[QUAD-L] Desperate for Care

[Steve Crowder]

I desperately need to find a good live-in caregiver. The current one is ripping 
me off and doing absolutely nothing, including giving me food or any of my 
medication. IT'S HORRIBLE!!! Any recommendations?

[QUAD-L] Magitek

[Joan Anglin]

I just spent some time looking at Magitek.  I know nothing about this, and
their website does not show how it is used.  Would you mind explaining how
it works and how you utilize it?  I notice the website is woefully not up to
date.  J

I sometimes complain that my neck and shoulders hurt, and why does it have
to be the part that I feel that hurts-course the rest of my body might hurt
worse when I just can't feel it.  LOL

Joan

In the reno's very undecided spring weather-75 yesterday, 46 for Wednesday
and snow how great it is!

Re: [QUAD-L] Unidentified subject!

[Quadius]

I've been using my new Permobile rear wheel drive C350 for about seven weeks
now and I have finally gotten used to the Magitek enough to be able to drive
it at full speed in my community now. I don't try it on the sidewalks, but
I'd definitely use the roads (one of the perks to living in a very small
community). Right now my chair only does around 5 mph, but I can probably
turn it up some. I do, however, think the Magitek dampens down the ability
to drive to much faster than 6 or 7 mph.

BTW, it took me quite a while to get used to the magitek. In fact, I still
mess up at least a couple of times a day, but I'm getting better every day.
Switching over from the Peachtree was a lot more difficult than I thought it
would be, a chin control would have been a little too hard for me to use.
That's just me though, there are more people using chin controls than
magitek.

I didn't realize until a couple of weeks after I started using the new chair
that the magitek forces me to use a few different muscles in the shoulder
and neck then I was using with the Peachtree.
Q

On Sun, Apr 25, 2010 at 11:26 PM, Joan Anglin  wrote:

> That is why I chose to go with the chin controller mounted on the collar
> around my neck.  I really have excellent control and it cannot bounce away
> from me.  I was warned that the sip and puff would have problems in our
> Reno
> climate.  Plus I could not see myself bouncing around on a dirt road trying
> to hang on to something in my mouth.  :-)
> I don't usually go very fast-6-7 miles per hour is about my limit.  I often
> have one, two, or three grandchildren on or about my chair.
> The omega trac can have the hitch installed on the back so you can pull the
> garden cart.  We just hook that cart onto the back and off we go.  Great
> fun.  Joan
>
>

Re: [QUAD-L] new to group with lots of questions

[Quadius]

Welcome to the list Karen. I know there are many people here who can give
you better advice than me, so I'll let them chime in whenever they feel the
need.

As for a baclofen pump, I wouldn't go that route until you have exhausted
other spasticity medication. Almost all of them leave you somewhat fatigued,
but I have been able to function pretty well on a lot more spasticity
medications than you have mentioned. Talk to your doctor about all the other
options available. A baclofen pump should be a last resort. At least in my
opinion.

Quadius


On Mon, Apr 26, 2010 at 7:58 PM, karan alexander wrote:

> Hi, I was walking with my children 2 yrs ago & was struck by a teen who
> went off the road & struck me as I was bent over.  I am c4, 5 & 6 incomplete
> with feeling to the toes, just very altered sensation.  I was in the
> hospital for almost 1 yr.  I use a manual chair & to amazement, I have
> bladder sensation & bowels.  Although I have my share of spasms (I take 10mg
> ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with
> no added help.  Pre-accident was normally every day.  I have lots of
> tone/spasticity in L. leg & am considering baclofen pump. I only take 20mg
> now of baclofen which does nothing.  Any higher dose tires me & liver
> function tests go abnormal.  I am hooked on 25mcg fentanyl patches q48 hrs
> and still have pain.  I refuse to add more meds.  I do not ever sleep for
> more than an hr. every night.  Waking in the a.m. is horrible - never used
> to be.  I want to wean off fentanyl. Since I transfer to toilet with the
> transfer board (lots of work), I would love to find pants that help b/c I
> can't pull them up under me. This injury has caused our world to turn upside
> down & some days it is so overwhelming.  My kids keep me going & God's
> healing.  I feel like I'm the only mom in the world  going thru this.  At
> the time of the accident, I was 5wks from grad. college (RN). Since then, I
> graduated & passed boards.  Now what I LOVE nursing & it's not easy to
> find it from a w/c.  If I am assisted to stand, I can hold a walker for 5-10
> mins & a few steps - left leg hinders advancing it so dr. wants me to
> consider pump.  I have great use of my dominant hand & arm, left fingers are
> closed.  Anyway, I could go on forever, so thanks for listening.
>
>

[QUAD-L] new to group with lots of questions

[karan alexander]

Hi, I was walking with my children 2 yrs ago & was struck by a teen who 
went off the road & struck me as I was bent over.  I am c4, 5 & 6 
incomplete with feeling to the toes, just very altered sensation.  I was 
in the hospital for almost 1 yr.  I use a manual chair & to amazement, I 
have bladder sensation & bowels.  Although I have my share of spasms (I 
take 10mg ditropn b.i.d), leakages at night and my bowels respond every 
2-3 days with no added help.  Pre-accident was normally every day.  I 
have lots of tone/spasticity in L. leg & am considering baclofen pump. 
I only take 20mg now of baclofen which does nothing.  Any higher dose 
tires me & liver function tests go abnormal.  I am hooked on 25mcg 
fentanyl patches q48 hrs and still have pain.  I refuse to add more 
meds.  I do not ever sleep for more than an hr. every night.  Waking in 
the a.m. is horrible - never used to be.  I want to wean off fentanyl. 
Since I transfer to toilet with the transfer board (lots of work), I 
would love to find pants that help b/c I can't pull them up under me. 
This injury has caused our world to turn upside down & some days it is 
so overwhelming.  My kids keep me going & God's healing.  I feel like 
I'm the only mom in the world  going thru this.  At the time of the 
accident, I was 5wks from grad. college (RN). Since then, I graduated & 
passed boards.  Now what I LOVE nursing & it's not easy to find it 
from a w/c.  If I am assisted to stand, I can hold a walker for 5-10 
mins & a few steps - left leg hinders advancing it so dr. wants me to 
consider pump.  I have great use of my dominant hand & arm, left fingers 
are closed.  Anyway, I could go on forever, so thanks for listening.

RE: [QUAD-L] Quadriplegic needing employment ideas

[Aaron Mann]

The computer is a great leveler of the playing field of employment.
Personally I been occupied in the field of Information Technology.
Generally, I have done technical support and network administration.  But
this has included designing and managing network projects, managing teams of
people, and anything else that computer use presents.

 

I have always responded to similar questions and in conversations with any
person with a disability in this way: Do not let others limit your future
based on their presumptions of what you are capable of.  I've known people
with far worse disabilities than my own do far more than I would have ever
expected they were capable.

 

From: Ismael [mailto:ismael.cava...@att.net] 
Sent: Saturday, April 24, 2010 8:21 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Quadriplegic needing employment ideas

 

I have a friend who is quadriplegic and wants to know what types of jobs
that he can do through the computer.  Does anyone have any ideas?

 

Thank you.

Re: [QUAD-L] Pen Holder

[greg]

The best thing I ever found is the Wanchick Writer
It will hold a pen or pencil in a real natural position. Plus it is the best 
thing for holding forks and spoons. I just tape my fork on it. They are not 
cheap, but very good. I could never use the universal velcro cuff for anything 
but typing.

http://www.allegromedical.com/$28
http://www.amazon.com/$29

Greg

> Those of you that use pen holders, what kind do you use and where
> did/do you get it?
>
> Dan

[QUAD-L] Pen Holder

[Dan]

Those of you that use pen holders, what kind do you use and where 
did/do you get it?


Dan

Re: [QUAD-L]

[Eric W Rudd]

List-Unsubscribe: 

Eric W Rudd
c5sc...@gmail.com
  - Original Message - 
  From: kalin iordanov 
  To: quad-list@eskimo.com 
  Sent: Monday, April 26, 2010 4:21 AM
  Subject: [QUAD-L] 


  hi guys you,ve been very helpful and nice,but i would like to unsubscribe 
from the list now!
  thank you very much!  

Re: [QUAD-L]

[wheelchair]

Helpful n nice ??  Is that all?  Anyway, you have my  permission.  Eric 
will advise you how to do it.  He is also very  helpful and nice.
 
Best Wishes
 
 
In a message dated 4/26/2010 4:21:38 A.M. Central Daylight Time,  
mekall...@abv.bg writes:

hi guys  you,ve been very helpful and nice,but i would like to unsubscribe 
from the  list now!
thank you very much!   

[QUAD-L]

[kalin iordanov]

 hi guys you,ve been very helpful and nice,but i would like to unsubscribe from 
the list now!
thank you very much!