Hi Jeanie,
With all that you have gone through I'm glad to hear that your still doing
well.
18's
Marty
On Sat, Mar 16, 2013 at 5:22 PM, wrote:
> **
> Hi and no, I never had the left side pain before CML but I have had right
> side pain and it became worse when I went on Tasigna. They did MRI but
> couldn't find anything.
> I had gall bladder surgery years ago and thingk that right side pain could
> be connected.
> My first onc put me in the hospital twice to have my blood cleaned; I
> don't think it was necessary. He finally put me on Sprycel while I was in
> the hospital because nothing was bringing my counts down.
> I was in the process of changing to Moffitt when I got sick, and so he was
> the one who had my care at the time.
> Thanks Marty,
> Jeanie<3
>
> In a message dated 3/14/2013 9:13:24 P.M. Eastern Daylight Time,
> wa2...@gmail.com writes:
>
> Hi Jeanie,
>
> To my knowledge I have only heard about a half dozen people going through
> that process.
>
> Since your left side over the years always gave you some pain perhaps that
> masked the problem when you first came down with CML???
>
> Take care of yourself, and stay in touch.
>
> 18's
>
> Marty
>
> On Thu, Mar 14, 2013 at 5:52 PM, wrote:
>
>> Hi Marty good to hear from you. I remember the nurse who was running
>> the blood cleaning machine pointing out all the white blood cells being
>> cleaned out of my blood. I have it all written down in my faith journal
>> that I started
>> When I first got sick.
>> My spleen was never a problem. But I do remember pain in my left side
>> over the years
>> I was wondering how many patients were hospitalized and their blood
>> cleansed when first dx.
>> More later. Jeanie
>>
>> Sent from my iPhone
>>
>> On Mar 13, 2013, at 11:12 PM, Marty Gartenberg wrote:
>>
>> Hi Jeanie,
>>
>> I would like to shake your son's hand for insisting that you go see a
>> doctor when you started having all of those problems. Sometimes we just
>> don't want to believe that something may be wrong with us and we just
>> procrastinate. Your not the only one because when I first knew something
>> was wrong I did the same. Not wanting to go get checked out.
>>
>> By the way, you mentioned that your WBC and platelets were in the
>> millions when you were first checked out. I don't think that your WBC was
>> in the millions but rather in the hundreds of thousands. Your platelets on
>> the other hand were probably in the millions. Was your spleen enlarged or
>> did you have any pain from your spleen?
>>
>> Once someone learns that they have CML or any other cancer then their
>> life does change forever. It is what we choose to do with out lives that
>> really matters. From what I can see about you is that your handling this
>> very well, and I applaud you for trying to help others.
>>
>> 18's Jeanie,
>>
>> Marty
>>
>> On Wed, Mar 13, 2013 at 4:31 PM, wrote:
>>
>>> **
>>> Hi all,
>>> Just to keep the newbies updated as to what to expect on Gleevec and
>>> other Meds.
>>> I started was dx in Jan 2004 after flying home from a trip. I was so
>>> tired I couldn't hardly put one foot in front of the other, and as walking
>>> is my daily exercise, I started to complain to my son. He said for me to
>>> go to the doctor; well I didn't want to but went to my PCD and he insisted,
>>> even though I said I really didn't need it. I had never had much sickness
>>> in my life, and really didn't think it was anything serious. I had noticed
>>> a rapid heart beat and could feel my heart beating after exertion for while
>>> at rest for a while, but was trying to ignore it.
>>>
>>> The next day my PCD calls and tells me my WBC and platelets are in the
>>> millions; he had already gotten me a doctor's appointment with a local
>>> oncologist for the evening. I still didn't want to go, but my son insisted.
>>>
>>> From that first doctor's appointment to now, my life was changed
>>> forever.
>>>
>>> At that time my oncologist had a blood lab in his office so he took a
>>> blood sample, and without any further testing, he told me he had good news
>>> and bad news. The bad news was that I probably had leukemia; the good news
>>> was that they had put a drug called Gleevec on the market, and that it
>>> would probably save my life.
>>>
>>> As I said, my platelets and WBC were in the millions. He immediately
>>> put me in the hospital as he said I could have a stroke from the high
>>> platelets.
>>>
>>> I was hooked up to a blood cleaning machine, and had my blood cleaned
>>> for 4 days straight, however it didn't do much good. They were giving me
>>> huge doses of Hydroxyurea along with a few other drugs. As I had never
>>> taken many pills, I ask the nurse what they were and the side effect. She
>>> didn't know but went to look it up. It seems the pills were huge to me and
>>> there were a lot of them.
>>>
>>> In the meantime I had to get the Gleevec okd by my insurance and there
>>> was a $2000 copay.
>>> more later--
>>> Blessings Jean
