Oklahoma. he's 18 and a quad from a car wreck. fighting a sore on his tailbone too........rough days right now.
thanks for your info -----Original Message----- From: greg [mailto:[email protected]] Sent: Friday, December 10, 2010 5:44 PM To: Nichole Rohling Subject: Re: [QUAD-L] cathing / uti / bladder spasms I too am a C/5, sorry to hear a new one has joined the quad club. I tried Detrol for awhile, but it gave me panic dreams. I also have a supra cath. Not to help with UTIs, but to make life much easier. Plus my condom cath would blow off quite often and always at the wrong time, kept me from wanting to go out. Sorry, but some people just get UTIs easily. I would get very light ones, but the symptoms were very hard on me. I was fine for many years, but about 6 years ago I started getting them every week. Bad ones. It went on for a year. I was going to do a bladder augmentation. Convert part of my intestine into a bladder. Basically stops UTIs completely, but a big surgery. Before I did that I started a daily half dose of Bactrim and have been UTI free for 5 years. Most uro's don't approve of that, but it's changed my life. UTIs even ones so light it's hard to test for, were just too hard on me. Fevers, shakes, vomiting, etc. It's been great. But the biggest thing is to drink lots... then more. Again, sorry about your friend. Where are they from? Greg > i have a friend whose son has been a c5 quad since april. they are > doing intermittent cathing (new sterile cath each time) and he has > had multiple uti's. many times when they cath they only get 100 cc > or ml but when they pull cath out a lot of urine comes out > afterwards. taking detrol for bladder spasms. > > uro doesn't want to do a superpubic and his mom feels that might be > a fix for constant uti problem. he wears a condom cath when he goes > out. > > > thoughts and suggestions are much appreciated > > > nicki > > c5
