[CMLHope] Thank You Dane
Thank You Dane for getting me back into the group:) Kay --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: To Dane
Thanks Avis! Here ya go: http://www.fototime.com/D54456CDB78B6E5/orig.jpg http://www.fototime.com/0363D71B1389CF5/orig.jpg http://www.fototime.com/976581DFDDB9EBA/orig.jpg --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: To Dane
hello dane u are looking great and the kids are something to be proud off. keep on the good work best regards giora - Original Message - From: "Dane" <[EMAIL PROTECTED]> To: "CMLHope" Sent: Saturday, July 08, 2006 2:55 PM Subject: [CMLHope] Re: To Dane > > Thanks Avis! Here ya go: > > http://www.fototime.com/D54456CDB78B6E5/orig.jpg > > http://www.fototime.com/0363D71B1389CF5/orig.jpg > > http://www.fototime.com/976581DFDDB9EBA/orig.jpg > > > > > --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: To Dane
Those are great pics Dane.RobOn 7/8/06, Dane <[EMAIL PROTECTED]> wrote: Thanks Avis! Here ya go:http://www.fototime.com/D54456CDB78B6E5/orig.jpghttp://www.fototime.com/0363D71B1389CF5/orig.jpg http://www.fototime.com/976581DFDDB9EBA/orig.jpg http://neworleansemail.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] CML Clinical Trials
1) Novartis Oncology is conducting a study to determine the safety and efficacy of an investigational drug that is being tested in patients with imatinib-resistant or intolerant chronic myeloid leukemia in blast crisis, accelerated phase or chronic phase.. This study is being conducted in: - Beech Grove, IN http://www.centerwatch.com/patient/studies/stu91181.html - Durham, NC http://www.centerwatch.com/patient/studies/stu91179.html - Hackensack, NJ http://www.centerwatch.com/patient/studies/stu91180.html - Pittsburgh, PA http://www.centerwatch.com/patient/studies/stu91182.html 2) Novartis Oncology is conducting a study to evaluate the safety and effectiveness of a higher dosage of imatinib (an FDA approved drug for CML) in people who have chronic myeloid leukemia (CML) in the chronic phase.. This study is being conducted in: - Denver, CO http://www.centerwatch.com/patient/studies/stu91197.html - Melbourne, FL http://www.centerwatch.com/patient/studies/stu91195.html - Panama City, FL http://www.centerwatch.com/patient/studies/stu91198.html 3) Novartis Oncology is conducting a study to determine the safety and efficacy of an investigational drug that is being tested in patients with imatinib-resistant or intolerant chronic myeloid leukemia in blast crisis, accelerated phase or chronic phase.. This study is being conducted in: - Orlando, FL http://www.centerwatch.com/patient/studies/stu91184.html - Louisville, KY http://www.centerwatch.com/patient/studies/stu91183.html 4) Novartis Oncology is conducting a study to evaluate the safety and effectiveness of a higher dosage of imatinib (an FDA approved drug for CML) in people who have chronic myeloid leukemia (CML) in the chronic phase.. This study is being conducted in: - Farmington, NM http://www.centerwatch.com/patient/studies/stu91196.html --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Hi I'm New and have a couple of questions
Hi I'm Steve and my wife Vanessa was diagnosed with CML 4 weeks ago. I found CML Hope on the net last night and it looks like a terrific support network. Vanessa's WBC count was 250,000 she was treated with Interferon and once the Philadelphia Chromozone was detected put straight onto 600Mg of Gleevec. Her WBC last week was at 5200 which was terrific, but now she is down to 2,000. Has anyone else experienced this with Gleevec that the WBC drops below the normal levels before normalising and how long did it take to normalise? The other question is around doseage of Gleevec. I gather there are some proponents of 400Mg to start with, but Vanessa was put straight onto 600Mg. Is this common? Let me know thanks Steve --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Hi I'm New and have a couple of questions
Hi Steve I am sorry to hear about Vanessa's diagnosis, you will find the support groups really wonderful! My 22 year old son was diagnosed with CML in March this year with WBC of 179000. He went onto Allopurinol and then 400mg gleevec within days. Now, his WBC is around the 3000 and has been hovering around there for over two months now. I dont have the answers to your questions other than to say that Steven is doing great although the WBC is slightly below normal. From what I read, low WBC on gleevec is not uncommon. I am sure that others will answer your questions much more thoroughly than I possibly could do. Take care Steve and all the best to you both Love and Light Annie (mom of Steven) www.roadrunnersusa.com www.livingwithcml.blogspot.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Hi I'm New and have a couple of questions
Welcome to the group.The higher doses of Gleevec have had good results. What percentage Philidelphia did she have?RobOn 7/8/06, Priesty <[EMAIL PROTECTED]> wrote: HiI'm Steve and my wife Vanessa was diagnosed with CML 4 weeks ago. Ifound CML Hope on the net last night and it looks like a terrificsupport network. Vanessa's WBC count was 250,000 she was treated with Interferon and once the Philadelphia Chromozone was detected putstraight onto 600Mg of Gleevec. Her WBC last week was at 5200 which wasterrific, but now she is down to 2,000.Has anyone else experienced this with Gleevec that the WBC drops below the normal levels before normalising and how long did it take tonormalise?The other question is around doseage of Gleevec. I gather there aresome proponents of 400Mg to start with, but Vanessa was put straight onto 600Mg. Is this common?Let me knowthanksStevehttp://neworleansemail.com --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Hi I'm New and have a couple of questions
Steve, I was diagnosed with CML in 1998 and have been on Gleevec since Dec. 1999. It is normal for white count to be below normal and also for platelets to drop. There are other side effects from the Gleevec that different people discover in different degrees, but for me, they have been manageable. I'm sorry for Vanessa's diagnosis, but CML is one of the cancers that is being "managed" and there is great hope for a long life. I started on a dose of 400 mg, but it was increased to 600 mg and I have been on that dose for a long time. I just retired from being a full time high school math teacher this year. Let me know if I can be of help any way. Feel free to write me personally if I can help answer questions. Sincerely, Gay Bratton -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Priesty Sent: Saturday, July 08, 2006 8:15 PM To: CMLHope Subject: [CMLHope] Hi I'm New and have a couple of questions Hi I'm Steve and my wife Vanessa was diagnosed with CML 4 weeks ago. I found CML Hope on the net last night and it looks like a terrific support network. Vanessa's WBC count was 250,000 she was treated with Interferon and once the Philadelphia Chromozone was detected put straight onto 600Mg of Gleevec. Her WBC last week was at 5200 which was terrific, but now she is down to 2,000. Has anyone else experienced this with Gleevec that the WBC drops below the normal levels before normalising and how long did it take to normalise? The other question is around doseage of Gleevec. I gather there are some proponents of 400Mg to start with, but Vanessa was put straight onto 600Mg. Is this common? Let me know thanks Steve --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Hi I'm New and have a couple of questions
Hi Steve,I'm sorry to hear about Vaessa. I was diagnosed in Feb., 2003. To give you some simple answers. Yes, it is common to begin with 600 or 800 mg of Gleevec. The theory is that the quicker a patient achieves remission, the better the long term outcome. Most people take, on average, 18 months to reach this point. Yes, it is also common for the WBC counts to dip when first starting Gleevec and then rebound, but only slightly. My WBC bounces between 3,000 and 4,000 regularly. Some people get "normal" counts. What is really important is the "Absolute Neutrophil Count" or ANC. Vanessa's oncologist should follow this as it is determined by a formula using the WBC and Neutrophil percentage. I'm sure he will not let her WBC drop below 1,000. I hope this helps.Richard TroxelAge 62, LA Calif. dx 2/2003 pcru 9/2004 --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
