[CMLHope] Re: Maria
Maria: It's good to have you here with us in our group. I've been a member since sometime in 2004. I was dx'ed in January of that year (04) and started Gleevec (400mgs) in February '04. I might have stumbled up on this group 4 to 6 months later and I've never, ever been sorry. I learned so much about this disease as well as what to do with all the side affects from the Gleevec. Also, things to report to the doctor or questions to ask the doctor. I've met so many nice people and made friends with them. I had no idea what people were talking about when they mentioned a PCRU or the BCR-ABL test. But, I finally learned through this group by asking the what is that question? I learned that there are no stupid questions here. I do hope you stay with us. Some of us do not check in everyday, but there usually are a few who do. Please feel free to ask anything you need help with, from doctors, questions pertaining to the different drugs, blood tests, side affects, or questions about insurances. Trust me, there will be someone here that most likely has dealt with the same problem or has an answer. Thanks and keep looking up, Suzieq -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] My story, Part I
Maria, This had to be the worst time in your life. Thank you for sharing it with us. You have evidently come a long way and I am waiting for Part 2. We all gain strength from seeing the strength displayed by all the other CML warriors. Joyce in IL On Jul 15, 2014, at 6:14 PM, mariacash...@gmail.com wrote: Well guys, here is how it all started, and how I was diagnosed. I am an anthropologist (physical anthropologist and archeologist), a wife and a mother. Of course, I am used to working hard, almost like a slave (all mom's are J). I guess about 7 years ago, I started feeling a little more tired than usual...I mean, field work is hard, working from 7:30 AM until 3:00 PM at construction sites doing archaeological monitoring, pickup my daughter at 4:00 PM or so and spending the rest of the day with her, cooking, waiting for my husband to come home from work. Putting the kid to sleep at night. Then, I would have to write my reports and if lucky, slept a couple of hours to start a new day... Mom can't get sick...I started to feel more tired than usual, heavy night sweats, pain in the back, left side just above the waist...Doctors said it was nothing, probably my imagination...It got to the point that I would come home exhausted. I couldn't even do house work. I would move the furniture to sweep and mop, then I had to sit for half an hour in order to be able to put everything back in place, Once I had my white blood count high and my doctor told me that that only meant that I had an infection... On December 18th 2011 I had to go to the ER of my nearest hospital. After examination and testing, xrays, ct, etc, they even considered sending me home until the CBC arrived. I was hospitalized just when the x-mass season was getting good and my 14 year old was on vacation from school. WE had so many plans that were never accomplished Knowing that my daughter was suffering my absence was the main factor that gave strength specially because not even my family came through. We were and still are just 3, my husband, my daughter and I... I was then transferred from the hospital I was in to a government operated hospital area known here in Puerto Rico as CENTRO MEDICO. The HOSPITAL UNIVERSITARIO DE ADULTOS has a specialized unit for leukemia patients. THEY SAVED MY LIFE. I had my first bone marrow aspiration and biopsy done at the first hospital. Results were in soon, 2 days or so and results were given to my husband to take over to the new hospital. Results were horrible, although at that time I didn't pay much attention to them. Thank GOD I did not!!! I would have given up then and there. Final Diagnosis: Comprehensive Assessment: BLAST PHASE OF CHRONIC MYELOGENOUS LEUKEMIA WITH T(9,22) AND DELETION OF 9Q. The patients peripheral blood smear shows markedly increased blasts. The bone marrow core biopsy also reveals a large population of blasts; including 80% of the maroow spaces. The blasts are small to intermediate in size with high N:C ratio, immature chromatin and a small amount of cytoplasm with occasional cytoplasmic granules... the blasts are positive for MPO,CD66, LYSOZYME with no significant expression of CD34 AND CD117... PRONOSTICATING RESISTANCE TO TYROSINE INASE INHIBITORS AND UNFAVOURABLE PROGNOSIS... -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: Maria
Hi Maria, You went through a lot before they figured it out, obviously! My daughter-in-law has studied anthropology and getting her masters in it. Very interesting occupation you have! So glad to know you are in remission now and all that blast stuff is behind you, way back!!! I was dx'd on Valentine's Day 2005. More on me some other time. Just know we are all pulling for you and like to help in whatever way possible. You living in Puerto Rico means we can't just drive to meet, but we still have the wonderful internet! How awesome that it's possible to communicate from such a distance. I live in northern Indiana, near South Bend where Notre Dame resides. We are all big ND fans in my family.:-) Have a blessed day and keep in touch! Susan F. Zimmerman Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: mariacashion mariacash...@gmail.com To: cmlhope cc Re: Maria Hello again!!! My origib\nal post was on june 7th, around 10:30. It was answered by Marty, but I didn't notice it untill today. Sorry!!! It is hard from me to keep up with all of the streams. The flow of messages is not always clear. I am no longer in blast crisis. I was when I was diagnosed, it was awful, because I had no idea of what was going on. I will write all about it soon. I am in total molecular remission and have been since january 2012. I was diagnosed on Dec 2011. At that time, there was no hope for me...but here I am! Iwill write soon. I am alittle tired now... Maria On Monday, July 14, 2014 10:28:43 AM UTC-4, caselmar wrote: Hi Maria: As everyone has said, I did not see your post or I, too, would have welcomed you. As a group, we have been dealing with the loss of one of our very dear members and a number of us don't stay in touch sometimes because we are going through our own issues. This group is a family and while we hate to expand it, because we don't wish CML on anyone, we know that new family members will come along. We are all here for you and will be in our thoughts and prayers. Marcie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
