[AI] job portal for visually impaired persons

2023-12-06 Thread Saravanan K
Dear Friends,

Job is the base for each & every individual.
There are many job portals available for searching the job.
But, it is quite difficult to get shortlisted in most of the job portals.
Because most of them are not knowing about our skillset & mode of working.
To be more specific, They are unaware of screen readers & how we are
using them in our nature of work. So, I want to know is there any job
portal or consultancies specifically available for visually impaired
persons for searching job.
Share your valuable responses with us. Surely, it will help in our
community to get an appropriate job for us.

Thanks & regards.
Saravanan.K
+91 9916512402

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[AI] How to avail Bookshare library membership

2023-12-06 Thread Saravanan K
Dear Friends,

I hope all you are fine.
I want to know what are the free library membership for visually
impaired persons to upskill ourselves. I know only bookshare. And I
also want to get the membership in them. can any one provide the
procedures in getting membership in them.

Thanks & regards.
Saravanan.K
+91 9916512402

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[AI] Exciting News: NAB Delhi is a proud partner of Purple Fest 2024

2023-12-06 Thread NAB Delhi Helpline
Thrilled to share that NAB is a proud partner of [Purple Fest](
https://purplefest.goa.gov.in/), India's First-of-its-kind inclusive
celebration!  We're not just attending; we're fully participating and
supporting this amazing event from January 8 to 13. Let's come together and
celebrate inclusion with open hearts!  Join us at #PurpleFest and let the
festivities begin! #InclusionMatters #NABDelhi @purplefestgoa @NABDelhi

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[AI] YOUTUBE link of Empowering Diversity : Corporate Pavilion & Job Fair at Purple Fest 2024 by NHRDN

2023-12-06 Thread Radio Udaan
YOUTUBE link of Empowering Diversity : Corporate Pavilion & Job Fair
at Purple Fest 2024 by NHRDN

https://www.youtube.com/watch?v=vJL4hI3n6GQ_channel=RadioUdaan

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[AI] Mallica Joshi reports: Why 20% of EWS seats in Delhi’s schools remain vacant each year

2023-12-06 Thread avinash shahi
This year, 2.09L applications were received for 35k seats under the
25% quota at 2,001 pvt schools. Praveen Khanna
Each year, around 20% of seats allotted to students from economically
weaker sections and disadvantaged groups in private schools in Delhi
go vacant, sources said.

A day after the Delhi High Court directed that the cap on income for a
child to be eligible for the EWS quota be raised to Rs 5 lakh from the
existing Rs 1 lakh, experts said it is expected to lead to an increase
in applications under the quota, but a significant change in vacant
seats is not expected.

This year, around 2.09 lakh applications were received for 35,000
seats under the 25% quota at 2,001 private schools. Of these, around
6,500 are still vacant.
“It is the most popular 100 schools where there is a race to get in,
usually. In the remaining schools, the competition is not very high.
Many of these are budget private schools where the fee is between Rs
1,500 and Rs 2,500 per month. For them, in fact, the reimbursement
given by the government is crucial and they are happy to get
applications but do not find many takers. Some would pick a newer
government school over the private school they have been allotted in
the draw of lots,” a senior Delhi government official said.
But why do seats go unfilled? According to experts, the implementation
of the Right to Education Act (RTE), which guarantees 25% reservation
under the category, has proved to be difficult. Even the clause in the
land agreement of over 400 schools, which mandated reservation for the
EWS category before the Act was implemented, is patchy and mired in
litigation.
fore the Act was implemented, is patchy and mired in litigation.

Festive offer
“It was only after the implementation of RTE Act that the issue was
taken seriously. Schools, over the years, have reduced the number of
general category students they admit each year at the entry-level just
to escape their responsibility. They then admit EWS students based on
the intake of general category students. On top of that, schools
create many hurdles, sometimes asking for documents, address proof,
and Aadhaar cards that the parents may not have. All this is not
allowed but parents get demoralised and give up,” said another
officer, on condition of anonymity.

The reduction in the number of available seats is a fact. The number
was around 50,000 in 2018-19 and has reduced to 35,000 this year.
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Activists, meanwhile, welcomed the Delhi HC order but were unsure if
the situation would change on the ground.
“In the past few years, there has been a marked increase in school
fees and cost of uniforms and books. Most students who study in
private schools also
go to tuition to cope with their peers… The move to increase the cap
is good but the real question is whether the government will be able
to cater to this
group and how many children will ultimately get admission,” said
Saurabh Sharma, from JOSH, an organisation working with
underprivileged children.
(Inputs from Vidheesha Kuntamalla)
https://indianexpress.com/article/cities/delhi/why-20-of-ews-seats-in-delhis-schools-remain-vacant-each-year-9057638/

-- 
सादर/ Regards

अविनाश शाही/ Avinash Shahi
सहायक/ Assistant
मानव संसाधन प्रबंध विभाग/ Human Resource Management Department
भारतीय रिजर्व बैंक/ Reserve Bank of India
लखनऊ क्षेत्रीय कार्यालय/Lucknow RO
विस्तार/ Extension: 2232

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Re: [AI] Nobaflix is now available on iOS

2023-12-06 Thread sagar Verma
Really good to have the application on iOS. Now, at least I don't have to
rely on my Android device to enjoy the audio descriptive content.
Congratulations for the release.

On Wed, 6 Dec, 2023, 5:23 pm dipti prasad,  wrote:

> Good evening everyone
> This is Dipti Prasad founder NobaFlix. I am here to make a very special
> announcement that NoBaFlix the world's first and ONLY 100% accessible OTT
> platform for persons with visual impairment is now available on Apple
> appstore for our iOS users.
> Users have the freedom to choose if they wish to play video or only audio
> both with AD.
> We have 12 free movie and around 300 movies and webseries for a nominal
> subscription plans starting:
> 1 month rupees 69
> 6 month rupees 199
> 1 year rupees 349 only
> Users can even request for sponsorship for annual subscription.
> Humble request for NOT misusing this feature.
> Users can download upto 5 titles for offline viewing.
> Since this platform is restricted to user who are visually impaired, low
> vision or completely blind.
> User Verification is a must and one can easily upload their disability
> certificate or UDID for verification.
> If you dont wish to share your document then select the organization who
> knows you under get reference section
> Or simply ask for verification code.
>
> Feel free to reach me on:
> h...@nobaflix.com
> 9811787959
>
> Do share your feedback and request to movies that you want us to describe
> next.
> Kindly amplify this post for awareness among the community members.
> https://youtube.com/shorts/hhhgtumjLKE?si=tyJK44XBnX-OPwax
>
> Install NobaFlix NOW https://app.nobaflix.com/
>
> FOLLOW our social media handles and stay updated with new releases:
>
> https://youtube.com/@NobaFlix?si=kPRT1YEBADZ6zwWh
>
> https://www.facebook.com/profile.php?id=100092722689543
>
> https://www.instagram.com/nobaflix_/
>
> https://twitter.com/nobaflixott
>
> Click here to sponsor content creation or sponsor visually impaired users
> awaiting sponsorship to enjoy content in accessible format:
> https://www.nobaflix.com/sponsor.html
>
> Visit www.nobaflix.com for more details
>
> --
> Disclaimer:
> 1. Contents of the mails, factual, or otherwise, reflect the thinking of
> the person sending the mail and AI in no way relates itself to its veracity;
>
> 2. AI cannot be held liable for any commission/omission based on the mails
> sent through this mailing list..
>
>
> Search for old postings at:
> http://www.mail-archive.com/accessindia@accessindia.org.in/
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> 
> .
>

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[AI] Question

2023-12-06 Thread Ashutosh Singhal
When Uber Driver calls me TalkBack and Ringtone sound comes very low.
TalkBack sound comes as low as i can not navigate my phone untill ringtone
rings. This issue was not happening before with me and now it happens
mostly. I am using Samsung Galaxy A33. Do u also face same issue?

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[AI] Need some help regarding your did card

2023-12-06 Thread Iitaboina Rakeshraj
Dear all hope you all are good I want one help regarding disability card I
have that called but in that my date of birth was different so I want to
correct my date of birth I tried in online portal but it is showing that
you are other number was already exist
Can you please give any solution to correct this
Thank you all

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[AI] Fwd: Feedback

2023-12-06 Thread Ashutosh Singhal
Hi, as you know Microsoft Seeing AI App is also available now for Android
Users. This app works like: SaralX App, LookOut App and Insta Reader App
etc. I have given some feature requests to the Microsoft Seeing AI Team
which are very important for us. You can also share your feedback at
seein...@microsoft.com.
-- Forwarded message -
From: Ashutosh Singhal 
Date: Thu, 7 Dec 2023 at 07:27
Subject: Feedback
To: 


Dear sir/madam,
I am partially blind and I like your app very much but your app is lacking
in some very important features that's why I have the following feature
requests:
• Indian Languages support: Kindly provide Hindi, Marathi, Telugu,
Gujarati, Kannada and other Indian languages support in Short Text and
Document Reader. It is very disheartening that this app doesn't support any
single Indian language. Although India has 1.9 crore/19 million Blind
according to the World Health Organization.

• PDF and Image Share option: We cannot share our PDF and image with the
app and read it yet in the result we can not take full benefit of this app.

• Microsoft Voice Availability: Microsoft Windows One Core Voices and
Natural Voices are very good, but these excellent voices are not available
in the app. If these voices were available in the app, it would give a very
good experience with your app.
I hope you will implement my feature requests soon. Thank you.
Regards,
Ashutosh Singhal
My contact number is,
+91 8076798104
-
App version: 1.0.0
OS version: Tiramisu
App language: en
OS language: en
Device model: samsung SM-A336E
Accessibility features used: TalkBack (Samsung), Dark theme, Font Scale :
1.1, Display Scale : 450
-

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through this mailing list..


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Re: [AI] Nobaflix is now available on iOS

2023-12-06 Thread Aravind R
nice mam. yesterday, i enjoyed OMG2 with audio description. its great.

On 06/12/2023, dipti prasad  wrote:
> Good evening everyone
> This is Dipti Prasad founder NobaFlix. I am here to make a very special
> announcement that NoBaFlix the world's first and ONLY 100% accessible OTT
> platform for persons with visual impairment is now available on Apple
> appstore for our iOS users.
> Users have the freedom to choose if they wish to play video or only audio
> both with AD.
> We have 12 free movie and around 300 movies and webseries for a nominal
> subscription plans starting:
> 1 month rupees 69
> 6 month rupees 199
> 1 year rupees 349 only
> Users can even request for sponsorship for annual subscription.
> Humble request for NOT misusing this feature.
> Users can download upto 5 titles for offline viewing.
> Since this platform is restricted to user who are visually impaired, low
> vision or completely blind.
> User Verification is a must and one can easily upload their disability
> certificate or UDID for verification.
> If you dont wish to share your document then select the organization who
> knows you under get reference section
> Or simply ask for verification code.
>
> Feel free to reach me on:
> h...@nobaflix.com
> 9811787959
>
> Do share your feedback and request to movies that you want us to describe
> next.
> Kindly amplify this post for awareness among the community members.
> https://youtube.com/shorts/hhhgtumjLKE?si=tyJK44XBnX-OPwax
>
> Install NobaFlix NOW https://app.nobaflix.com/
>
> FOLLOW our social media handles and stay updated with new releases:
>
> https://youtube.com/@NobaFlix?si=kPRT1YEBADZ6zwWh
>
> https://www.facebook.com/profile.php?id=100092722689543
>
> https://www.instagram.com/nobaflix_/
>
> https://twitter.com/nobaflixott
>
> Click here to sponsor content creation or sponsor visually impaired users
> awaiting sponsorship to enjoy content in accessible format:
> https://www.nobaflix.com/sponsor.html
>
> Visit www.nobaflix.com for more details
>
> --
> Disclaimer:
> 1. Contents of the mails, factual, or otherwise, reflect the thinking of the
> person sending the mail and AI in no way relates itself to its veracity;
>
> 2. AI cannot be held liable for any commission/omission based on the mails
> sent through this mailing list..
>
>
> Search for old postings at:
> http://www.mail-archive.com/accessindia@accessindia.org.in/
> ---
> You received this message because you are subscribed to the Google Groups
> "AccessIndia" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to accessindia+unsubscr...@accessindia.org.in.
> To view this discussion on the web visit
> https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CANCaO%2BG0BGq46ATip34HZi_ecoAbWL9FzXnYQ%3DEC5DxWm1gEDA%40mail.gmail.com.
>


-- 


-- 
-- 
nothing is difficult unless you make it appear so.

r. aravind,

manager
Department of sales
bank of baroda specialised mortgage store, Chennai.
mobile no: +91 9940369593,
email id : aravind_...@yahoo.com, aravind.andhrab...@gmail.com.
aravind.rajend...@bankofbaroda.co.in.

-- 
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person sending the mail and AI in no way relates itself to its veracity;

2. AI cannot be held liable for any commission/omission based on the mails sent 
through this mailing list..


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Re: [AI] Registration is now free for delegates at the International Purple Fest, Goa - 2024

2023-12-06 Thread Mohib Anwar Rafay
Any information on the accommodation? Do we have to arrange the
laudging and food at our own?

On 12/6/23, Pranav Lal  wrote:
> Hi Sunil,
>
>
>
> Thanks, the activation e-mail had been flagged as spam by my e-mail
> provider. I have taught it better.
>
>
>
> What is the login link? The primary home page does not have it. I see a
> bunch of videos, an image gallery and social media links as well as links to
> register for different events.
>
>
>
> I am confused.
>
> Pranav
>
>
>
> From: accessindia@accessindia.org.in  On
> Behalf Of Sunil.j Ignatius
> Sent: Tuesday, December 5, 2023 10:07 PM
> To: accessindia@accessindia.org.in
> Subject: Re: [AI] Registration is now free for delegates at the
> International Purple Fest, Goa - 2024
>
>
>
> Hai pranab, did you receive the activation email? If so, click the link and
> your account will be activated.
>
> Thank you.
>
>
>
> On Tue, 5 Dec, 2023, 8:28 pm Pranav Lal,   > wrote:
>
> Hi all,
>
>
>
> I have registered for the purple fest. However, I am confused by the site.
>
>
>
> I have entered the registration information and have tried to login without
> success. I am unable to see any error message on the screen.
>
>
>
> However, when I try to reregister, I am told that my e-mail address is
> already taken. This means that my registration has worked.
>
>
>
> Pranav
>
>
>
> From: accessindia@accessindia.org.in 
>  mailto:accessindia@accessindia.org.in> >
> On Behalf Of Prashant Naik
> Sent: Friday, November 17, 2023 8:40 AM
> To: accessindia   >
> Subject: [AI] Registration is now free for delegates at the International
> Purple Fest, Goa - 2024
>
>
>
> Hey Purple Fam,
>
>
>
> *Exciting Update! Registration is now FREE for delegates at the
> International Purple Fest, Goa - 2024!*
>
>
>
> Don't miss out on the fun from 8th - 13th January, 2024  in Panaji-Goa.
>
>
>
> Register Now at *purplefest.goa.gov.in  *
>
>
>
> *Stay in the loop with our socials for awesome updates:*
>
>
>
> *Instagram:* @purplefestgoa
>
> *Twitter:* @purplefestgoa
>
> *Facebook:* @purplefestgoa
>
> *LinkedIn:* @purplefestgoa
>
>
>
> Get ready for an unforgettable experience!
>
> --
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[AI] Nobaflix is now available on iOS

2023-12-06 Thread dipti prasad
Good evening everyone
This is Dipti Prasad founder NobaFlix. I am here to make a very special
announcement that NoBaFlix the world's first and ONLY 100% accessible OTT
platform for persons with visual impairment is now available on Apple
appstore for our iOS users.
Users have the freedom to choose if they wish to play video or only audio
both with AD.
We have 12 free movie and around 300 movies and webseries for a nominal
subscription plans starting:
1 month rupees 69
6 month rupees 199
1 year rupees 349 only
Users can even request for sponsorship for annual subscription.
Humble request for NOT misusing this feature.
Users can download upto 5 titles for offline viewing.
Since this platform is restricted to user who are visually impaired, low
vision or completely blind.
User Verification is a must and one can easily upload their disability
certificate or UDID for verification.
If you dont wish to share your document then select the organization who
knows you under get reference section
Or simply ask for verification code.

Feel free to reach me on:
h...@nobaflix.com
9811787959

Do share your feedback and request to movies that you want us to describe
next.
Kindly amplify this post for awareness among the community members.
https://youtube.com/shorts/hhhgtumjLKE?si=tyJK44XBnX-OPwax

Install NobaFlix NOW https://app.nobaflix.com/

FOLLOW our social media handles and stay updated with new releases:

https://youtube.com/@NobaFlix?si=kPRT1YEBADZ6zwWh

https://www.facebook.com/profile.php?id=100092722689543

https://www.instagram.com/nobaflix_/

https://twitter.com/nobaflixott

Click here to sponsor content creation or sponsor visually impaired users
awaiting sponsorship to enjoy content in accessible format:
https://www.nobaflix.com/sponsor.html

Visit www.nobaflix.com for more details

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[AI]

2023-12-06 Thread Tirupati Gaikwad


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Re: [AI] Introducing Health Insurance for Persons with Disabilities from STAR Health - Special Care Gold

2023-12-06 Thread Nishant Rana
Hi,
 Honestly, this policy is kinda sad and not really worth having. probably
just a sop, nothing more.
 daily room charges are covered only up to 1% and or 2% if ICU of the
insured amount per day, the claims are max up to 50? your existing
disability and conditions related to it are not covered before 2 years
(could be wrong as I have given irt a rough read), worse of all there's a
co payment of 20% minimum, that is assuming that your insurer would always
be willing to pay 80% of the bill without any quibbles (no, they won't.)
 so in essence, not worth having at all.
in an ideal world, we would be given access to the same policies as our
sighted counterparts, barring the disability and conditions relating to it,
which could perhaps have some additional premium to cover such things as
well, but then pigs certainly can not fly, and so here we are stuck with a
warm pile of bull excreta in the name of health policy.
Have a lovely day ahead,

On Mon, 4 Dec 2023 at 05:12, Pranav Lal  wrote:

> Hi all,
>
>
>
> Are there better plans available in the market? If I am reading the plan
> correctly, it covers only 1 to 2% of the actual cost.
>
>
>
> Pranav
>
> *From:* accessindia@accessindia.org.in  *On
> Behalf Of *Prashant Naik
> *Sent:* Sunday, December 3, 2023 2:30 PM
> *To:* accessindia 
> *Subject:* [AI] Introducing Health Insurance for Persons with
> Disabilities from STAR Health - Special Care Gold
>
>
>
> Dear list
>
> For your information, I am shing this news I read today.
>
> On the occasion of IDPD 2023, the Star Health And Allied Insurance Company
> Limited (IRDAI UIN: SHAHLIP23182V012223) introduced a dedicated plan
> designed to offer financial protection and assistance to persons with
> disability.
> Visit the below link to explore its features -
> https://www.starhealth.in/health-insurance/special-care-gold/
>
> Thanks and regards
> Prashant Naik
>
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***
“The most important thing in life is not the triumph but the struggle. The
essential thing is not to have conquered but to have fought well.”

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[AI] Require Computer instructor to work in snehadeep Trust for the disabled Bangalore

2023-12-06 Thread 'PAUL MUDDHA' via AccessIndia

Dear all,
Request you to spread a word to identify a good computer instructor for 
Snehadeep trust Bangalore.

We got few trainers who are good, however for teaching purpose, the trust 
requires few trainers with a bit experience in teaching.

Accomodation and food if needed would be provided to the trainer.
The trainer must have good communicational skills and teaching capacity; to 
handle students in the right direction; prepare them for employment and guide 
the students to complete their homework.
The trainer must be well versed with all computer skills and possess knowledge 
to right from basics and if possible Html.

Salary based on experience and skills possessed.

Contact Snehadeep trust
Ph: 918025801069
mob: 9449021997 /9972077673
email: snehadeeptr...@gmail.com
h...@snehadeep.org


DR.PAUL MUDDHA
Divisinal Manager
Marketing & Public Relation Wing
2nd Cross Ho Annex Canara Bank Gandhinagar Banglore-560009
PH NO : 080-22207594

[Logo]  [Logo]
"Azadi Ka Amrit Mahotsav"
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for the addressee, and any disclosure of this information is strictly 
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please inform the sender immediately and delete this mail. Any information 
expressed in this mail does not necessarily reflect the views of CANARA BANK. 
Please note that any views or opinions presented in this email are solely those 
of the author and do not necessarily represent those of the Bank. The recipient 
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[AI] How to set location of window 7 operating system.

2023-12-06 Thread DR MD Muzamil Hussain
Blessings.
Kindly guide me how to set location of my old laptop as am trying but
not succeed.
when I am opening crome  the location is not exact where am staying.
Thanks.

-- 
DR MD Muzamil Hussain
-Eyeway Helpdesk Executive/counselor
Partner Organization
*HELP Foundation J & K* A: 50 Tulsi Bagh, Behind Amar Singh College,
Srinagar Jammu and Kashmir
 India 190008.

. P: +91-194-2310256

,
Toll free No, 18005320469.
Email Id : eyewayhelpd...@gmail.com
Website: www.eyeway.org.in
You can stay connected with us on
Eyeway WhatsApp no: -9968329329

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[AI] NyTimes Front Page report: Desperate Families Search for Affordable Home Care

2023-12-06 Thread avinash shahi
It’s a good day when Frank Lee, a retired chef, can slip out to the
hardware store, fairly confident that his wife, Robin, is in the hands
of reliable help. He spends nearly every hour of every day anxiously
overseeing her care at their home on the Isle of Palms, a barrier
island near Charleston, S.C.

Ms. Lee, 67, has had dementia for about a decade, but the couple was
able to take overseas trips and enjoy their marriage of some 40 years
until three years ago, when she grew more agitated, prone to sudden
outbursts and could no longer explain what she needed or wanted. He
struggled to care for her largely on his own.

“As Mom’s condition got more difficult to navigate, he was just
handling it,” said Jesse Lee, the youngest of the couple’s three adult
children. “It was getting harder and harder.”

“Something had to change, or they would both perish.”

Frank Lee’s search for trustworthy home health aides — an experience
that millions of American families face — has often been exhausting
and infuriating, but he has persisted. He didn’t entirely trust the
care his wife would get in an assisted-living facility. Last August,
when a respite program paid for her brief stay in one so Mr. Lee, 69,
could take a trip to the mountains, she fell and fractured her sacrum,
the bone that connects the spine to the pelvis.
There is precious little assistance from the government for families
who need a home health aide unless they are poor. The people working
in these jobs are often woefully underpaid and unprepared to help a
frail, elderly person with dementia to bathe and use the bathroom, or
to defuse an angry outburst.

Usually, it is family that steps into the breach — grown children who
cobble together a fragile chain of visitors to help an ailing father;
a middle-aged daughter who returns to her childhood bedroom; a
son-in-law working from home who keeps a watchful eye on a confused
parent; a wife who can barely manage herself looking after a faltering
husband.

Most people were cared for by family, not professionals
Partners and daughters were the most common caregivers for people who
needed help with daily activities.


Note: For those 65 and older who needed and received long-term care in
2020 and 2021.Source: New York Times/KFF Health News analysis of
Health and Retirement Study data for 2020 and 2021By Albert Sun and
Holly K. Hacker
Mr. Lee finally found two aides on his own, with no help from an
agency. Using the proceeds from the sale of his stake in a group of
restaurants, including the popular Charleston bistro Slightly North of
Broad, he pays them the going rate of about $30 an hour. Between his
wife’s care and medical expenses, he estimates that he’s spending
between $80,000 and $100,000 a year.

“Who the hell can afford this?” he asked. “There’s no relief for
families unless they have great wealth or see their wealth sucked
away.” He worries that he will run out of money and be forced to sell
their home of more than three decades. “Funds aren’t unlimited,” he
said.
Ms. Lee seen from behind, standing in a hallway with two open doors on
either side of her.
Mr. Lee says his wife barely resembles the woman he married, the one
who loved hiking, skiing and gardening, who started a neighborhood
preschool while raising their three children.
“It was the whole year of going through different caregivers,” his son
Jesse said.

Finally, Mr. Lee found two to help. One of them, Ronnie Smalls, has
more than a dozen years of experience and is trained in dementia care.
She has developed a rapport with Ms. Lee, who seems reassured by a
quick touch. “We have a really good bond,” Ms. Smalls said. “I know
her language, her expression.”

One day at the Lees’ cozy one-story house, decorated with furniture
made by Ms. Lee, and with a yard overflowing with greenery, Ms. Smalls
fed Ms. Lee lunch at the kitchen table with her husband and daughter.
Ms. Lee seemed to enjoy the company, murmuring in response to the
conversation.

At other times, she seemed oblivious to the people around her. She can
no longer walk on her own. Two people are often needed to help her to
get up from a chair or to go to the bathroom, transitions she often
finds upsetting. A day without an aide — out because of illness or a
family emergency — frays the tenuous links that hold the couple’s life
together.
Mr. Lee says his wife barely resembles the woman he married, the one
who loved hiking, skiing and gardening, and who started a neighborhood
preschool while raising their three children. A voracious reader, she
is now largely silent, staring into space.
The prognosis is bleak, with doctors offering little to hang onto.
“What’s the end game look like?” Mr. Lee asks, wondering if it would
be better if his wife had the right to die rather than slowly
disappear before his eyes. “As she disintegrates, I disintegrate,” he
said. She recently qualified for hospice care, which will involve
weekly visits from a nurse and certified nursing assistant paid under
Medicare.