Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics
Also check this list, save it, it may become helpfull: http://www.cmleukemia.com/sites--english-and-other-languages.html Maria On Sun, Feb 22, 2015 at 8:32 AM, Maria Cashion mariacash...@gmail.com wrote: Please check out this other link when you have a chance. http://cml-iq.com/grapefruit-effect-need-know/ Love you all! Maria M On Sun, Feb 22, 2015 at 8:28 AM, Maria Cashion mariacash...@gmail.com wrote: This is the link to the National CML Society directly to drug and food interactions: http://www.nationalcmlsociety.org/living-cml/drug-food-interactions LOVE YOU ALL! Maria On Sun, Feb 22, 2015 at 6:23 AM, cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email#!forum/cmlhope/topics Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics https://groups.google.com/forum/?utm_source=digestutm_medium=email#!forum/cmlhope/topics - ponatinib info #14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_group_thread_0 - 5 Updates - Food that interacts with TKI's and other meds #14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_group_thread_1 - 2 Updates ponatinib info http://groups.google.com/group/cmlhope/t/5dfb95c0229110ae?utm_source=digestutm_medium=email Icandoallttc icandoall...@aol.com: Feb 21 10:18AM -0500 Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s John Barrons jlbca2...@yahoo.ca: Feb 21 03:55PM Hi I had them quite a long time go. Each aura lasted about 3 to 5 minutes. They occurred very intermittingly. Never found out why. I would like to ask what does 18,s mean? On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 3:16 PM, Icandoallttc icandoall...@aol.com wrote: Thanks John. That's what I having but with pain. I have suffered with migraines most of my adult life but this is different. I hope it's a side effect that will go away. Looks like the media working --yahoo! Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 11:47 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: I have a few auras which I understand they are migraine headaches without the pain. I had an MRI to see if there was a problem and there wasn't. Haven't them for a long time. No headaches or rashes. John b On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John and thanks for walking me through this new med. Got a light rash. Did you ever have an eye problem with headache?Thanks again. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 11:01 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: That's great your down to one pill a day. I am still on two a week. over the last to weeks my counts have stayed the same except for wbc up from 5 to 7. John B On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Thanks Marty. I will get some. Thank heavens it doesn't itch. My blood counts were good today. Platelets 152. Doctor put me down to 1 pill daily of ponatinib. Phosphatase is still high. Going to be a guessing game till I get stable. You are right--still here fighting. Glad you finally got some relief. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 18, 2015, at 7:43 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie and all of the rest, I really feel badly for you having to go through all of this, but on the bright side your all stil here to go through this. As far as the rash and not being able to put anything on it, well that really sucks. When will you be allowed to put something on your rash? When I had my total body radiation my skin was burnt, my fingers, toes, nose, ears feet, hands and other parts of my body were burned and looked like I was in a fire. I was told that while I was having the radiation
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics
Please check out this other link when you have a chance. http://cml-iq.com/grapefruit-effect-need-know/ Love you all! Maria M On Sun, Feb 22, 2015 at 8:28 AM, Maria Cashion mariacash...@gmail.com wrote: This is the link to the National CML Society directly to drug and food interactions: http://www.nationalcmlsociety.org/living-cml/drug-food-interactions LOVE YOU ALL! Maria On Sun, Feb 22, 2015 at 6:23 AM, cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email#!forum/cmlhope/topics Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics https://groups.google.com/forum/?utm_source=digestutm_medium=email#!forum/cmlhope/topics - ponatinib info #14bb142388125a7d_14bb0d02294a4d46_group_thread_0 - 5 Updates - Food that interacts with TKI's and other meds #14bb142388125a7d_14bb0d02294a4d46_group_thread_1 - 2 Updates ponatinib info http://groups.google.com/group/cmlhope/t/5dfb95c0229110ae?utm_source=digestutm_medium=email Icandoallttc icandoall...@aol.com: Feb 21 10:18AM -0500 Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s John Barrons jlbca2...@yahoo.ca: Feb 21 03:55PM Hi I had them quite a long time go. Each aura lasted about 3 to 5 minutes. They occurred very intermittingly. Never found out why. I would like to ask what does 18,s mean? On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 3:16 PM, Icandoallttc icandoall...@aol.com wrote: Thanks John. That's what I having but with pain. I have suffered with migraines most of my adult life but this is different. I hope it's a side effect that will go away. Looks like the media working --yahoo! Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 11:47 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: I have a few auras which I understand they are migraine headaches without the pain. I had an MRI to see if there was a problem and there wasn't. Haven't them for a long time. No headaches or rashes. John b On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John and thanks for walking me through this new med. Got a light rash. Did you ever have an eye problem with headache?Thanks again. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 11:01 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: That's great your down to one pill a day. I am still on two a week. over the last to weeks my counts have stayed the same except for wbc up from 5 to 7. John B On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Thanks Marty. I will get some. Thank heavens it doesn't itch. My blood counts were good today. Platelets 152. Doctor put me down to 1 pill daily of ponatinib. Phosphatase is still high. Going to be a guessing game till I get stable. You are right--still here fighting. Glad you finally got some relief. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 18, 2015, at 7:43 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie and all of the rest, I really feel badly for you having to go through all of this, but on the bright side your all stil here to go through this. As far as the rash and not being able to put anything on it, well that really sucks. When will you be allowed to put something on your rash? When I had my total body radiation my skin was burnt, my fingers, toes, nose, ears feet, hands and other parts of my body were burned and looked like I was in a fire. I was told that while I was having the radiation treatments I could not put anything on any of these very severe burns, and I really suffered through it. As soon as my treatments were over they gave me Keri oil, then lotion. Both of them did very little to help me. Then a friend of mine told me about Bag
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics
This is the link to the National CML Society directly to drug and food interactions: http://www.nationalcmlsociety.org/living-cml/drug-food-interactions LOVE YOU ALL! Maria On Sun, Feb 22, 2015 at 6:23 AM, cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com https://groups.google.com/forum/?utm_source=digestutm_medium=email#!forum/cmlhope/topics Google Groups https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview https://groups.google.com/forum/?utm_source=digestutm_medium=email/#!overview Topic digest View all topics https://groups.google.com/forum/?utm_source=digestutm_medium=email#!forum/cmlhope/topics - ponatinib info #14bb0d02294a4d46_group_thread_0 - 5 Updates - Food that interacts with TKI's and other meds #14bb0d02294a4d46_group_thread_1 - 2 Updates ponatinib info http://groups.google.com/group/cmlhope/t/5dfb95c0229110ae?utm_source=digestutm_medium=email Icandoallttc icandoall...@aol.com: Feb 21 10:18AM -0500 Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s John Barrons jlbca2...@yahoo.ca: Feb 21 03:55PM Hi I had them quite a long time go. Each aura lasted about 3 to 5 minutes. They occurred very intermittingly. Never found out why. I would like to ask what does 18,s mean? On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 3:16 PM, Icandoallttc icandoall...@aol.com wrote: Thanks John. That's what I having but with pain. I have suffered with migraines most of my adult life but this is different. I hope it's a side effect that will go away. Looks like the media working --yahoo! Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 11:47 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: I have a few auras which I understand they are migraine headaches without the pain. I had an MRI to see if there was a problem and there wasn't. Haven't them for a long time. No headaches or rashes. John b On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John and thanks for walking me through this new med. Got a light rash. Did you ever have an eye problem with headache?Thanks again. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 19, 2015, at 11:01 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: That's great your down to one pill a day. I am still on two a week. over the last to weeks my counts have stayed the same except for wbc up from 5 to 7. John B On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Thanks Marty. I will get some. Thank heavens it doesn't itch. My blood counts were good today. Platelets 152. Doctor put me down to 1 pill daily of ponatinib. Phosphatase is still high. Going to be a guessing game till I get stable. You are right--still here fighting. Glad you finally got some relief. Prayers Blessings Jeanie [image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ][image: ]. 18,s On Feb 18, 2015, at 7:43 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie and all of the rest, I really feel badly for you having to go through all of this, but on the bright side your all stil here to go through this. As far as the rash and not being able to put anything on it, well that really sucks. When will you be allowed to put something on your rash? When I had my total body radiation my skin was burnt, my fingers, toes, nose, ears feet, hands and other parts of my body were burned and looked like I was in a fire. I was told that while I was having the radiation treatments I could not put anything on any of these very severe burns, and I really suffered through it. As soon as my treatments were over they gave me Keri oil, then lotion. Both of them did very little to help me. Then a friend of mine told me about Bag Balm and I got it and started using it. Within two days my burns were still there because they were from the radiation poisoning but after putting that on it didn't hurt anymore. Everything healed up in less then a week. Then I had to start my
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics
Thank you Maria. I quit grapefruit juice when I first went on gleevec Many years ago. I'm a Florida Cracker and was reared on them. I sure do miss them. The sickest I got on gleevec was eating chili Which I loved. I learned to take My pills with mild foods such as We have in breakfast. Good luck. Prayers Blessings Jeanie . 18,s On Feb 22, 2015, at 7:28 AM, Maria Cashion mariacash...@gmail.com wrote: This is the link to the National CML Society directly to drug and food interactions: http://www.nationalcmlsociety.org/living-cml/drug-food-interactions LOVE YOU ALL! Maria On Sun, Feb 22, 2015 at 6:23 AM, cmlhope@googlegroups.com wrote: cmlhope@googlegroups.com Google Groups Topic digest View all topics ponatinib info - 5 Updates Food that interacts with TKI's and other meds - 2 Updates ponatinib info Icandoallttc icandoall...@aol.com: Feb 21 10:18AM -0500 Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie emoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.png. 18,s John Barrons jlbca2...@yahoo.ca: Feb 21 03:55PM Hi I had them quite a long time go. Each aura lasted about 3 to 5 minutes. They occurred very intermittingly. Never found out why. I would like to ask what does 18,s mean? On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John Do you you remember how long the eye problem lasted! I have been having them a few times daily now thanks. Prayers Blessings Jeanie emoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.png. 18,s On Feb 19, 2015, at 3:16 PM, Icandoallttc icandoall...@aol.com wrote: Thanks John. That's what I having but with pain. I have suffered with migraines most of my adult life but this is different. I hope it's a side effect that will go away. Looks like the media working --yahoo! Prayers Blessings Jeanie emoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.png. 18,s On Feb 19, 2015, at 11:47 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: I have a few auras which I understand they are migraine headaches without the pain. I had an MRI to see if there was a problem and there wasn't. Haven't them for a long time. No headaches or rashes. John b On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John and thanks for walking me through this new med. Got a light rash. Did you ever have an eye problem with headache?Thanks again. Prayers Blessings Jeanie emoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.png. 18,s On Feb 19, 2015, at 11:01 AM, 'John Barrons' via CMLHope cmlhope@googlegroups.com wrote: That's great your down to one pill a day. I am still on two a week. over the last to weeks my counts have stayed the same except for wbc up from 5 to 7. John B On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Thanks Marty. I will get some. Thank heavens it doesn't itch. My blood counts were good today. Platelets 152. Doctor put me down to 1 pill daily of ponatinib. Phosphatase is still high. Going to be a guessing game till I get stable. You are right--still here fighting. Glad you finally got some relief. Prayers Blessings Jeanie emoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.pngemoji_u1f420.png. 18,s On Feb 18, 2015, at 7:43 PM, Marty Gartenberg wa2...@gmail.com wrote: Hi Jeanie and all of the rest, I really feel badly for you having to go through all of this, but on the bright side your all stil here to go through this. As far as the rash and not being able to put anything on it, well that really sucks. When will you be allowed to put something on your rash? When I had my total body radiation my skin was burnt, my fingers, toes, nose, ears feet, hands and other parts of my body were burned and looked like I was in a fire. I was told that while I was having the radiation treatments I could not put anything on any of these very severe burns, and I really suffered through it. As soon as my treatments were over they
