Hi Susan and all, Good to hear your uplifting voice of hope and love. I had my annual checkup with my PCD today. Every thing is pretty much the same. I Had blood drawn and will get the results tomorrow. Also they found some nodes on my lungs a few months ago so I will do a chest X-ray tomorrow. I have no trouble breathing so I don't think anything is wrong. Pain is still bad but I'm hoping they can find the cause soon. I hope every one is good tonight.
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Feb 13, 2016, at 3:27 PM, 'Susan Zimmerman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Dear Beth and Marty, > > Sweet Beth is one of my inspirations, in case you didn't know. I pray all is > well with you?! We need an update. Happy Valentine's Day. > > Marty, I sure hope your dire circumstances have improved this week, even just > a tiny little bit. A tiny bit is to rejoice over! I love all you guys so > much, and we truly are family. Happy Valentine's Day and get your wife > something special. > > Jeanie, I sure do hope your side pain is better, too. Even just a tiny bit! > That V.Day will lift your spirits and that you know you are loved! > > Jon, I'm expecting good results for your next testing. I've gotta go soon > myself to find out if my numbers are staying low. Happy Vday! > > The rest that we haven't heard from lately....keep in touch with us! I don't > read posts every day, but will eventually! > > So far I've gotten a birthday balloon, a big neat card, and many kisses and > vows of love from my hubby. Oh, also flowers! We've been celebrating for > two weeks. e-cards are so easy to send, and I have fun doing it, so he's > gotten candy twice and a physical card, and many e-mailed cards! He knows > better than to buy me candy, it's poison for a diabetic. I eat dark > chocolate anyway, lol. > > Blessings and 18's for life of course, Marty, > > Susan F. Zimmerman > "Look among the nations and watch; be utterly astounded! For I will work a > work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -----Original Message----- > From: Marty Gartenberg <wa2...@gmail.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Fri, Feb 12, 2016 9:29 pm > Subject: Re: [CMLHope] Info update > > Susan, Susan what am I to do with you? you are so sweet and for this. I have > no doubt that everything will turn out well for you and your family just as > is has been doing for me, Shelly and our children. I'm sure that you can > imagine everything that I have been through and also so have you. > > I also see that you are using 18"s as you end all of your posts. Do you know > why? Because we and a lot of others share something. Life > > 18's again. > > Marty > > > > >> On Fri, Feb 12, 2016 at 1:14 PM, 'Susan Zimmerman' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Dear Marty, >> >> So sorry to hear about the mouth sores and low wbc. UGH!!! We are all >> rooting for you to beat this problem with immunity ASAP. You are not >> complaining, just stating a reason for us to pray for you! If we don't know >> about it we can't zero in on it in intercessory prayer. You've got my >> prayers and I know those of everyone on here who prays to the most High God.. >> >> Two trips to Chicago have so far found nothing really wrong with my blood >> that would cause the stroke. This time they know it's from the bosulif, but >> waiting for results from the MRA and MRI that also happened. >> >> So I'm enjoying time off the TKI, and living life to the fullest every daY. >> EVERYONE have a wonderful Valentine weekend, please. If ya don't have a >> sweetie, know that you can treat yourself better than usual for the >> occasion! (Bubble bath, massage, favorite meal, etc. just for you). The >> rest of ya try to take good care of your significant other! (Of course >> don't fall for the media's need to spend lots of money...lol) >> >> Heartfelt love and 18's, >> >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: Marty Gartenberg <wa2...@gmail.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Fri, Feb 12, 2016 4:04 pm >> Subject: Re: [CMLHope] Info update >> >> Ok, let's see what happens at your next blood test. >> I just had one this morning and sorry to say my WBC was only 1.87 so that >> puts me having a problem with immunity but I know that it is coming from the >> CMV virus that I am having so I have to be very careful until the reduced >> medication starts to work again. In the mean time I have gotten some >> terrible mouth sores just like I got when I had the bone marrow transplant >> caused by all of the Chemo and radiation. Something that I will never >> forget. Believe it or not that was by far the worst part of it. However I >> just try not to complain about it. And do you know why? I'm still alive >> today. >> >> And now you know what 18's stands for... Life! >> >> So I bid you many more 18's. >> >> Marty >> >>> On Fri, Feb 12, 2016 at 5:49 AM, John Barrons <jl...@rogers.com> wrote: >>> Hi My wbc last Tuesday were 4.2, platelets 43 and hemo 103. I will next >>> have a cbc a week this Tuesday. John >>> >>> Sent from my iPad >>> >>> On Feb 12, 2016, at 6:59 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >>> >>> Hi John, >>> >>> What are your WBC now? I know a man who lives in Canada a very long time >>> ago actually more then 35 years ago and he never took any TKI's but he did >>> take something and it did "burn out his Leukemia" but unfortunately he has >>> to have blood transfusions I think every two weeks. He is the longest >>> surviving person in this world. >>> >>> I probably am in there as well logging in going on 27 years after having a >>> bone marrow transplant. >>> >>> Different people react to different things and sometimes some of them >>> defies the logic of these things that are just meant to be. Hey you seem to >>> be one of them👍 >>> Good luck to you! >>> >>> Remember what 18's stands for. >>> >>> Marty >>> >>>> On Thu, Feb 11, 2016 at 8:01 AM, <jl...@rogers.com> wrote: >>>> I am taking ponatinib like Jeanie in Tampa. I need to take only one pill a >>>> week to keep the counts low. the counts do fluctuate from time to time. >>>> There does not seem to an answer for the white blood cells to have >>>> increased so suddenly. My oncologist did not think it was a change to >>>> blast phase. So I go once a week or once every two weeks to check them. >>>> John B. >>>> >>>> >>>> On Wednesday, February 10, 2016 11:06 PM, Marty Gartenberg >>>> <wa2...@gmail.com> wrote: >>>> >>>> >>>> Hi John, >>>> >>>> First let me say hello to your wife, and believe me I personally know what >>>> she has been going through. >>>> >>>> Now what I can't understand why your white blood count went over 100,000. >>>> And what pill have you been taking? Usually you need to be taking more >>>> then 1 pill and that should be every day. So John I am really puzzled. >>>> >>>> I wish you as well as your wife the very best, because of mainly what you >>>> wrote. Yes, life is good. >>>> >>>> If you have been reading any of my posts I always end them with 18's which >>>> is a symbol for life. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Wed, Feb 10, 2016 at 4:45 PM, John Barrons <jl...@rogers.com> wrote: >>>> Hi Jeanie and to all: Well, where do I start. Before last Christmas, I was >>>> not feeling very well. My oncologist said if I felt worse go to emergency, >>>> which I did on Dec 26. I had pneumonia and as I result my heart was having >>>> trouble. In addition, my white blood count went over 100,000. I was in >>>> hospital until Jan 16 when I was transferred to a rehab centre to gain >>>> back some strength. I arrived back at home last Saturday, so glad to be >>>> home I can't begin to say. All is well as far as the things that were >>>> wrong. Mind you I have to gain a lot of weight back. The leukemia is back >>>> to normal and I am on 1 pill per week. That was along time to be away and >>>> I was difficult for my wife also. Life is good John B >>>> >>>> Sent from my iPad >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com/ >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to mailto:cmlhope%2bunsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com/ >>>> ------------------------------------------------- >>>> >>>> You 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