Gleevec quit working for after 5 years. Sprycel put me in remission. Good luck. How many Meg's are u on Jeanie
Sent from my iPhone On Mar 14, 2013, at 10:33 PM, Penny <boogie_woo...@yahoo.com> wrote: > Hi, > > I am Penny....diag. 2002 my story is very close to yours. This year > Gleevec stopped working for me and > I am back to being extremely tired. My onc has put me on Sprycel we shall > see how that works. > I hope you have continued success with Gleevec. > > > > On Sunday, March 10, 2013 6:42:53 PM UTC-6, myli...@yahoo.ca wrote: >> Hi there, >> >> I want to thank everyone for all the kind responses and helpful suggestions. >> I can't tell you how much it means to hear that there is a light at the end >> of the tunnel, I just need to be patient to get there. I will absolutely >> try the dial soap trick and the tonic water to help with the cramps. For >> cramps through the day, would it work to carry it in my pocket? >> >> Marty, my name is Mylissa...didn't mean to be a mystery person - lol. I >> live in Markham, Ontario, Canada. I am so glad I found this group...I don't >> know anyone else with CML and my onc is not open to a lot of questions and >> has told me not to research CML on the internet. Think he's trying to keep >> me from getting scared. So it means a lot to hear from all of you. It's >> reassuring to know that what I am going through is part of the experience >> and not some new added problem. >> >> Have to say, this has been a frightening experience but things are beginning >> to look up, with white cells normal now. I just had cytogenetic testing >> done last Tuesday and should have the results back from that by the end of >> March. In the meantime, in speaking to the onc about the bone pain, he >> thought I should try one week at 200mg, and then try 300mg to see if I >> tolerate that better. I sure hope so - one of the reasons I wouldn't want >> to change from Gleevec is that the patent expires in April 2013 in >> Canada.....which will hopefully make it more affordable. This is a big >> issue for me, as I was recently terminated at work, while I've been off on >> sick leave - so no more benefits once the notice period is over. I'm sure >> that I will be denied benefits at any new job I get as this will then be a >> "pre-existing" condition. So affordable meds would definitely be good! I >> never knew medication could be so expensive! I keep telling myself I am not >> allowed to throw up, because it would be like throwing up $130...lol. >> >> Thanks again to all who replied. Pat and Michele - I will have a read >> through the links you sent me tonight; thanks for the info. >> >> 18's back to you Marty. >> >> Mylissa > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
