I am a C5 quad 18yrs now and for the last 10 or so have on and off issues with profuse sweating that lasts from minutes to weeks. Sometimes it is entire upper body sometimes it is only one side (not always same side) Sometimes I am cold well sweating sometimes I am hot. No doctor seems to think it is "worth" looking into but I know it is uncomfortable, embarrassing and greatly affects my daily living. My bowels move daily but not always much? My roho cushion is checked regularly. I have no skin issues. I drink plenty of juice and water...Any thoughts, ideas and/or suggestions? Thanks in advance. Enjoy your day 😁
Get Outlook for Android<https://aka.ms/ghei36> ________________________________ From: Tod Santee <mr.san...@gmail.com> Sent: Saturday, November 7, 2020 3:23:41 PM To: Robert Vogel <rhvsh...@me.com>; quad-list <quad-list@eskimo.com> Subject: [QUAD-L] Re: Intro/Hi Again and P.I.E. Bowel Care Hi Robert, Thanks for the very detailed info about this Peristeen / Coloplast system! I had never heard of it until you and another person here mentioned it. I'm glad to hear how well it works for you and especially happy to hear it from a fellow diver! Given its easy-sounding portability I'll be looking at this one a bit closer now, too. (Hopefully having more than one option doesn't complicate things! LOL!!) Best wishes, --Tod On Friday, November 6, 2020, Robert Vogel <rhvsh...@me.com<mailto:rhvsh...@me.com>> wrote: Hi Todd, From my ’survey of one’ first look into ’trans anal irrigation’ as in the Peristeen system by Coloplast. It is similar (and different) than the PIE system. It is small (fits into a shaving kit size bag), light and portable. It consists of a clear plastic (soft) container that can hold up to 1500cc of tap water, tubing, a small hand-squeeze pump, a controller, and the key—a disposal rectal foley catheter. You fill up the Peristeen bag with luke warm tap water—however much works for you—everybody is different, the average amount is around 500-600cc of water. Next insert the rectal foley into your rectum—next there is a simple plastic ‘dial’ controller, you turn the dial to inflate, squeeze the rubber-ball like pump once or twice—this inflates the foley balloon which holds the catheter into your rectum and prevents any water from coming out. Next you turn the dial to ‘water’ and start squeezing the ball to fill up your large intestine with water, which generally goes about 1/2 way into your large intestine, that’s about 2 1/2 feet. Then turn the dial to ‘deflate’ remove the rectal foley and wait. The tap water does two things, it softens and lubricates stool in your colon, and it acts as a mild stimulate which causes the colon to contract. In my experience the entire process takes about 40 minutes and empties me out like nothing I’ve tried in 35-years. CT scans with contrast show that Peristeen empties out 2 1/2 feet of colon—the average bowel program and/or the average non-disabled person having a bowel movement only empties about 6-8 inches of colon. It empties me out so much that I only have to go every other day and I haven’t had an accident in the 8-years since I’ve been using it. I find it is great for use at home, even better when travel, especially on dive trips when I want to be extra cleaned out. Caveat, you need a prescription from your doctor and need to be trained by a Peristeen trainer, which can be arranged through Coloplast but takes time. And insurance coverage is spotty at best. Here is the link: https://products.coloplast.us/coloplast/continence-care/peristeen/peristeen-tai/peristeen-balloon-catheter/peristeen-anal-irrigation-system/ I hope this helps. Bob Vogel On Nov 6, 2020, at 3:31 PM, Tod Santee <mr.san...@gmail.com<mailto:mr.san...@gmail.com>> wrote: Hi Everybody! Some of you might remember me. I'm a moldy, oldie at the Q-List since the mid-90s maybe, but since I haven't checked in for a long time I guess I'm a bit of a newbie to many here, too. I'm a male C5-6 Quad, 37 yrs post injury from a fall from a tree. So first off... "Hi!" to all my old friends & acquaintances here. And, looking forward to meeting those who are "new" since I stopped posting and following closely. My MAIN reason for writing, tho, is this: For many years... almost since the beginning of this "new normal" life... my bowel routine would take 3-4 hrs from suppository (or whatever other kind of bowel stimulant) to finish with a whole lot of digital stimulation along the way. It's always been (pardon the pun) a pain in the ass! I'm sure I'm alone on that last bit!! LOL! Problem is, lately I've been waiting just as long but now sweating like crazy throughout the majority of that time. A colonoscopy shows no irregularities other than some minor exterior hemorrhoids that I've had for at least 30yrs... i.e. no change there. So I'm looking for a change in process and I've been encouraged to look into the P.I.E. system (P.I.E. = something like "Pulsed Irrigated Evacuation.") that uses a catheter to fill the bowel with water and let it empty into a container (lather, rinse, repeat until done). I looked it up online & it has a pretty decent animated video of how it works. BUT, it's big & I'd guess expensive if insurance doesn't cover it. I figured I'd turn to the experts here to see if anybody has tried this, how well it worked --our not-- and how you'd deal with things if/when traveling. My wife and I enjoy world travel to not-so-accessible locations for scuba diving trips... at least up until a year ago. Any ideas or opinions on this P.I.E. system from anybody familiar with it would be SUPER appreciated!!! Thanks All, --Tod
