Lori, your story breaks my heart, and the sad and frightening thing is most of 
us are just one incident away from the same situation, including me. I've said 
it many times before...I don't know if it's worth it. Like the rest of us, I 
keep on keepin on.

Sent from my iPad

Begin forwarded message:

> From: "Lori Michaelson lorilivin...@gmail.com [SCIC]" <s...@yahoogroups.com>
> Date: April 5, 2015 at 11:37:27 AM EDT
> To: s...@yahoogroups.com
> Subject: Re: [SCIC] Linda Young Miller and I need your help!
> Reply-To: s...@yahoogroups.com
> 
> I have not looked for Linda's phone #. I have always had trouble accessing 
> that database. And I do not know why something is changing with my situation. 
> Other than what I said. My sister & bro-in-law are getting older, they feel 
> stressed but they [especially my bro-in-law] too often make it that way. Tis 
> all I can say for now because of lack of privacy. *sigh*
> 
> ~Lori~
> 
>> On Sun, Apr 5, 2015 at 8:14 AM, Tony and Cindy Waters tangeri...@verizon.net 
>> [SCIC] <s...@yahoogroups.com> wrote:
>>  
>> did you look in our members database for her phone number?
>> cindy waters
>> mom to anthony 32yo
>> sci march 2003
>> Lutz, FL
>> c4,5,6 complete
>>> On 4/4/2015 9:25 PM, Lori Michaelson lorilivin...@gmail.com [SCIC] wrote:
>>>  
>>> ​
>>> Has anyone heard from Linda Young Miller (CA representative) lately or over 
>>> the last six months or so?
>>> 
>>> We are all going through our own trials and tribulations with Marie's being 
>>> the latest to experience something we can't even put into words. 2 1/2 
>>> years ago I lost my most beloved husband and primary caregiver. Since then 
>>> have I have been in nothing but survival mode and had to move across the 
>>> country to live with family. I have very little family left and, as a 
>>> result, my own show us to move in with my sister and brother-in-law. This 
>>> past Monday and was confronted by them and soon about my future and 
>>> well-being and, including with that, with the option of an 
>>> institutionalized setting of which I would never survive.
>>> 
>>> Linda and I have spoken many times over the last 10+ years because her and 
>>> I (and at that time my husband was alive) have a great deal of income and 
>>> therefore I have never been eligible for the waiver programs and definitely 
>>> do not want to spend down everything myself and my husband worked hard to 
>>> be at. He always told me never to spend myself down into poverty because 
>>> what if something happened to the Medicaid program and then it would not be 
>>> able to hire on my own like I have been doing.
>>> 
>>> Needless to say I am scared out of my wits end and I need all of YOUR 
>>> SUPPORT with this. I have lived in the community for the last 35 years 
>>> since my injury and every... single... home health aide that I have had and 
>>> DO have known that I would never survive in an institutionalized setting... 
>>> especially with my needs and circumstances. I DO have a few advocates aware 
>>> of the situation but all of you know what I know when it comes to knowing 
>>> that living in the community and thriving in it is, unequivically, 
>>> necessary physically and emotionally.
>>> 
>>> That's all I have time for tonight. I just tried to write to Linda 
>>> yesterday and I have not heard back from her and had not seen her post 
>>> anything for quite some time.
>>> 
>>> Thank you all in advance!
>>> 
>>> Sincerely,
>>> 
>>> Lori Michaelson
>>> 
>>> C 4/5 complete quad, 35 years post
>>> 
>>> Currently residing in northeast Pennsylvania
>>> 
> 
> 
> 
> -- 
> ~Lori~
> 
> "Until one has loved an animal, a part of one's soul remains unawakened" - 
> Anatol France
> __._,_.___
> Posted by: Lori Michaelson <lorilivin...@gmail.com>
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