I had a suprapubic catheter put in in June of 2017 (last year). Only 5 later a growth or polyp shut up against my bladder wall. I had a bladder biopsy done in February of THIS year & it turned out to be superficial or low-grade cancer so it was removed. The last time I had a cystoscopy for my urologist to look in my urine everything looked fine. That was August 31st of this year.
I have also had back-to-back nosocomial infections (the two big superbugs to make matters worse) that are commonly found in hospitals or clinics and that is when they began to appear... the first one was after my urologist wanted to be the first to change my catheter the first 3 months after switching to an SP catheter and then they have just continued. They cause severe bladder and kidney pain. They are also multi-drug-resistant. The symptomatic bacteria (2 superbugs present at the same time) were treated with antibiotic injections of Rocephin but the pain did not go away so I had another urine culture done last Friday and just got the results today. Enterococcus species and Staphylococcus Aureus - MRSA is what was found. It is sensitive to very little drugs. I am currently awaiting 'what to do' from my urologist.. I just called them to see if they got the results also and they have but the urologist has yet to tell me what to do when he is not seeing patients and for his nurse to get back with me. Just about every website says that SP catheters are supposed to cut down on infections but I have had just the opposite happen. The catheter changes are done with extreme cleanliness and sterility. My home health agency nurse who does them has done many catheter changes and my live-in caregiver watches her and sees that she is doing everything correctly. My question is: Has anyone experienced some resistance when trying to insert their suprapubic catheter and/or had a tiny blood clot or tiny tiny blood flakes (that quickly disappear) after a catheter change? Thank you! ~Lori C4/5 complete quad, 39 years post -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
