Dana,
I got mine Jan.1999 Have you ever gotten an open sore under the stoma
adhesive? I had 3 at the same time. It was EXTREMELY difficult to heal because
the "appliance HAD to be on. After seeing 3 stoma nurse's who couldn't help me
and many urologist who had no idea what to do other than sucking an indwelling
cath into the stoma opening WITHOUT ANY appliance ... what a freaking
nightmare. I found a nurse practitioner NP who came to my home and prescribed a
seaweed type medication, and it healed PDQ. Never had another sore again.
Just yet another fun roller coster experience as a Quad. Bobbie
Smile Everyday
> On Nov 3, 2013, at 8:23 PM, Dana Wray <[email protected]> wrote:
>
> Cool, we have the same thing. When I was at Craig Hospital for reevaluation I
> was the first one they had ever seen in a women and such a young patient, I
> got mine in 1986,
> Dana
>
> Sent from my iPhone
>
>> On Nov 3, 2013, at 5:52 PM, Gmail <[email protected]> wrote:
>>
>> I too have an ileal conduit, so I couldn't answer that question. Bobbie
>>
>> Smile Everyday
>>
>>> On Nov 3, 2013, at 5:05 PM, [email protected] wrote:
>>>
>>> What is the difference between urostomy and ileal conduit. I have a ileal
>>> conduit, because they had to remove my bladder because of bladder cancer. I
>>> was in the hospital for months.
>>> Dana.
>>>
>>> To me it's easier than changing the indwelling catheter.
>>>
>>> In a message dated 11/3/2013 1:45:52 P.M. Central Standard
>>> Time,[email protected] writes:
>>> I had an indwelling catheter for 26 years and then I had to have a urostomy
>>> done because my urethra was all stretched out beyond repair. I was at the
>>> point where I was changing my cath 3 to 4+ a WEEK! Which, of course, caused
>>> quite a few UTI's.
>>> The Urostomy surgery was HELL I won't sugarcoat it, it was THE HARDEST
>>> surgery I ever went through. The recovery was twice as hard as the surgery.
>>> In the end, I wish I had done it sooner but I was he'll bent against it
>>> unless I absolutely HAD to.
>>> Bobbie
>>>
>>> Smile Everyday
>>>
>>>> On Nov 2, 2013, at 1:00 PM, "nichole rohling" <[email protected]>
>>>> wrote:
>>>>
>>>> I’ve had an indwelling cath (16 french) for over 15 years……..just moved up
>>>> to a 18 from a 16 because of it stopping up and some leakage (minimal). I
>>>> say wait and get a 2nd opinion.
>>>>
>>>> Nicki
>>>> c5/6
>>>>
>>>> From: Naomi Hudson [mailto:[email protected]]
>>>> Sent: Friday, November 01, 2013 9:47 PM
>>>> To: [email protected]
>>>> Subject: [QUAD-L] Suprapubic Catheter
>>>>
>>>> Help I need your advice,
>>>>
>>>>
>>>> I have had an indwelling Foley catheter for the past eight years. My
>>>> urologist keeps telling me eventually, my urethra will become eroded and
>>>> it will start to leak. This will cause me to need urinary diversion
>>>> surgery, which I've told him I'm not going to have unless it's absolutely,
>>>> positively necessary, because it's so invasive. So now he's telling me my
>>>> next best option is a suprapubic catheter. Then he tells me that he may
>>>> have to give me Botox in my bladder to keep my urethra from leaking. So
>>>> I'm like, why not wait until my urethra starts to leak and then give me
>>>> the Botox and a suprapubic catheter. I have a return visit in three weeks
>>>> to let him know what I'm going to do. Any suggestions?
>>>>
>>>> Have a Blessed Day, Naomi
>>> =
> Sent from my iPhone
>
>> On Nov 3, 2013, at 5:52 PM, Gmail <[email protected]> wrote:
>>
>> I too have an ileal conduit, so I couldn't answer that question. Bobbie
>>
>> Smile Everyday
>>
>>> On Nov 3, 2013, at 5:05 PM, [email protected] wrote:
>>>
>>> What is the difference between urostomy and ileal conduit. I have a ileal
>>> conduit, because they had to remove my bladder because of bladder cancer. I
>>> was in the hospital for months.
>>> Dana.
>>>
>>> To me it's easier than changing the indwelling catheter.
>>>
>>> In a message dated 11/3/2013 1:45:52 P.M. Central Standard Time,
>>> [email protected] writes:
>>> I had an indwelling catheter for 26 years and then I had to have a urostomy
>>> done because my urethra was all stretched out beyond repair. I was at the
>>> point where I was changing my cath 3 to 4+ a WEEK! Which, of course, caused
>>> quite a few UTI's.
>>> The Urostomy surgery was HELL I won't sugarcoat it, it was THE HARDEST
>>> surgery I ever went through. The recovery was twice as hard as the surgery.
>>> In the end, I wish I had done it sooner but I was he'll bent against it
>>> unless I absolutely HAD to.
>>> Bobbie
>>>
>>> Smile Everyday
>>>
>>>> On Nov 2, 2013, at 1:00 PM, "nichole rohling" <[email protected]>
>>>> wrote:
>>>>
>>>> I’ve had an indwelling cath (16 french) for over 15 years……..just moved up
>>>> to a 18 from a 16 because of it stopping up and some leakage (minimal). I
>>>> say wait and get a 2nd opinion.
>>>>
>>>> Nicki
>>>> c5/6
>>>>
>>>> From: Naomi Hudson [mailto:[email protected]]
>>>> Sent: Friday, November 01, 2013 9:47 PM
>>>> To: [email protected]
>>>> Subject: [QUAD-L] Suprapubic Catheter
>>>>
>>>> Help I need your advice,
>>>>
>>>>
>>>> I have had an indwelling Foley catheter for the past eight years. My
>>>> urologist keeps telling me eventually, my urethra will become eroded and
>>>> it will start to leak. This will cause me to need urinary diversion
>>>> surgery, which I've told him I'm not going to have unless it's absolutely,
>>>> positively necessary, because it's so invasive. So now he's telling me my
>>>> next best option is a suprapubic catheter. Then he tells me that he may
>>>> have to give me Botox in my bladder to keep my urethra from leaking. So
>>>> I'm like, why not wait until my urethra starts to leak and then give me
>>>> the Botox and a suprapubic catheter. I have a return visit in three weeks
>>>> to let him know what I'm going to do. Any suggestions?
>>>>
>>>> Have a Blessed Day, Naomi
>>> =
