I have had a supra pubic catheter for more than 30 years now. Super simple. No bladder tapping, no straight cathing every 4 to 6 hours, just empty the bag as needed. Catheter changes are much easier than changing a foley catheter. It's easier on your caregivers too. The downside is indwelling catheters can make you more susceptible to uti's. This is something I have struggled with over the years. I haven't ever had problems with dysreflexia because of the supra - not even with catheter changes
On Wed, Nov 20, 2024 at 6:46 PM Edward Tessier <[email protected]> wrote: > Hi team, > > I've used an external condom and leg bag for 40 years. My attendant taps > and pushes on my bladder to get it to empty. However, the sphincters at the > base of my bladder are no longer opening properly, triggering a lot of > dysreflexia. My urologist now wants to put in a Supra pubic catheter. > > Has anybody else been using this system? What have been the pros and cons > for you? > > I cannot use a Foley catheter regularly. I've had so much damage from > kidney stones over the years it triggers some really horrible urethral > burning. > > The doctor mentioned treating those sphincters with Botox injections, but > does not have experience janelle if this is a good option for populations > like ours. As anybody else looked into or tried this option? > > Thanks guys for any advice you can give me > > Ed Tessier > C5 - 6, 40 years post injury >
