Bob, your articles are always informative and helpful. Best Wishes In a message dated 12/17/2014 11:52:55 A.M. Central Standard Time, [email protected] writes:
Hi Danny, I'm sorry to hear about the sudden dramatic increase of dysreflexia bouts as well as increase in spasms. From where I sit, you and your Dr.s are right on track trying to ummm track down the cause. Dysreflexia, especially increases that pop up out of nowhere, is an issue that I have researched and written about--it is also something we at New Mobility have experienced through our journalists and people we have written profiles of. In terms of syrinx, we have written several articles about this. In my research, and if it was me there are two Dr.s I would contact--these are the top syrinx docs, and a syrinx is very complex, you want the best of the best to advise you, and if need be, to do the treatment. The doctors are, Dr. Barth Green at the University of Miami (Miami project) or Dr. Scott Falci at Craig hospital in Denver. I have spoken with Dr. Falci several times. In my experience he and his nurse Charolette Indeck are the best. You can phone or email Charolette for information and she or Dr. Falci usually get back to you in 48 hours. Their contact info is: (303)761-5281 or email: [email protected]_ (mailto:[email protected]) Dr. Falci has treated (surgically) over 1000 people with syrinx. Here are two articles New Mobility has done on syrinx, I wrote the first one and Richard Holicky wrote the 2nd one. Para/Medic: Syrinx and Pain http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/ Untethering the Invisible Knot Richard Holicky http://www.newmobility.com/2009/03/untethering-the-invisible-knot/ Wishing you a quick resolution to this! Sincerely, Bob Vogel Senior Correspondent/New Mobility On Dec 17, 2014, at 8:58 AM, Danny Hearn wrote: Hi all...I'm still having dysreflexia on and off, been about 3-4 weeks total now, get bad spasms-especially at night when in bed, I do better during day when up and taking pain meds. In 17 years as a quad I have only had problems similar to this when I had serious bladder infections. 1st I went to family doc and he did some blood work but found nothing, Next we sent A Urine sample to my Urologist and he found 2 bacteria's and put me on 7 days of cipro--just in case a uti or infection could be the cause, I will finish the cipro tomorrow but things are not getting better so It must be something else...I have a syrinx in my spine, don't know if that can be the cause and not sure I can even do an mri now due to spasms when I lay down, sure hope We can find the cause or I'm not sure what will happen...Oh well, I'll stop for now, If anyone has an Idea on this, please reply...Thanks Beforehand, hope your all doing well. Dan H*** =
