I was told it was disintegrating disc disease. There's no cure for it. It causes nerves to be pinched as well as making it impossible to position comfortably. Spending long times sitting in the chair is really painful.I'm to the point now where I get out of bed for a couple hours each day. Best wishes. john s
Sent from my Verizon Wireless 4G LTE smartphone -------- Original message -------- From: Danny Hearn <ddh...@sbcglobal.net> Date:11/24/2014 5:44 AM (GMT-05:00) To: alcibiates2 <alcibiat...@yahoo.com>,quad-list@eskimo.com Subject: Re: [QUAD-L] Autonomic Dysreflexia John, I read that many quads develope disc problems in their backs, did they do anything for yours or do you just get by as best you can with that?? thanks, Dan** On Sunday, November 23, 2014 6:55 PM, alcibiates2 <alcibiat...@yahoo.com> wrote: Dan, I've had some fractures that were almost undetectable but really sent my bp up and pulse way down. Just the weight of my foot separated my tibia at the mantle below the knee. Chalky bones and deterioration of spinal disc's have played hell with me. Try sitting straight up and take something for pain. Don't recline until your pulse returns to your normal never be afraid to 911 yourself to an er. Tip:take a copy of a medical definition of AD with you along with your med list. I swear they can be pig ignorant of what is going on and what to do. Help has gotten ambivalent in Cincinnati. Best Wishes, John s Sent from my Verizon Wireless 4G LTE smartphone -------- Original message -------- From: Danny Hearn Date:11/23/2014 4:42 AM (GMT-05:00) To: quad-list@eskimo.com Subject: [QUAD-L] Autonomic Dysreflexia Man, I hate having dysreflexia and unable to find the cause, I have been having it on and off for about 3 days and have had almost no sleep for the last 2 days. Bladder and bowels all seem fine-no pressure sores or etc. that we can find. When I try to lay down at night after a while I get real hot and clammy, my heart begins to pound and act up. I do have a syrinx and bad neck and back pain but not sure if that can be the problem. I guess Monday I'll try to call my primary doctor and get checkup and bloodwork for a start, This stuff is depressing and drives my wife crazy making her lose sleep also, plus she is a caregiver to an elderly woman with alzheimers 4 days a week. This Quad related stuff can be so challenging at times ! Well I guess i'm done venting...it's about 3:45 am. Hope To get better before long. Dan H***
