Re: [CMLHope] My Update
YEAH!! Looks like your an 18's Marty On Tue, Jun 25, 2013 at 3:15 PM, Richard H wrote: > My tests show a sharp *decrease* in counts indicating that my Gleevec > vacation is going to continue. I will complete my 5th year off Gleevec > next week. I will be testing again in December. I will be able to > complete 5 ½ years off Gleevec. YEAH!! > > ** ** > > For those still struggling with issues, I remember you daily during my > reflection period. > > > > Richard H. > > ** ** > > dxd 2/2003 > > 400mg Gleevec 3/2003 > > Undetectable 11/03 > > RT-PCR negative 11/04 > > QT-PCR .003 11/05 > > Gleevec Vacation 11/06-6/07 > > Iron infusion 11/06 > > Transfusions 12/06-5/07 > > QT-PCR .007 > > Gleevec 1/08 -5/08 > > Gleevec Vacation 7/08-Present > > 11/8 RBC 8 > > QT-PCR .003 4/09 > > QT-PCR .00156/09 > > QT-PCR .00219/09 > > QT-PCR .00281/10 > > QT-PCR .001 4/10 > > QT-PCR .00468 10/10 > > QT-PCR 1.049% 2/11 > > QT-PCR .0612% 8/11 > > QT-PCR 2.616 %2/12 > > QT-PCR 2.410% 8/12 > > QT-PCR 9.183% 4/13 > > QT-PCR 4.57% 6/13 > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: BCR-ABL Results
I would like to ask a few questions about BCR-ABL test and other blood test that we go through every 3-6 months. I'm not sure if we all get the same tests depending on what drug we are taking. I take 400 mg Gleevec. I have noticed some very expensive charges for blood tests recently. I get 5 vials of blood drawn every 6 months. The costs for the test has been as high as $3500 and $2400 at the low end. I am being treated at the Cleveland Clinic cancer center in Independence, Ohio but sometime go to another Cleveland clinic facility for the blood tests. I think I'm being overcharged by the off site facility. Does anyone keep a list of their charges for blood test? How do they compare to the Cleveland Clinic charges? Do you have price swings in charges at your clinic/hospital?.Would appreciate everyone's input. In a message dated 6/24/2013 10:53:12 P.M. Eastern Daylight Time, richard1huff...@comcast.net writes: On Sunday, June 23, 2013 11:35:09 AM UTC-5, Suzieq wrote: Hello everyone: I don't know if I posted my results or not, but they came back "none detected" once againit's been this way straight through since the beginning of 2010..YIPPEE!!! My doctor is letting me cut the Gleevec back to 100mgs a day and we will see how that does. I will celebrate my tenth anniversary of my diagnosis next February 6th (according to my mom as that's her birthday and she always reminds me that I called her and told her on her birthday about the diagnosis.) I see the new Pain Management Specialist this coming Friday. I do hope he is able to help me. I have had two awful bad nights in a row now. Was doing much better up till then. Been seeing my Chiropractor regular and he's been helping me quite a bit with my Sciatic leg pain and hip pain. But, then the arthritis in the SI joints decided to act up and there isn't a whole lot he can do for that. I've been hitting my bottle of pain meds pretty regular for past two days. I am beginning to think my husband may be right about me being in a wheel chair soon. But, I will do all I can to fight that and keep going. I don't mind walking with my cane if I need to, but don't want to give into the wheel chair before I turn 60 years old. Alright, gotta get going now. Y'all have a great day and enjoy the summer. Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] My Update
I am s happy for you, YAY!!! I took my first tasigna today.back on after 6 yrs and 3 months off of everything for the cml. Susan "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -Original Message- From: Richard H To: cmlhope Sent: Tue, Jun 25, 2013 3:15 pm Subject: [CMLHope] My Update My tests show a sharp decrease incounts indicating that my Gleevec vacation is going to continue. I will complete my 5th year offGleevec next week. I will be testingagain in December. I will be able tocomplete 5 ½ years off Gleevec. YEAH!! For those still struggling withissues, I remember you daily during my reflection period. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 Gleevec Vacation 11/06-6/07 Iron infusion11/06 Transfusions12/06-5/07 QT-PCR .007 Gleevec 1/08-5/08 GleevecVacation 7/08-Present 11/8 RBC 8 QT-PCR .003 4/09 QT-PCR .00156/09 QT-PCR .00219/09 QT-PCR .00281/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 QT-PCR 4.57% 6/13 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] My Update
My tests show a sharp *decrease* in counts indicating that my Gleevec vacation is going to continue. I will complete my 5th year off Gleevec next week. I will be testing again in December. I will be able to complete 5 ½ years off Gleevec. YEAH!! For those still struggling with issues, I remember you daily during my reflection period. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Gleevec Vacation 7/08-Present 11/8 RBC 8 QT-PCR .003 4/09 QT-PCR .00156/09 QT-PCR .00219/09 QT-PCR .00281/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 QT-PCR 4.57% 6/13 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: BCR-ABL Results
Suzieq, YIPPEE KI A as Bruce Willis would say. I don't know if I spelled it right, but who cares. Happy to hear your doing O. K. keep it up. greenie In a message dated 6/24/2013 10:53:13 P.M. Eastern Daylight Time, richard1huff...@comcast.net writes: On Sunday, June 23, 2013 11:35:09 AM UTC-5, Suzieq wrote: Hello everyone: I don't know if I posted my results or not, but they came back "none detected" once againit's been this way straight through since the beginning of 2010..YIPPEE!!! My doctor is letting me cut the Gleevec back to 100mgs a day and we will see how that does. I will celebrate my tenth anniversary of my diagnosis next February 6th (according to my mom as that's her birthday and she always reminds me that I called her and told her on her birthday about the diagnosis.) I see the new Pain Management Specialist this coming Friday. I do hope he is able to help me. I have had two awful bad nights in a row now. Was doing much better up till then. Been seeing my Chiropractor regular and he's been helping me quite a bit with my Sciatic leg pain and hip pain. But, then the arthritis in the SI joints decided to act up and there isn't a whole lot he can do for that. I've been hitting my bottle of pain meds pretty regular for past two days. I am beginning to think my husband may be right about me being in a wheel chair soon. But, I will do all I can to fight that and keep going. I don't mind walking with my cane if I need to, but don't want to give into the wheel chair before I turn 60 years old. Alright, gotta get going now. Y'all have a great day and enjoy the summer. Suzieq -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
