[CMLHope] Dizzy all day

['Icandoallttc' via CMLHope]

Hi all
I woke up dizzy and have had it all day. Ive had this before so not to 
concerned yet. 
Could be my potassium is up. 
I hope everyone is good tonight.  

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

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Re: [CMLHope] Dizzy all day

[Joyce Mesnarich]

Marty,
Sorry to hear of your recent hospitalization…..but very glad to hear that 
you are doing better now.  My husband, the CML warrior in our family has also 
had Afib which was diagnosed about the same time he was dx with CML, in 2009.  
His Afib has been controlled with medication for the past 3 years.  So I am 
sure that your doctors will get your meds worked out, too.  I have wondered 
just how many CML patients also have Afib and wondered if there is a 
connection.  It was definitely not caused by TKIs because hubby had Afib before 
he was on any.
God bless and keep all.
 Joyce in IL


> On Mar 17, 2016, at 7:27 PM, Myvety2k via CMLHope  
> wrote:
> 
> Marty, that's good news, glad to here it.
>  
> greenie
>  
> In a message dated 3/17/2016 8:22:36 P.M. Eastern Daylight Time, 
> wa2...@gmail.com writes:
> Don't worry, sounds like vertigo. Both my wife send a l also get it from time 
> to time. It should pass in a day or so.
> 
> Some news from me. I have been in the hospital for the past four days 
> concerning my Afibs. To make a long story somewhat short I do not have any 
> more Afibs due to some new medications. I am now feeling very well. They are 
> going to fine tune some of the medications,and I should be discharging me 
> tomorrow.
> 
> 18's
> 
> Marty
> 
> On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope 
> mailto:cmlhope@googlegroups.com>> wrote:
> Hi all
> I woke up dizzy and have had it all day. Ive had this before so not to 
> concerned yet.
> Could be my potassium is up.
> I hope everyone is good tonight.
> 
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
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[CMLHope] To Susan Zimmerman

['Susan Rosenthal' via CMLHope]

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him😀

Hugs,
Susan Rosenthal

Have a wonderful day😊

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Re: [CMLHope] Dizzy all day

[Marty Gartenberg]

Don't worry, sounds like vertigo. Both my wife send a l also get it from
time to time. It should pass in a day or so.

Some news from me. I have been in the hospital for the past four days
concerning my Afibs. To make a long story somewhat short I do not have any
more Afibs due to some new medications. I am now feeling very well. They
are going to fine tune some of the medications,and I should be discharging
me tomorrow.

18's

Marty

On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi all
> I woke up dizzy and have had it all day. Ive had this before so not to
> concerned yet.
> Could be my potassium is up.
> I hope everyone is good tonight.
>
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
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Re: [CMLHope] Re: Dizzy all day

[bkbarney via CMLHope]

Dear Marty,
So glad you are out of the hospital! And Peg, you are so right about what you 
said to Jeanie...Hope everyone is doing as well as possible. Thinking of all of 
you...love, and 18's Beth


-Original Message-
From: 'Icandoallttc' via CMLHope 
To: peg 
Cc: CMLHope 
Sent: Fri, Mar 18, 2016 11:19 am
Subject: [CMLHope] Re: Dizzy all day



Thanks Peg,
You are so right.  I was reading the side effects of ponatinib and i was 
thinking I have to take this??!
Well yes I do and blood clots and heart problems are right up there high on the 
list. 
My potassium tends to be high also and you can get heart problems from that. 
Just have to fight on and thanks again. 




My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center


On Mar 18, 2016, at 12:00 PM, peg  wrote:




Hi Jeanie, 


I was traveling on business this week and just checked in and am wondering if 
you are feeling better?  


I had to caution another cancer patient recently not to write off sudden 
changes as normal...caused by treatment, age, etc.  The new generation of meds 
to treat CML and other cancers can have side effects that can be deadly if not 
caught in time.  Sprycel was a really good example of this. Prior to the FDA 
warning that it can cause deadly pulmonary hypertension no one was paying 
attention to folks that were already on it.  When one of our CML warriors 
started feeling weak and dizzy, even her doctor dismissed it, for months, until 
she collapsed and woke up in the cardiac care unit.  She almost died, and had a 
long road to recovery. Her spreading the word saved other lives!   Everyone 
should know their meds, know what the symptoms are of the dangerous side 
effects and alert their doctor if those symptoms present. It doesn't hurt to 
tell the doctor you are concerned it is a side effect of your meds, you would 
be surprised how many doctors are not familiar with the side effects of the 
meds they are prescribing!  


I think those of us living with cancer or any other chronic disease are kind of 
stoic and don't whine a lot...but sometimes we should.


Note to Marty...since I am sure you are reading this...you are in my prayers!!


Fight on,
Peg





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Re: [CMLHope] Dizzy all day

['Icandoallttc' via CMLHope]

Will a heart pacer help with that?

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 18, 2016, at 9:31 AM, Marty Gartenberg  wrote:
> 
> Well unfortunately my Afibs came back last night. They 're going to discuss 
> this with me today to see what the next will be
> 
> 18s,
> 
> Marty
> 
>> On Thursday, March 17, 2016, Myvety2k via CMLHope  
>> wrote:
>> Marty, that's good news, glad to here it.
>>  
>> greenie
>>  
>> In a message dated 3/17/2016 8:22:36 P.M. Eastern Daylight Time, 
>> wa2...@gmail.com writes:
>> Don't worry, sounds like vertigo. Both my wife send a l also get it from 
>> time to time. It should pass in a day or so.
>> 
>> Some news from me. I have been in the hospital for the past four days 
>> concerning my Afibs. To make a long story somewhat short I do not have any 
>> more Afibs due to some new medications. I am now feeling very well. They are 
>> going to fine tune some of the medications,and I should be discharging me 
>> tomorrow.
>> 
>> 18's
>> 
>> Marty
>> 
>>> On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope 
>>>  wrote:
>>> Hi all
>>> I woke up dizzy and have had it all day. Ive had this before so not to 
>>> concerned yet.
>>> Could be my potassium is up.
>>> I hope everyone is good tonight.
>>> 
>>> My Motto: Faith and Pills❤️
>>> With 💗Jeanie 🐟🐟18,s Chi
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib January 2015
>>> Dr Balducci Moffitt Cancer Center
>>> 
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
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>>> cmlhope-unsubscr...@googlegroups.com
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>> 
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Re: [CMLHope] Dizzy all day

['Icandoallttc' via CMLHope]

Great news Marty!! Not that you have been in the hospital but that you are 
better. 
Thanks for info in dizzy spells. Mine is gone for now.  

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 17, 2016, at 8:22 PM, Marty Gartenberg  wrote:
> 
> Don't worry, sounds like vertigo. Both my wife send a l also get it from time 
> to time. It should pass in a day or so.
> 
> Some news from me. I have been in the hospital for the past four days 
> concerning my Afibs. To make a long story somewhat short I do not have any 
> more Afibs due to some new medications. I am now feeling very well. They are 
> going to fine tune some of the medications,and I should be discharging me 
> tomorrow.
> 
> 18's
> 
> Marty
> 
>> On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope 
>>  wrote:
>> Hi all
>> I woke up dizzy and have had it all day. Ive had this before so not to 
>> concerned yet.
>> Could be my potassium is up.
>> I hope everyone is good tonight.
>> 
>> My Motto: Faith and Pills❤️
>> With 💗Jeanie 🐟🐟18,s Chi
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>> 
>> --
>> --
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Re: [CMLHope] Dizzy all day

['Icandoallttc' via CMLHope]

Hi Susan and so glad to hear from you but sorry you are sick. Do you get the 
flu shot?
I get one yearly and dont seem to get the flu. 
Yes we worry if we take the meds and worry if we dont!!! 
Im much better so never figured out whats causing it.  Going to moffitt next 
week. Will post up date. They do pcr test every three months. 

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 16, 2016, at 11:03 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Dear Jeanie, 
> Sorry you're having troubles today. I havent been on for awhile cuz I've had 
> the wonderful flu...wheezing, coughing, exhausted. I'm getting over it 
> graduallytwo days ago I slept literally all day and night except for two 
> light meals.  Been on antibiotic for it.
> 
> Been tested again since going off bosulif cuz of the strokeint'l. Number 
> was .28quite a bit elevated from .019the test a month before.
> 
> I am not overly concerned at this point. Being
> 
> tested monthly locally and will go every 3 months to chicago. They are hoping 
> I will agree to go back on bosulif at 100 mg every other day to begin. I am 
> not ready at this point.
> Have seen two other specialists at Northwes%ern recommended by Dr. Altman. 
> Many tests showed nothing out of the ordinary!!! Rather frustrating but 
> enjoying no meds! Oh bp was up so back on bp meds again.
> 
> I havent deleted your posts but confess I havent read them yet either.
> 
> You all are in my prayers and I hope I'm in yours for my #"s to stay down.
> 
> Fightin on and 18's to all,
> Susan F. Zimmerman
> 
> 
> 
> On Wednesday, March 16, 2016 'Icandoallttc' via CMLHope 
>  wrote:
> 
> Hi all
> I woke up dizzy and have had it all day. Ive had this before so not to 
> concerned yet. 
> Could be my potassium is up. 
> I hope everyone is good tonight. 
> 
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
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Re: [CMLHope] Dizzy all day

[Marty Gartenberg]

Well unfortunately my Afibs came back last night. They 're going to discuss
this with me today to see what the next will be

18s,

Marty

On Thursday, March 17, 2016, Myvety2k via CMLHope 
wrote:

> Marty, that's good news, glad to here it.
>
> greenie
>
> In a message dated 3/17/2016 8:22:36 P.M. Eastern Daylight Time,
> wa2...@gmail.com 
> writes:
>
> Don't worry, sounds like vertigo. Both my wife send a l also get it from
> time to time. It should pass in a day or so.
>
> Some news from me. I have been in the hospital for the past four days
> concerning my Afibs. To make a long story somewhat short I do not have any
> more Afibs due to some new medications. I am now feeling very well. They
> are going to fine tune some of the medications,and I should be discharging
> me tomorrow.
>
> 18's
>
> Marty
>
> On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com
> > wrote:
>
>> Hi all
>> I woke up dizzy and have had it all day. Ive had this before so not to
>> concerned yet.
>> Could be my potassium is up.
>> I hope everyone is good tonight.
>>
>> My Motto: Faith and Pills❤️
>> With 💗Jeanie 🐟🐟18,s Chi
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
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RE: [CMLHope] Dizzy all day

['Susan Zimmerman' via CMLHope]

Dear Jeanie, 
Sorry you're having troubles today. I havent been on for awhile cuz I've had 
the wonderful flu...wheezing, coughing, exhausted. I'm getting over it 
graduallytwo days ago I slept literally all day and night except for two 
light meals.  Been on antibiotic for it.

Been tested again since going off bosulif cuz of the strokeint'l. Number 
was .28quite a bit elevated from .019the test a month before.

I am not overly concerned at this point. Being 

tested monthly locally and will go every 3 months to chicago. They are hoping I 
will agree to go back on bosulif at 100 mg every other day to begin. I am not 
ready at this point.
Have seen two other specialists at Northwes%ern recommended by Dr. Altman. Many 
tests showed nothing out of the ordinary!!! Rather frustrating but enjoying no 
meds! Oh bp was up so back on bp meds again.

I havent deleted your posts but confess I havent read them yet either. 

You all are in my prayers and I hope I'm in yours for my #"s to stay down.

Fightin on and 18's to all,
Susan F. Zimmerman

On Wednesday, March 16, 2016 'Icandoallttc' via CMLHope 
 wrote:
Hi all
I woke up dizzy and have had it all day. Ive had this before so not to 
concerned yet. 
Could be my potassium is up. 
I hope everyone is good tonight. 

My Motto: Faith and Pills❤️
With Jeanie 18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

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[CMLHope] Re: Dizzy all day

['Icandoallttc' via CMLHope]

Thanks Peg,
You are so right.  I was reading the side effects of ponatinib and i was 
thinking I have to take this??!
Well yes I do and blood clots and heart problems are right up there high on the 
list. 
My potassium tends to be high also and you can get heart problems from that. 
Just have to fight on and thanks again. 



My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 18, 2016, at 12:00 PM, peg  wrote:
> 
> 
> Hi Jeanie, 
> 
> I was traveling on business this week and just checked in and am wondering if 
> you are feeling better?  
> 
> I had to caution another cancer patient recently not to write off sudden 
> changes as normal...caused by treatment, age, etc.  The new generation of 
> meds to treat CML and other cancers can have side effects that can be deadly 
> if not caught in time.  Sprycel was a really good example of this. Prior to 
> the FDA warning that it can cause deadly pulmonary hypertension no one was 
> paying attention to folks that were already on it.  When one of our CML 
> warriors started feeling weak and dizzy, even her doctor dismissed it, for 
> months, until she collapsed and woke up in the cardiac care unit.  She almost 
> died, and had a long road to recovery. Her spreading the word saved other 
> lives!   Everyone should know their meds, know what the symptoms are of the 
> dangerous side effects and alert their doctor if those symptoms present. It 
> doesn't hurt to tell the doctor you are concerned it is a side effect of your 
> meds, you would be surprised how many doctors are not familiar with the side 
> effects of the meds they are prescribing!  
> 
> I think those of us living with cancer or any other chronic disease are kind 
> of stoic and don't whine a lot...but sometimes we should.
> 
> Note to Marty...since I am sure you are reading this...you are in my prayers!!
> 
> Fight on,
> Peg
> 

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Re: [CMLHope] Dizzy all day

[Myvety2k via CMLHope]

Marty, that's good news, glad to here it.
 
greenie
 
 
In a message dated 3/17/2016 8:22:36 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

Don't  worry, sounds like vertigo. Both my wife send a l also get it from 
time to  time. It should pass in a day or so.  


Some news from me. I have been in the hospital for the past four days  
concerning my Afibs. To make a long story somewhat short I do not have any  
more 
Afibs due to some new medications. I am now feeling very well. They are  
going to fine tune some of the medications,and I should be discharging me  
tomorrow.


18's


Marty

On Wednesday, March 16, 2016, 'Icandoallttc' via CMLHope  
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >  wrote:

Hi  all
I woke up dizzy and have had it all day. Ive had this before so not  to 
concerned yet.
Could be my potassium is up.
I hope everyone is good  tonight.

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s  Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started  Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January  2015
Dr Balducci Moffitt Cancer Center

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