Re: [CMLHope] Skip Duffie
Hi Beth, I just have one thing to say in answer to your post. You wrote "Isolation and fear are powerful tools" Indeed they are, but do you want to know a much more powerful tool? It's your Mind. 18's, Marty On Fri, Apr 19, 2013 at 1:28 PM, wrote: > Dear Skip, Marty, Millie, and all those warriors who are struggling right > now. I want to pass along a great big hug filled with hope, and light, and > healing and positive energy. We need each other during the rough times and > I am so glad we have one another. I too have been struggling mightily, but > find the one thing that helps, that I keep on working on, is trusting in, > believing in, knowing that we can live and love well inspite of and perhaps > in some cases because of our illness and how it informs our lives. > Isolation and fear are powerful tools that push against us. Community and > holding hope and faith for ourselves, our bodies and our spirits, here, > united together, will serve and guide us well. I read every day and think > of all my fellow warriors out there, those who write, and those who read, > and send a prayer to all for peace of mind body and spirit. > I tried bosutinib and had horrible side effects at a moderate dose, > muscle rigidity all over the body, elevated cpk, emotional distress... > after 8 weeks, the BCR showed it had not done anything for the cancer, the > cancer had actually grown threw it and I lost two logs. So now back on > sprycel at 50 and working on getting back into remission. As I had to go > off sprycel in December because of toxicity, it's a scary time. But I > remain positive and am researching alternative and complementary options to > aid with the toxiicity. If anyone has any suggestions about muscle > spasticity, please let me know. I can handle the rashes, migraines, muscle > wasting/fatigue/ weakness, But this one is new, ongoing and the greatest > challenge yet. > > thanks for yoru help. > > Beth > > -Original Message- > From: gene and guy Larcher > To: cmlhope > Sent: Fri, Apr 19, 2013 10:49 am > Subject: [CMLHope] Skip Duffie > > Dear Skip: > > So good to hear from you after quite some time. > > Very sorry to hear you have been so poorly but the good news is that you > are getting better. > > You, along with Marty, have given tremendous hope to the rest of us and > shown how to bear long illness with good spirits. > > Dear old warrior - we wish you the very best and hope to hear much more > from you in the future. > > Guy > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Great advice, Marty! Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: Marty Gartenberg To: cmlhope@googlegroups.com Sent: Friday, April 19, 2013 9:30:59 AM Subject: Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon Hi Millie, You just said something that shows me what type of a person you really are. You said that you are working to make yourself feel better. Maybe not in those exact words but the same idea. I would like to send you something that was given to me when I had my bone marrow transplant. It was pasted on the outside of the plastic bubble I had to live in for many months. I read it every day and it gave me insperation to continue along my journey. Please see below... I hope that your tests come out well for you and hopefully they may find a solution to your problem. You also have something that is very precious and that is how your mind works. I always say that when you have Leukemia it is not only a disease of the body but the mind as well. You seem to be controling your disease with your mind helping you along. I'm not saying that you can cure yourself with your mind but only that you yourself make it a lot eiser to deal with it because your a very strong willled person. So, I know that this is also meant for you as well... 18's Marty EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. OUR BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote: >Hi Marty.It is good to see you one line. I will keep you in my prayers and pray that you hear something about a transplant soon. You are always such an inspiration to all of us. No one keeps on top of things like you do. I've been feeling sick for months now, and now they're going to send me to a specialist and perhaps he can figure it all out. I am working hard on feeling good. We all have down times, but I don't give up. You take care. >18's to you and yours, >Millie -- >-- >[CMLHope] >A support group of http://cmlhope.com/ >- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to CMLHope@googlegroups.com >To unsubscribe from this group, send email to >cmlhope-unsubscr...@googlegroups.com >For more options, visit this group at http://groups.google.com/group/CMLHope >--- >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To unsubscribe from this group and stop receiving emails from it, send an >email to mailto:cmlhope%2bunsubscr...@googlegroups.com. >For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Skip Duffie
Dear Skip, Marty, Millie, and all those warriors who are struggling right now. I want to pass along a great big hug filled with hope, and light, and healing and positive energy. We need each other during the rough times and I am so glad we have one another. I too have been struggling mightily, but find the one thing that helps, that I keep on working on, is trusting in, believing in, knowing that we can live and love well inspite of and perhaps in some cases because of our illness and how it informs our lives. Isolation and fear are powerful tools that push against us. Community and holding hope and faith for ourselves, our bodies and our spirits, here, united together, will serve and guide us well. I read every day and think of all my fellow warriors out there, those who write, and those who read, and send a prayer to all for peace of mind body and spirit. I tried bosutinib and had horrible side effects at a moderate dose, muscle rigidity all over the body, elevated cpk, emotional distress... after 8 weeks, the BCR showed it had not done anything for the cancer, the cancer had actually grown threw it and I lost two logs. So now back on sprycel at 50 and working on getting back into remission. As I had to go off sprycel in December because of toxicity, it's a scary time. But I remain positive and am researching alternative and complementary options to aid with the toxiicity. If anyone has any suggestions about muscle spasticity, please let me know. I can handle the rashes, migraines, muscle wasting/fatigue/ weakness, But this one is new, ongoing and the greatest challenge yet. thanks for yoru help. Beth -Original Message- From: gene and guy Larcher To: cmlhope Sent: Fri, Apr 19, 2013 10:49 am Subject: [CMLHope] Skip Duffie Dear Skip: So good to hear from you after quite some time. Very sorry to hear you have been so poorly but the good news is that you are getting better. You, along with Marty, have given tremendous hope to the rest of us and shown how to bear long illness with good spirits. Dear old warrior - we wish you the very best and hope to hear much more from you in the future. Guy -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Skip Duffie
Dear Skip: So good to hear from you after quite some time. Very sorry to hear you have been so poorly but the good news is that you are getting better. You, along with Marty, have given tremendous hope to the rest of us and shown how to bear long illness with good spirits. Dear old warrior - we wish you the very best and hope to hear much more from you in the future. Guy -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Millie, You just said something that shows me what type of a person you really are. You said that you are working to make yourself feel better. Maybe not in those exact words but the same idea. I would like to send you something that was given to me when I had my bone marrow transplant. It was pasted on the outside of the plastic bubble I had to live in for many months. I read it every day and it gave me insperation to continue along my journey. Please see below... I hope that your tests come out well for you and hopefully they may find a solution to your problem. You also have something that is very precious and that is how your mind works. I always say that when you have Leukemia it is not only a disease of the body but the mind as well. You seem to be controling your disease with your mind helping you along. I'm not saying that you can cure yourself with your mind but only that you yourself make it a lot eiser to deal with it because your a very strong willled person. So, I know that this is also meant for you as well... 18's Marty EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. OUR BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote: > ** > *Hi Marty.It is good to see you one line. I will keep you in my > prayers and pray that you hear something about a transplant soon. You are > always such an inspiration to all of us. No one keeps on top of things > like you do. I've been feeling sick for months now, and now they're going > to send me to a specialist and perhaps he can figure it all out. I am > working hard on feeling good. We all have down times, but I don't give > up. You take care.* > *18's to you and yours,* > *Millie* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
