > > D*on't let what you cannot do interfere with what you can do!* > > > Billy > > www.langfoundation.org > > > ------------------------------ > *From:* Danny Hearn <[email protected]> > *To:* [email protected] > *Sent:* Sun, February 14, 2010 2:02:45 PM > *Subject:* [QUAD-L] About Cystomomy-thru Cystotomy tract > > Hi all-- i'm sure I have had a long going UTI--well my Doc does not want > to do any cultures unles i'm deathly sick----he say's all supra-pubic > wearers always have 2 or more colonizations in the bladder from bad bacteria > anyway. He wants to do a Cystoscopy ------- I don't know why because each of > the past 2 years he went in looking for stones-and saw none. They want me to > sign this form saying I am aware of risks of bleeding-infection-injury to > bladder and uretha-anasthesia risks and other serious risks requiring > further surguries.--- it also say's perform biopsies of bladder-remove clots > and cauterize bleeding areas---------THIS ALL SCARES ME AND MY WIFE. We are > wondering if we should change urologists once again----(-we left the 1st > urologist because he mostly did surguries and did not like follow up > treatment for infections and etc.) Do any of you have an opinion on this?? I > have not had any uti treatments or anti-biotics in over a year? thanks for > any input or thoughts on this, DAN H>*** >
