Hi group,
I'm not comfortable saying much about my relationship status here because it
doesn't just stay within the community and not end up on the web. I can say I
have much experience in this area. Basically It comes down to no matter who
cares for you be it a wife, parent, love one, or stranger do everything
possible that you can do yourself. For the things you can't do yourself be
patient, understanding, and grateful to those who are helping you. That doesn't
mean you have to just let them do as they please with your care. Be clear with
them what your full needs are. Be organized and make things go as easy as
possible. IF AT ALL POSSIBLE GET OUTSIDE HELP. If you can pay someone else or
get state help to do even small stuff, I think it's a great idea. Anything you
can do to give your primary caregiver a break is recommended. Especially if
it's someone you care about being in your life for a long time. If your in a
dating or marriage situation and want it
to last you must do as I said previously. As well as continually tell them how
special and glad you are that they are willing to share all aspects of your
life together. Being disabled means we have to work twice as hard to be
romantic, sexually creative, and just plain nicer than normal people if we want
love to last. Divert the care they have to do with fun, love, and laughs. Oh,
and during your care periods try to keep things lite and fun when ever
possible. When your together not doing quad and house stuff try really hard to
make those times special. Those times can out way the quad times.
My 2 cents,
Donald C5-C6 22 years post
