Hi Greg, For what it is worth, I wrote an article about Syrinx’s, and there is another excellent article in New Mobility about an incomplete C5-6 quad that had a syrinx fixed. Here are the links: Para/Medic: Syrinx and Pain http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/ <http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/>
And: Untethering the Invisible Knot http://www.newmobility.com/2009/03/untethering-the-invisible-knot/ <http://www.newmobility.com/2009/03/untethering-the-invisible-knot/> When I wrote the article back in 2011 the two best (and in my opinion only) Doc’s I would go to for this were/are Dr. Barth Green at the University of Miami School of Medicine and Dr. Scott Falci at Craig Hospital in Denver. You can contact Dr. Falci at Craig Hospital at 303/761-5281 You will speak with Charlotte his assistant. She is very knowledgable, and either she, or Dr. Falci will follow up with you via phone within a few business days. Dr. Falci says that although you can see a syrinx on an MRI and that is helpful, he treats (does surgery) based on symptoms, meaning worsening of pain, worsening of spasticity and the main reason for doing surgery is additional loss of sensation and/or movement. It is very serious surgery and Dr. Falci has done well over 1000 surgeries on syrinx’s in people with SCI. He is really amazing at being able to listen to your symptoms and tell you exactly what is going on with the syrinx including when to treat and when not to treat. He is quite conservative—he doesn’t want to do surgery unless he has to, meaning loss of feeling and/or movement or to a lesser degree increase of spasticity and/or pain. I know quite a few people that have been treated by Dr. Falci both for syrinx’s as well as with DREZ (stopping bring leg pain by computer assisted targeting of burning the nerves that are causing the problem. Hope this helps. Cheers, Bob Vogel > On Jan 2, 2016, at 5:24 PM, greg <[email protected]> wrote: > > I know Cyrinx Cysts are quite common in quads, I have one that I haven't > checked on in years. > Have you had one drained? > Could you feel the difference? > I go to the SCI Rehab doc next week, I'm making a list of things I need to > talk about. A lot of my symptoms could be Cyst related. Or just getting old. > More pain, spasm, feel weaker, etc. > Is draining a cyst fairly safe? Out patient or admitted over night? > > Thanks much, Greg >
