Thanks for sharing Lori.  This may not apply to the rare but ever  present 
"walking quads" who are living testimony to the wonderful work of some  
great Rehab Hospitals.
 
Best Wishes
 
 
In a message dated 1/25/2011 12:29:09 P.M. Central Standard Time,  
[email protected] writes:

Bingo!  The one site you emailed me was good for signing up to help  ensure 
power chairs come to those eligible.  For other members here ...  the site 
W sent me was _http://www.celaadvocacy.org/_ (http://www.celaadvocacy.org/) 
 
Lori  ~


On Tue, Jan 25, 2011 at 6:21 AM, <[email protected]_ 
(mailto:[email protected]) > wrote:


Well said Lori.  You never, have failed me either.  And yes,  General, is 
just that.  A general. Hence I said, don't be  surprised.  I believe that at 
the present and for the near future, this  new requirement does not affect 
"Complex Rehab Electric Wheelchairs."   And many with major neuro injuries, 
are users of those complex  wheelchairs.  But there are some, who use and 
will continue to use  "group two" mobility equipment.
Over the last 18 months, while in my travels, I've asked of others who  
knew nothing about this change, and some did not care.  While others  showed 
interest in this as they were due for new chairs......
 
I will search for a copy of the new policy and post the link for anyone  to 
pursue and see for themselves to determine if the policy pertains to  them, 
and comment.
 
I'm sure that Lori will agree with me that each person should read up  on 
this new policy to determine if it will affect them or not.  And if  it 
should/does, to begin taking some action.
 
Be patient grasshopper.
Best Wishes
 

 

 
In a message dated 1/24/2011 11:10:40 P.M. Central Standard Time, 
[email protected]_ (mailto:[email protected])  writes:

Thank you W. But I believe you just made a premature  GENERAL statement 
that Medicare (CMS) is  NOT paying for power chairs like they did before but 
are renting them for  24 months. There is only a speck of truth to that. 
Knowing what I know right now, and after reading W's  statement earlier 
today (Monday) I wanted this information in  writing so I sought to pursue it 
myself in the  meantime (while also asking W for written sources of this  
information).  
Five or six months ago I had heard something SIMILAR to  what W was saying 
but it was about a person  without a spinal cord injury who had  eventually 
found out that there are certain  "groups" that wheelchairs fall into as 
well as individual disability diagnosis. 
 
People with traumatic spinal cord injuries DO NOT fall  into a group 
whereby Medicare and Medicaid pays differently now.  
I believe W's premature erroneous GENERAL statement was  based on the 
information that "Group 2" power chairs are not paid for like  they used to be 
but they are rented out for 13 months and then the  individual has the 
"purchase option" for the chair. These chairs are for  individuals with 
disabilities like cerebral palsy, multiple sclerosis,  etc.  
"Group 2" power chairs do not  include those chairs required for 
individuals  like ourselves.  
WE require "complex rehab power chairs" which fall into  the category of 
"Group 3 base" chairs . Therefore they are still  considered a purchase item 
for Medicare and Medicaid. And to qualify for  one of these group 3 bases... 
individuals need to qualify after being  diagnosed with a traumatic injury 
like those with paraplegia or  quadriplegia. 
This is explained in further detail in the link below my  name and many 
other sources. 
Further, over the last year, this is not the FIRST TIME I  have heard a 
generalized statement about Medicare and what it is or is not  going to do. And 
not just about wheelchairs. This is scary because it gets  passed around 
quite quickly and people get on the bandwagon and then  MISINFORMATION is 
spread rapidly. And, as we all know, a lie can spread  itself halfway around 
the 
world before the truth can get its shoes on.  Sadly to say. :-( 
The moral to this : ALWAYS BEWARE of a SINGLE  source. 
Lori 
_http://www.cdapress.com/news/healthy_community/article_6e3ca5f7-c719-597b-a
599-8a73ea046b8e.html_ 
(http://www.cdapress.com/news/healthy_community/article_6e3ca5f7-c719-597b-a599-8a73ea046b8e.html)
 

On Mon, Jan 24, 2011 at 3:05 PM, <[email protected]_ 
(mailto:[email protected]) > wrote:


And Lori is the person who always knows the nicest  thing to say at the 
right time.......
Yes, Pride worked with Motion Concept, up until a few  years ago when Pride 
developed
their own comfort system.
 
Let me toss another cream pie into the crowd, if I  may.  How many of you 
knew about CMS's new policy of NOT paying for  electric wheelchairs as 
before.  Now they only rent them for 24  months.
 
Best Wishes
 

 

 
In a message dated 1/24/2011 3:57:46 P.M. Central  Standard Time, 
[email protected]_ (mailto:[email protected])   writes:

W always has the ability to eloquently say things  and describe things in a 
short detailed e-mail.

So, everything  W said was right.  
 
But I will also add the importance of knowing that  MOTION CONCEPTS works 
with both Quantum power chairs (made by Pride  Mobility) and Invacare power 
chairs.  And MOTION  CONCEPTS, along with Pride Mobility and Invacare both 
work  together (along with your wheelchair vendor or provider) to seat you  
correctly.  Your wheelchair vendor or provider SHOULD WORK WITH  YOU to 
achieve the entire sitting options (from wheelchair backs to  the proper 
seating, 
etc. etc. etc.) APPROPRIATE FOR YOU.
And don't let them give  you excuses!
Having them both work together gives you countless or  thousands or 
unlimited possibilities for correct seating! It is just  so hard, with 
everything 
available, to know exactly what will work for  us NOT ONLY THE DAY WE TRY IT 
but for X. number of years  later. 
Lori

On Mon, Jan 24, 2011 at 12:19 PM,  <[email protected]_ 
(mailto:[email protected]) > wrote:


It is most difficult to adjust piping in a poured  concrete floor, once the 
concrete has dried.
 
Same could be positioning evaluation, after you  have received your present 
Quantum Chair.  It may not be  impossible, just very difficult.  Seating 
and Positioning  Evaluations should only be done by licensed and certified  
Occupational Therapist with Seating & Positioning  Certification.  The order 
after the evaluation goes with the  order for the seat base.  Hoping to do 
this after the base has  been built, along with the seat, makes it that more 
difficult.   I always contact Mark Smith at Pride Mobility with the serial 
number  of your chair to determine if the seat assembly can be changed or  
modified on the base.... before I precede. 
Mark can be reached directly  at     [email protected]_ 
(mailto:[email protected]) 
Mark is a Product Manager in the Quantum Division  at Pride.
 
Remember, the impossible only takes  longer....
Best Wishes
 

 
In a message dated 1/24/2011 12:50:23 P.M. Central  Standard Time, 
[email protected]_ (mailto:[email protected])   writes:

I have a Quantom 600 wheelchair with  a roho cushion since April of this 
year.  I am having a lot  of trouble with the way I'm sitting I always feel 
like I'm  slipping for ward and my husband has to help push me up.  I  have 
always sat in a smaller chair (Nutron) but getting older (66)  so decided to 
get  ac hair that tilts and has automatic  legs.  I called Armed for a 
seating evaluation but they are  just sending the gentlemen that gave me this 
chair and he already  said he doesn't know what to do...I sit on a small roho 
because  the big one is no good with my balance...any suggestions on what I  
can do to be able to sit without the feeling of slipping? What can  I say to 
the representative that will be coming to my house?  Thanks in advance.
Carolyn 46 years post  c3/4









-- 
Lori 
Age - 46
C4/5 complete  quad, 31 years post
Tucson,  AZ










-- 
Lori 
Age - 46
C4/5 complete  quad, 31 years post
Tucson,  AZ










-- 
Lori 
Age - 46
C4/5 complete quad, 31 years  post
Tucson, AZ

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