Wow, Bobbie, all I can offer is love, prayer, and sympathy.....and you certainly have those.
Sent from my iPad Begin forwarded message: > Resent-From: [email protected] > From: Robert Vogel <[email protected]> > Date: December 26, 2016 11:35:58 PM EST > To: Bobbie Humphreys <[email protected]> > Cc: [email protected] > Subject: Re: [QUAD-L] Syrinx > > Hi Again Bobbie and All, > > My previous email was sent via iPhone, now that I’m at my computer I can give > you all the details. > > In my opinion, after doing a lot of research, the two places that know the > most about Syrinx—(Syringomyelia) > are the University of Miami School of Medicine (Miami Project) and Craig > Hospital in Denver. > > I would go right to the expert, right away!!! > > I’ve had the good fortune to interview and ask questions of Craig Hospital’s > expert on Syrinx, Dr. Scott Falci. > Dr. Falci is an expert on the subject and has done surgery on over 1000 > people with SCI and Syrinx. > Dr. Falci and his team are fantastic at answering questions and can give you > a lot of information on treatment > options based on your symptoms (information, not advice) over the phone. > They are quite quick to respond > to phone calls, again, in my experience they return phone calls within a day > or two. The main person that takes > the phone calls is Charlotte. Their direct number (for Rehabilitative > Neurosurgery) is (303)761-5281 or you can > email them at: [email protected] > > Their webpage is: > https://craighospital.org/programs/rehabilitative-neurosurgery > > They treat based on symptoms—from the symptoms you describe, if it was me, > I’d be on the phone first thing > tomorrow. The sooner you get a handle on this the better. From what I > understand *sometimes* you can regain > what you have lost due to Syrinx, but the key is if you are loosing feeling > and/or movement, it is important to find > out what to do and do it right away. > > I have talked with quite a few people that have been treated by Dr. Falci and > they say he is fantastic, both as a surgeon > and as a knowledgable, empathetic doctor. > > Hope this helps. > > Bob Vogel > >> On Dec 26, 2016, at 6:09 PM, Bobbie Humphreys <[email protected]> >> wrote: >> >> I was diagnosed with a syrinx back in 1995 and, until now, have had no real >> problems. >> >> Since the first Saturday of December I can not feel my right hand 🤚 and >> using it, like I've been able to, has become nearly impossible. >> >> Picking up and holding a fork, tooth brush, spoon, pen, paint 🎨 brush, >> opening medications and even driving my chair has become an extreme >> challenge. >> >> Does anybody know of any way to alleviate the pressure? >> I don't want to get it drained because my Doctor said it can come back >> immediately. No way do I want a shunt. >> Bobbie >> >> "You must fail in order to succeed" >
