Hi
Greg,
I am in my 30th year as a
T10 complete para. I get bad neuropathic leg pain, like icy
hot pain.
It comes and goes, seems to
be worse in cold weather, also worse if I am getting sick, or
getting
a UTI.
I take 200 mg of
neurontin-gabapentin three times a day. My PM&R (spinal
cord injury doc) doc
says I can take at least
three times that much, but 200 mg seems to help just a bit and
I don’t want
to take more because I’ve
heard it can cause weakness in limbs. I’ve also read/heard it
is VERY difficult
to get off of, as in as
difficult as it is to stop taking valium (diazapam) because it
replaces the same
substance in the brain
(gaba) and it takes the brain a long time to start making it
again.
This makes sense because I
also take 10mg of valium at night to stop leg spasticity when
I’m trying to
sleep. The neuropathic
icy/burning goes away when the valium kicks in—but taking more
valium would
set off a chain reaction of
tolerance so I stay away from taking any additional valium
and/or gabapentin.
Bob V
I did and Lyrica, didn't help much.
My only relief is sun or sun lamp. Not the sun box for
Seasonal Affective Disorder. It's got to be the heat lamp
kind.
Only relief I get.
Greg
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What will I be doing? Continuing my search for relief
from my neuropathic
pain. In my case, an intense feeling of cold. Have any
of you taken
neurontin-gabapentin